# Latest **URL:** https://forum.livingwithfibro.org/latest.md [Latest](https://forum.livingwithfibro.org/latest.md) · [Categories](https://forum.livingwithfibro.org/categories.md) --- ## [Welcome to Discourse](https://forum.livingwithfibro.org/t/welcome-to-discourse/8)
**Author:** [@system](https://forum.livingwithfibro.org/u/system)\ **Replies:** 0\ **Last updated:** [September 2, 2016, 7:39am UTC](https://forum.livingwithfibro.org/t/welcome-to-discourse/8 "2016-09-02T07:39:35Z")
Were you a member of our old Living With Fibromyalgia site? Simply LOG IN with your old user name and click on "Forgot password". We will send you a link to claim your old profile. First time visitor? Please go to our M… --- ## [Major Fibro flare after many years](https://forum.livingwithfibro.org/t/major-fibro-flare-after-many-years/14680)
**Author:** [@ElaineVT49](https://forum.livingwithfibro.org/u/ElaineVT49)\ **Replies:** 3\ **Last updated:** [April 2, 2026, 1:40pm UTC](https://forum.livingwithfibro.org/t/major-fibro-flare-after-many-years/14680 "2026-04-02T13:40:55Z")
Hi Everyone - Today has been a very painful day for me. I was woken up at 4:20 am by my pain throughout my body. I hurt everywhere! My skin hurst so badly I want to cry. :cry: I have had fibro for over 25 years and h… --- ## [Crushing Fatigue](https://forum.livingwithfibro.org/t/crushing-fatigue/523)
**Author:** [@tiredmama](https://forum.livingwithfibro.org/u/tiredmama)\ **Replies:** 21\ **Last updated:** [March 2, 2026, 10:13am UTC](https://forum.livingwithfibro.org/t/crushing-fatigue/523 "2026-03-02T10:13:47Z")
Hope everyone is doing well. Does anyone out there have a good way of treating this crushing fatigue that comes along with fibro? I've never experienced anything like it! It's like a blanket of fatigue that comes over me… --- ## [Fibromyalgia and itching](https://forum.livingwithfibro.org/t/fibromyalgia-and-itching/8859)
**Author:** [@edie](https://forum.livingwithfibro.org/u/edie)\ **Replies:** 14\ **Last updated:** [January 29, 2026, 6:41pm UTC](https://forum.livingwithfibro.org/t/fibromyalgia-and-itching/8859 "2026-01-29T18:41:06Z")
I have been diagnosed with Fibromyalgia since 2004, I honestly do not know how long (years) I suffered with before the diagnosis. I need to know if I am the only Fibro patient that suffers from itching. It just about dri… --- ## [Today is Giving Tuesday. Here Are Two Easy Ways to Help Our Community](https://forum.livingwithfibro.org/t/today-is-giving-tuesday-here-are-two-easy-ways-to-help-our-community/14663)
**Author:** [@Ben](https://forum.livingwithfibro.org/u/Ben)\ **Replies:** 0\ **Last updated:** [December 2, 2025, 3:25am UTC](https://forum.livingwithfibro.org/t/today-is-giving-tuesday-here-are-two-easy-ways-to-help-our-community/14663 "2025-12-02T03:25:02Z")
Hi everyone, Today is Giving Tuesday, a day when many people look for meaningful causes to support. If you would like to help our community today, here are two simple and meaningful options. 1) Share our campaign with … --- ## [Our Community Is Coming Together. Here Is How You Can Help](https://forum.livingwithfibro.org/t/our-community-is-coming-together-here-is-how-you-can-help/14655)
**Author:** [@Ben](https://forum.livingwithfibro.org/u/Ben)\ **Replies:** 0\ **Last updated:** [November 25, 2025, 5:55pm UTC](https://forum.livingwithfibro.org/t/our-community-is-coming-together-here-is-how-you-can-help/14655 "2025-11-25T17:55:28Z")
Hi everyone, As we approach the end of the year, our entire Ben’s Friends network is launching our annual community support campaign. Each forum plays an important role, so we wanted to share a few simple ways you can h… --- ## [Fatigue flare... - Relax!](https://forum.livingwithfibro.org/t/fatigue-flare-relax/14651)
**Author:** [@JayCS](https://forum.livingwithfibro.org/u/JayCS)\ **Replies:** 0\ **Last updated:** [September 24, 2025, 10:16am UTC](https://forum.livingwithfibro.org/t/fatigue-flare-relax/14651 "2025-09-24T10:16:18Z")
I just caught myself tensed up while disinfecting my bird baths and feeding bowls… That increases fatigue with feeling sick/ill plus slight nausea and pain, mainly after the tension resolves: post exertional malaise. I… --- ## [Age of fibro patients](https://forum.livingwithfibro.org/t/age-of-fibro-patients/804)
**Author:** [@Linda1](https://forum.livingwithfibro.org/u/Linda1)\ **Replies:** 75\ **Last updated:** [September 11, 2025, 5:40pm UTC](https://forum.livingwithfibro.org/t/age-of-fibro-patients/804 "2025-09-11T17:40:27Z")
I was told that most fibro patients get it in their 20-40's. I'm 63 and got it in my mid 50's. Can we try to do a poll- I think my fibro started when I was: 15-25 25-34 34-40 40=45 45-50 over 50 years old Also, when yo… --- ## [Lactulose as a laxative is good for blood lipids too, and a prebiotic](https://forum.livingwithfibro.org/t/lactulose-as-a-laxative-is-good-for-blood-lipids-too-and-a-prebiotic/14650)
**Author:** [@JayCS](https://forum.livingwithfibro.org/u/JayCS)\ **Replies:** 2\ **Last updated:** [September 7, 2025, 1:33pm UTC](https://forum.livingwithfibro.org/t/lactulose-as-a-laxative-is-good-for-blood-lipids-too-and-a-prebiotic/14650 "2025-09-07T13:33:00Z")
I was looking into these detailed posts of mine about magnesium cos of now needing a laxative… A few years after these posts, I’m having to re-check magnesium types. Cos I’ve switched from life-long ISB-D to chronic c… --- ## [Leg Exercise Machine](https://forum.livingwithfibro.org/t/leg-exercise-machine/14648)
**Author:** [@rosebud74](https://forum.livingwithfibro.org/u/rosebud74)\ **Replies:** 0\ **Last updated:** [August 28, 2025, 2:16pm UTC](https://forum.livingwithfibro.org/t/leg-exercise-machine/14648 "2025-08-28T14:16:36Z")
I use a leg exercise machine. It is electric and you put your feet on the foot plates and your legs and feet just glide back and forward. I have had this for many years, which is a tremendous help to me when my legs hurt… --- ## [Hello :)](https://forum.livingwithfibro.org/t/hello/4136)
**Author:** [@steph323](https://forum.livingwithfibro.org/u/steph323)\ **Replies:** 6\ **Last updated:** [July 15, 2025, 6:54am UTC](https://forum.livingwithfibro.org/t/hello/4136 "2025-07-15T06:54:18Z")
Hi all, I thought I'd leap outside my comfort zone throw myself in and give a quick intro about myself. My name is Stephanie and I'm a 41 year old mom of two. Although I have thought for a few years now that I suffered f… --- ## [Interstital Cystitis](https://forum.livingwithfibro.org/t/interstital-cystitis/14629)
**Author:** [@rosebud74](https://forum.livingwithfibro.org/u/rosebud74)\ **Replies:** 11\ **Last updated:** [July 9, 2025, 11:42am UTC](https://forum.livingwithfibro.org/t/interstital-cystitis/14629 "2025-07-09T11:42:12Z")
I have just looked on previous posts for this illness, which has helped. I also suffer from Pancreatic Insufficently together with Chronic Pancreatitis. (My body does not produce enough enzymes to digest food.) This is a… --- ## [Which medication works best for you?](https://forum.livingwithfibro.org/t/which-medication-works-best-for-you/1707)
**Author:** [@CarolAnn](https://forum.livingwithfibro.org/u/CarolAnn)\ **Replies:** 14\ **Last updated:** [June 24, 2025, 4:08pm UTC](https://forum.livingwithfibro.org/t/which-medication-works-best-for-you/1707 "2025-06-24T16:08:16Z")
Hi All! Thank you for the birthday wishes. I can honestly say I "feel old" I was hoping for your thoughts on the fibro drugs that work best for you. I've been on Savella since I started seeing my rheumatologist. I kno… --- ## [Do pain meds work with fibro?](https://forum.livingwithfibro.org/t/do-pain-meds-work-with-fibro/4334)
**Author:** [@Ahava31](https://forum.livingwithfibro.org/u/Ahava31)\ **Replies:** 8\ **Last updated:** [June 17, 2025, 10:11am UTC](https://forum.livingwithfibro.org/t/do-pain-meds-work-with-fibro/4334 "2025-06-17T10:11:56Z")
Hey everyone, so my pain ridiculously high today. To the point where I am actually sweating and feel feverish. Everything hurts and burns and aches. So my question is, has anyone ever tried pain meds and do they really w… --- ## [How Are You Today?](https://forum.livingwithfibro.org/t/how-are-you-today/14633)
**Author:** [@Mary\_M](https://forum.livingwithfibro.org/u/Mary_M)\ **Replies:** 1\ **Last updated:** [June 9, 2025, 7:03pm UTC](https://forum.livingwithfibro.org/t/how-are-you-today/14633 "2025-06-09T19:03:14Z")
Hi all I have been off Chatline for a few years. Hi to all. I am settling a lot more. Had Covid booster and was terrible for only 1 day?? Surprising for sure. Terrible drought in South Australia but finally we have rain.… --- ## [Pain Meds - What Works For You?](https://forum.livingwithfibro.org/t/pain-meds-what-works-for-you/14627)
**Author:** [@Barb3](https://forum.livingwithfibro.org/u/Barb3)\ **Replies:** 3\ **Last updated:** [June 10, 2025, 3:59pm UTC](https://forum.livingwithfibro.org/t/pain-meds-what-works-for-you/14627 "2025-06-10T15:59:53Z")
Hi my name is barbara i have had fibo for 15 yrs i have tried pain meds exercise cymbalta and lyrica i was allergic to cymbalta–the lyrica 200 mg a day helps some but i still have a lot of pain. my question to group ha… --- ## [Personality and Fibromyalgia](https://forum.livingwithfibro.org/t/personality-and-fibromyalgia/14588)
**Author:** [@SophieJo](https://forum.livingwithfibro.org/u/SophieJo)\ **Replies:** 19\ **Last updated:** [June 9, 2025, 1:58pm UTC](https://forum.livingwithfibro.org/t/personality-and-fibromyalgia/14588 "2025-06-09T13:58:37Z")
I am interested in finding out how closely the community here, align with the following symptoms… 21 Personality Characteristics often associated with Fibromyalgia: Has a low self-esteem Is a perfectionist Has high e… --- ## [New Here- Day 14 of Flare- Concerns](https://forum.livingwithfibro.org/t/new-here-day-14-of-flare-concerns/14533)
**Author:** [@Heatonpatti](https://forum.livingwithfibro.org/u/Heatonpatti)\ **Replies:** 7\ **Last updated:** [June 2, 2025, 12:22pm UTC](https://forum.livingwithfibro.org/t/new-here-day-14-of-flare-concerns/14533 "2025-06-02T12:22:42Z")
Hi everyone, this is my first post. My name is Patti and I am 54 years old. I have been suffering for 24 years with chronic pain. So 24 years of untreated Fibro, I can’t seem to find any information that explains the … --- ## [How are you?](https://forum.livingwithfibro.org/t/how-are-you/14620)
**Author:** [@JayCS](https://forum.livingwithfibro.org/u/JayCS)\ **Replies:** 0\ **Last updated:** [June 2, 2025, 6:45am UTC](https://forum.livingwithfibro.org/t/how-are-you/14620 "2025-06-02T06:45:26Z")
What a question, ey? :grinning\_face\_with\_smiling\_eyes: Regularly makes our head spin on overdrive! But seriously: how are you today? Any good moments to look forward to? I started the day weary as always, but have ma… --- ## [Welcome New Members!](https://forum.livingwithfibro.org/t/welcome-new-members/14618)
**Author:** [@VisitingModerator](https://forum.livingwithfibro.org/u/VisitingModerator)\ **Replies:** 0\ **Last updated:** [June 1, 2025, 8:28pm UTC](https://forum.livingwithfibro.org/t/welcome-new-members/14618 "2025-06-01T20:28:53Z")
Hi all, It seems really rather quiet round here, so I thought I’d lift my head above the parapet for the first time in a long time and welcome the new members who joined through March/April/May. If anyone who joined ea… --- ## [JayCS’s Fibro Blog](https://forum.livingwithfibro.org/t/jaycs-s-fibro-blog/13307)
**Author:** [@JayCS](https://forum.livingwithfibro.org/u/JayCS)\ **Replies:** 1877\ **Last updated:** [May 31, 2025, 12:18pm UTC](https://forum.livingwithfibro.org/t/jaycs-s-fibro-blog/13307 "2025-05-31T12:18:23Z")
Hi there, good “morning”! Ideas for this got me out of bed, but priorities interrupted them… \* sigh \* After the nice personal welcome’s and reactions in this forum, I’d like to try sharing my daily experiences with you,… --- ## [Volunteer Opportunity: Marketing Manager (Email + Social Media)](https://forum.livingwithfibro.org/t/volunteer-opportunity-marketing-manager-email-social-media/14604)
**Author:** [@Ben](https://forum.livingwithfibro.org/u/Ben)\ **Replies:** 0\ **Last updated:** [March 11, 2025, 8:28pm UTC](https://forum.livingwithfibro.org/t/volunteer-opportunity-marketing-manager-email-social-media/14604 "2025-03-11T20:28:58Z")
Do you have experience with marketing and a knack for crafting engaging content? Ben’s Friends is seeking volunteers for two distinct Marketing Manager roles—one focused on email marketing and the other on social media.… --- ## [The neuroscience of chronic pain](https://forum.livingwithfibro.org/t/the-neuroscience-of-chronic-pain/14586)
**Author:** [@SophieJo](https://forum.livingwithfibro.org/u/SophieJo)\ **Replies:** 15\ **Last updated:** [February 21, 2025, 11:18am UTC](https://forum.livingwithfibro.org/t/the-neuroscience-of-chronic-pain/14586 "2025-02-21T11:18:59Z")
Hi Everyone, I am new here and new to having any type of support for my fibro. I have also had Fibromyalgia for 35 years. I was wondering if anyone has come across the neuroscience of pain which involves unlearning your … --- ## [Ketamine](https://forum.livingwithfibro.org/t/ketamine/14563)
**Author:** [@Dawnie](https://forum.livingwithfibro.org/u/Dawnie)\ **Replies:** 16\ **Last updated:** [February 4, 2025, 5:08pm UTC](https://forum.livingwithfibro.org/t/ketamine/14563 "2025-02-04T17:08:07Z")
I am trying to get ketamine therapy because they promise amazing results. I live in Bar Harbor Maine which is conservative regarding meds and am treated like a drug addict. Although I am in so much pain and have suicidal… --- ## [Anyone else have a fake knee?-Flare effecting it](https://forum.livingwithfibro.org/t/anyone-else-have-a-fake-knee-flare-effecting-it/14537)
**Author:** [@Heatonpatti](https://forum.livingwithfibro.org/u/Heatonpatti)\ **Replies:** 1\ **Last updated:** [September 15, 2024, 12:54pm UTC](https://forum.livingwithfibro.org/t/anyone-else-have-a-fake-knee-flare-effecting-it/14537 "2024-09-15T12:54:14Z")
Lost track of number of days now in flare but yesterday I woke up to yet another new symptom. The outside of my left leg was extremely tight as well as my thigh. I could feel it at my hip and in my knee. Along with th… --- ## [Sore throat](https://forum.livingwithfibro.org/t/sore-throat/14580)
**Author:** [@SueT](https://forum.livingwithfibro.org/u/SueT)\ **Replies:** 5\ **Last updated:** [January 12, 2025, 6:58pm UTC](https://forum.livingwithfibro.org/t/sore-throat/14580 "2025-01-12T18:58:48Z")
Sorry not been around lately but have been feeling very sad and sorry for myself with everything going on. My aches/pains in the back and other places seems to keep increasing. I had to stop taking the Ibuprofen and Omep… --- ## [Any one try acupuncture for pain? also turmeric 1500? ginger combo?](https://forum.livingwithfibro.org/t/any-one-try-acupuncture-for-pain-also-turmeric-1500-ginger-combo/5345)
**Author:** [@pravda](https://forum.livingwithfibro.org/u/pravda)\ **Replies:** 2\ **Last updated:** [January 12, 2025, 4:37pm UTC](https://forum.livingwithfibro.org/t/any-one-try-acupuncture-for-pain-also-turmeric-1500-ginger-combo/5345 "2025-01-12T16:37:27Z")
i did have 10 session of acupuncture after each i felt 3-4 h better like 25-50% But the pain is back with full bloom in the morning --- ## [Last Chance to Support Ben’s Friends in 2024 - Every Donation Counts!](https://forum.livingwithfibro.org/t/last-chance-to-support-ben-s-friends-in-2024-every-donation-counts/14576)
**Author:** [@Ben](https://forum.livingwithfibro.org/u/Ben)\ **Replies:** 0\ **Last updated:** [December 30, 2024, 10:03pm UTC](https://forum.livingwithfibro.org/t/last-chance-to-support-ben-s-friends-in-2024-every-donation-counts/14576 "2024-12-30T22:03:38Z")
As we count down the final hours of 2024, I want to personally thank the 100+ donors who have already contributed over $27,000 to our Friends Helping Friends campaign. Your generosity is nothing short of inspiring, and … --- ## [From Isolation to Connection: The Role of Community Support](https://forum.livingwithfibro.org/t/from-isolation-to-connection-the-role-of-community-support/14574)
**Author:** [@Ben](https://forum.livingwithfibro.org/u/Ben)\ **Replies:** 0\ **Last updated:** [December 19, 2024, 7:49pm UTC](https://forum.livingwithfibro.org/t/from-isolation-to-connection-the-role-of-community-support/14574 "2024-12-19T19:49:30Z")
As we approach the end of our year-end campaign, I wanted to share a powerful reminder of the impact your support makes. A Message from the Heart: We’ve just received an incredibly moving video from Jaz, one of our com… --- ## [This Giving Tuesday, Make Sure No One Faces Rare Disease Alone](https://forum.livingwithfibro.org/t/this-giving-tuesday-make-sure-no-one-faces-rare-disease-alone/14570)
**Author:** [@Ben](https://forum.livingwithfibro.org/u/Ben)\ **Replies:** 0\ **Last updated:** [December 2, 2024, 10:03pm UTC](https://forum.livingwithfibro.org/t/this-giving-tuesday-make-sure-no-one-faces-rare-disease-alone/14570 "2024-12-02T22:03:30Z")
As we approach the end of the year, I’m reaching out with an urgent request on behalf of thousands of patients with rare diseases and chronic illnesses who rely on Ben’s Friends for support and connection. Our mission i… [Next page](https://forum.livingwithfibro.org/latest.md?page=1)