# Support

**URL:** https://forum.livingwithfibro.org/c/support/10.md?page=2

[Latest](https://forum.livingwithfibro.org/latest.md) · [Categories](https://forum.livingwithfibro.org/categories.md)

**Page:** 3

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## [They keep taking away my meds; I don't want to live like this!](https://forum.livingwithfibro.org/t/they-keep-taking-away-my-meds-i-dont-want-to-live-like-this/11689)

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**Author:** [@Deborah4](https://forum.livingwithfibro.org/u/Deborah4)\
**Replies:** 15\
**Last updated:** [November 19, 2018, 10:43pm UTC](https://forum.livingwithfibro.org/t/they-keep-taking-away-my-meds-i-dont-want-to-live-like-this/11689 "2018-11-19T22:43:49Z")

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When I went to pick up one of my pain meds today, the pharmacist told me that my insurance did not want to pay because of this new law limiting MME’s (morphine equivalents). What they (Congress, public, etc.) don’t seem …

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## [Please tell me the truth no matter what the answer is](https://forum.livingwithfibro.org/t/please-tell-me-the-truth-no-matter-what-the-answer-is/11360)

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**Author:** [@Freedom](https://forum.livingwithfibro.org/u/Freedom)\
**Replies:** 19\
**Last updated:** [October 30, 2018, 3:58am UTC](https://forum.livingwithfibro.org/t/please-tell-me-the-truth-no-matter-what-the-answer-is/11360 "2018-10-30T03:58:34Z")

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Hi, I was diagnosed with fibromyalgia one month ago. The way my days go, I have no idea how I’m going to feel. Every day I have pain somewhere on my body. Some days I just lay on the couch in severe pain hardly able to w…

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## [Organizing a Support Group](https://forum.livingwithfibro.org/t/organizing-a-support-group/11426)

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**Author:** [@Rese95](https://forum.livingwithfibro.org/u/Rese95)\
**Replies:** 3\
**Last updated:** [October 15, 2018, 5:19pm UTC](https://forum.livingwithfibro.org/t/organizing-a-support-group/11426 "2018-10-15T17:19:44Z")

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Hello everyone! I am a recently diagnosed person with fibromyalgia. I have been looking for people who have fibromyalgia too. I realized there was no support group related to fibromyalgia in our country and thought to s…

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## [Music therapy](https://forum.livingwithfibro.org/t/music-therapy/11434)

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**Author:** [@Dodi](https://forum.livingwithfibro.org/u/Dodi)\
**Replies:** 4\
**Last updated:** [August 31, 2018, 10:34pm UTC](https://forum.livingwithfibro.org/t/music-therapy/11434 "2018-08-31T22:34:43Z")

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Currently listening to worship music. This really helps me with my worst pain days and fatigue. What music do you guys listen to that helps you when fibro flares strike?

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## [Having a very rough day](https://forum.livingwithfibro.org/t/having-a-very-rough-day/11413)

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**Author:** [@Kenn](https://forum.livingwithfibro.org/u/Kenn)\
**Replies:** 7\
**Last updated:** [August 30, 2018, 3:59pm UTC](https://forum.livingwithfibro.org/t/having-a-very-rough-day/11413 "2018-08-30T15:59:46Z")

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I am a student at a university, and school is getting ready to start up again. My grades have slipped because of the horrible brain fog and pain and just lack of motivation to go out and do anything. I’ve known I had fib…

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## [New Lows](https://forum.livingwithfibro.org/t/new-lows/5927)

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**Author:** [@Mrspeele](https://forum.livingwithfibro.org/u/Mrspeele)\
**Replies:** 3\
**Last updated:** [August 21, 2018, 1:35pm UTC](https://forum.livingwithfibro.org/t/new-lows/5927 "2018-08-21T13:35:02Z")

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This disease has a plan. It is smart. It uses strategy. I've suffered from clinical depression for as long as I can remember. Then anxiety and panic attacks made themselves known. I've lived in toxic atmospheres all my l…

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## [Frustrated, Scared, Depressed](https://forum.livingwithfibro.org/t/frustrated-scared-depressed/11035)

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**Author:** [@ShortStack](https://forum.livingwithfibro.org/u/ShortStack)\
**Replies:** 26\
**Last updated:** [August 18, 2018, 10:46pm UTC](https://forum.livingwithfibro.org/t/frustrated-scared-depressed/11035 "2018-08-18T22:46:51Z")

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Hey everyone. Haven’t posted in a bit but I’m just exasperated and beginning to feel hopeless. I’m 49 and have been dealing with fibro for just 3 1/2 years. I am recently divorced and work full-time as a nurse in a physi…

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## [What do you do when you just CAN'T? I don't know what I'm gonna do](https://forum.livingwithfibro.org/t/what-do-you-do-when-you-just-cant-i-dont-know-what-im-gonna-do/11346)

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**Author:** [@Sleepygamer5858](https://forum.livingwithfibro.org/u/Sleepygamer5858)\
**Replies:** 5\
**Last updated:** [August 7, 2018, 1:23pm UTC](https://forum.livingwithfibro.org/t/what-do-you-do-when-you-just-cant-i-dont-know-what-im-gonna-do/11346 "2018-08-07T13:23:54Z")

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Hey guys. In a flare again from family stress. I cant take it. I just got a new job, am trying to get into SAIT, and just cant take it. What do you guys do when all you wanna do is lay there and cry but you cant because …

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## [Aaah here we go](https://forum.livingwithfibro.org/t/aaah-here-we-go/11134)

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**Author:** [@N8trluvr](https://forum.livingwithfibro.org/u/N8trluvr)\
**Replies:** 1\
**Last updated:** [June 28, 2018, 1:09pm UTC](https://forum.livingwithfibro.org/t/aaah-here-we-go/11134 "2018-06-28T13:09:38Z")

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After all these years you’d think I would stop being suprised or derailed by a bad day. It’s always the same: “Wow, I’m exhausted and I just got up! Ouch , everything hurts…” So frustrating. And I had such a GREAT day …

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## [Need a vacation from this pain](https://forum.livingwithfibro.org/t/need-a-vacation-from-this-pain/10990)

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**Author:** [@Meow](https://forum.livingwithfibro.org/u/Meow)\
**Replies:** 7\
**Last updated:** [May 24, 2018, 4:01pm UTC](https://forum.livingwithfibro.org/t/need-a-vacation-from-this-pain/10990 "2018-05-24T16:01:15Z")

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I know this illness has no real cure right now. They aren’t even certain of the cause. But what I wouldn’t give for a week off of this pain train. Anyone else? I would go to a theme park with my nephews. Go for a hike. …

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## [Feeling down about having to take medication](https://forum.livingwithfibro.org/t/feeling-down-about-having-to-take-medication/10997)

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**Author:** [@Catbell](https://forum.livingwithfibro.org/u/Catbell)\
**Replies:** 0\
**Last updated:** [May 14, 2018, 9:01pm UTC](https://forum.livingwithfibro.org/t/feeling-down-about-having-to-take-medication/10997 "2018-05-14T21:01:55Z")

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I am dealing with some mental anguish over taking medication for my pain. I take Lyrica 150mg 3x’s a day and it helps so much. However, I am gaining about 2 pounds a week on it. I tried not taking it thinking since I hav…

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## [A little annoyed](https://forum.livingwithfibro.org/t/a-little-annoyed/10976)

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**Author:** [@ShellColl43](https://forum.livingwithfibro.org/u/ShellColl43)\
**Replies:** 11\
**Last updated:** [May 14, 2018, 7:30am UTC](https://forum.livingwithfibro.org/t/a-little-annoyed/10976 "2018-05-14T07:30:10Z")

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Hi everyone. I haven’t been here in a year.Just wanted to stop by and see what’s going on and let off a little steam. I am usually a pretty positive person, and have no problem blowing off any negativity that comes my w…

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## [Just need to let it out](https://forum.livingwithfibro.org/t/just-need-to-let-it-out/10888)

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**Author:** [@mward723](https://forum.livingwithfibro.org/u/mward723)\
**Replies:** 7\
**Last updated:** [April 19, 2018, 9:59pm UTC](https://forum.livingwithfibro.org/t/just-need-to-let-it-out/10888 "2018-04-19T21:59:04Z")

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I’m in a bad place right now. I began having fibro Pain in August ‘17 and although I hurt or am burning somewhere every day, I’ve never actually flared more than 2-3 days at a time. I’m on day 10 of the worst pain! I …

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## [I can't get out if my bed](https://forum.livingwithfibro.org/t/i-cant-get-out-if-my-bed/10710)

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**Author:** [@Sleepygamer5858](https://forum.livingwithfibro.org/u/Sleepygamer5858)\
**Replies:** 11\
**Last updated:** [March 15, 2018, 2:28am UTC](https://forum.livingwithfibro.org/t/i-cant-get-out-if-my-bed/10710 "2018-03-15T02:28:02Z")

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I don’t know what to do with myself. All I want to do is lay in bed. I need help. How do you guys get yourselves up and out of bed? UPDATE Got put on lyrica and now am feeling great! Thanks you to all of you guys

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## [Embarrassed by low productivity](https://forum.livingwithfibro.org/t/embarrassed-by-low-productivity/10417)

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**Author:** [@julie48](https://forum.livingwithfibro.org/u/julie48)\
**Replies:** 28\
**Last updated:** [February 19, 2018, 2:07pm UTC](https://forum.livingwithfibro.org/t/embarrassed-by-low-productivity/10417 "2018-02-19T14:07:17Z")

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Hi, I’m new to this forum. I’ve had some fibro symptoms for 20 years, but in the last 2 years it has really altered my lifestyle. Some people in my life know I have fibro and some don’t, but with everyone (except for my…

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## ["You're just exaggerating." "It's not that bad, you'll live."](https://forum.livingwithfibro.org/t/youre-just-exaggerating-its-not-that-bad-youll-live/5579)

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**Author:** [@Chloe1](https://forum.livingwithfibro.org/u/Chloe1)\
**Replies:** 18\
**Last updated:** [January 21, 2018, 1:54pm UTC](https://forum.livingwithfibro.org/t/youre-just-exaggerating-its-not-that-bad-youll-live/5579 "2018-01-21T13:54:10Z")

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Being a 23 year old, means that I get judged on my age a lot. Just because of my age alone, I get judged for not being active or being able to do things that other people my age can do. And since I have Fibromyalgia, a …

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## [Heavy Heart](https://forum.livingwithfibro.org/t/heavy-heart/10394)

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**Author:** [@Luna02](https://forum.livingwithfibro.org/u/Luna02)\
**Replies:** 5\
**Last updated:** [January 3, 2018, 5:40am UTC](https://forum.livingwithfibro.org/t/heavy-heart/10394 "2018-01-03T05:40:34Z")

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I was sitting to the right of Dad holding his right hand, & eldest Sis to the left. He started moving his arms around as if he were fighting someone, & I said “It is just a dream, it is just a dream. You are safe we have…

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## [Having a rough go of things](https://forum.livingwithfibro.org/t/having-a-rough-go-of-things/8634)

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**Author:** [@Ahava31](https://forum.livingwithfibro.org/u/Ahava31)\
**Replies:** 3\
**Last updated:** [December 4, 2017, 5:46pm UTC](https://forum.livingwithfibro.org/t/having-a-rough-go-of-things/8634 "2017-12-04T17:46:56Z")

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Hey everyone, I try to constantly look for the positives in life, count my blessings...but I am having a very difficult time as of late. My fibro flares have been more consistent and radical than ever and I am now look…

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## [Managing but it is a struggle](https://forum.livingwithfibro.org/t/managing-but-it-is-a-struggle/10169)

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**Author:** [@ranselmo49](https://forum.livingwithfibro.org/u/ranselmo49)\
**Replies:** 8\
**Last updated:** [November 7, 2017, 9:19pm UTC](https://forum.livingwithfibro.org/t/managing-but-it-is-a-struggle/10169 "2017-11-07T21:19:12Z")

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I am still learning the trading off and the pacing. What effort am I willing to pay to do whatever it is that needs to be done and is it worth it in the pain and exhaustion later? Is it only for me or for someone else? D…

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## [Need a friend on here](https://forum.livingwithfibro.org/t/need-a-friend-on-here/2047)

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**Author:** [@Loveandfaith](https://forum.livingwithfibro.org/u/Loveandfaith)\
**Replies:** 14\
**Last updated:** [September 23, 2017, 3:28am UTC](https://forum.livingwithfibro.org/t/need-a-friend-on-here/2047 "2017-09-23T03:28:03Z")

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I found out today that one of my closests friends told my other friend that she didn't think I was doing enough to get better. ( she already knows this fibro can't be fixed) I was also told that she was upset that I ha…

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## [Want to talk but feel embarrassed](https://forum.livingwithfibro.org/t/want-to-talk-but-feel-embarrassed/8787)

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**Author:** [@Roses](https://forum.livingwithfibro.org/u/Roses)\
**Replies:** 2\
**Last updated:** [June 11, 2017, 10:36am UTC](https://forum.livingwithfibro.org/t/want-to-talk-but-feel-embarrassed/8787 "2017-06-11T10:36:38Z")

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I've been struggling for the past 3 years with no diagnosis. I have a constant tidal wave of pain in every part of my body, I rarely get sleep, I'm having horrible "Fibro fog", and I continually dose off in class (uninte…

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## [Leg pain](https://forum.livingwithfibro.org/t/leg-pain/5891)

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**Author:** [@Tamikay63](https://forum.livingwithfibro.org/u/Tamikay63)\
**Replies:** 7\
**Last updated:** [May 2, 2017, 1:12am UTC](https://forum.livingwithfibro.org/t/leg-pain/5891 "2017-05-02T01:12:46Z")

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Tiday I was helping my husband in the garden and on the way back to the house my legs started to tingle then it felt like hundreds of bees weree stinging them I could not stand up and it hurt so bad I ways crying. My hus…

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## [I need some friends](https://forum.livingwithfibro.org/t/i-need-some-friends/8584)

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**Author:** [@Teesa](https://forum.livingwithfibro.org/u/Teesa)\
**Replies:** 7\
**Last updated:** [April 30, 2017, 2:55am UTC](https://forum.livingwithfibro.org/t/i-need-some-friends/8584 "2017-04-30T02:55:22Z")

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Everything is so different here. I havent been on here in about a year. I dont have a clue what I am doing and I cant figure out how to do the chat. I am having a very hard time right now. I am 27 back at home with my…

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## [7 Reasons To Be Happy Even If Things Aren't Perfect Now](https://forum.livingwithfibro.org/t/7-reasons-to-be-happy-even-if-things-arent-perfect-now/5441)

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**Author:** [@BaltimoreBaby](https://forum.livingwithfibro.org/u/BaltimoreBaby)\
**Replies:** 7\
**Last updated:** [April 24, 2017, 4:47pm UTC](https://forum.livingwithfibro.org/t/7-reasons-to-be-happy-even-if-things-arent-perfect-now/5441 "2017-04-24T16:47:23Z")

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I just loved this blog and wanted to share it with everyone... Source: tinybuddha.com founder, Lori Deschene “Being happy doesn’t mean that everything is perfect. It means you’ve decided to look beyond the imperfecti…

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## [Some books and an article I've found to help friends and family understand FMS](https://forum.livingwithfibro.org/t/some-books-and-an-article-ive-found-to-help-friends-and-family-understand-fms/9151)

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**Author:** [@CherryBlossom](https://forum.livingwithfibro.org/u/CherryBlossom)\
**Replies:** 0\
**Last updated:** [March 25, 2017, 3:24pm UTC](https://forum.livingwithfibro.org/t/some-books-and-an-article-ive-found-to-help-friends-and-family-understand-fms/9151 "2017-03-25T15:24:30Z")

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So I've personally been struggling for years to help the people around me understand exactly what I go through every day, and I think I've finally found some materials to help me do just that. If any of you are having th…

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## [Crisis/Help Line](https://forum.livingwithfibro.org/t/crisis-help-line/8879)

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**Author:** [@ModSupport](https://forum.livingwithfibro.org/u/ModSupport)\
**Replies:** 0\
**Last updated:** [January 4, 2017, 7:19pm UTC](https://forum.livingwithfibro.org/t/crisis-help-line/8879 "2017-01-04T19:19:56Z")

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Are you in crisis, or maybe even feeling suicidal? Do need someone to listen and to support you right now? Take a deep breath, and find the helpline in your country: USA https://suicidepreventionlifeline.org/ Canada …

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## [Fibro and your love life](https://forum.livingwithfibro.org/t/fibro-and-your-love-life/1489)

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**Author:** [@Holly\_M](https://forum.livingwithfibro.org/u/Holly_M)\
**Replies:** 16\
**Last updated:** [December 5, 2016, 3:52am UTC](https://forum.livingwithfibro.org/t/fibro-and-your-love-life/1489 "2016-12-05T03:52:39Z")

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Okay so this is my third discussion and I apologize for all the questions but you guys are all like the old wise guy on top of a mountain, I get more information from here than anywhere haha! And I love you guys for it \<3…

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## [Not doing so well](https://forum.livingwithfibro.org/t/not-doing-so-well/8756)

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**Author:** [@Tmama](https://forum.livingwithfibro.org/u/Tmama)\
**Replies:** 2\
**Last updated:** [November 19, 2016, 1:13pm UTC](https://forum.livingwithfibro.org/t/not-doing-so-well/8756 "2016-11-19T13:13:51Z")

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I won't type in my whole story here, but I've been diagnosed with Fibromyalgia for several years now. the last couple months have by far been the worst pain wise, in my life. I've found myself sinking deeper and deeper i…

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## [Explaining fibro to those who have no idea](https://forum.livingwithfibro.org/t/explaining-fibro-to-those-who-have-no-idea/88)

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**Author:** [@Melissa27](https://forum.livingwithfibro.org/u/Melissa27)\
**Replies:** 10\
**Last updated:** [November 8, 2016, 3:43pm UTC](https://forum.livingwithfibro.org/t/explaining-fibro-to-those-who-have-no-idea/88 "2016-11-08T15:43:54Z")

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As if having fibro wasn't hard enough, I'm finding that explaining it to people is almost worse. Recently I went with my long time boyfriend to visit some of his friends we haven't seen in awhile and when they asked me w…

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## [Fibromyalgia and sex](https://forum.livingwithfibro.org/t/fibromyalgia-and-sex/8685)

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**Author:** [@MrsFSBOSS](https://forum.livingwithfibro.org/u/MrsFSBOSS)\
**Replies:** 4\
**Last updated:** [November 4, 2016, 1:59am UTC](https://forum.livingwithfibro.org/t/fibromyalgia-and-sex/8685 "2016-11-04T01:59:39Z")

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I married a healthy young pup 6 happy years ago, now I am not sure what to make of all this. Idk if it is the fibro or the meds they have him on but he has not taken a second look at me in months...this illness SUCKS...a…

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