# Fibromyalgia and Lupus

**URL:** <https://forum.livingwithfibro.org/t/fibromyalgia-and-lupus/5835>\
**Category:** General\
**Created:** [April 5, 2016, 12:56am UTC](https://forum.livingwithfibro.org/t/fibromyalgia-and-lupus/5835 "2016-04-05T00:56:54Z")\
**Posts on this page:** 5\
**Page:** 1

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**Author:** ![Petsway](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithfibro.org/petsway/32/9307_2.png) [@Petsway](https://forum.livingwithfibro.org/u/Petsway)\
**Post date:** [April 5, 2016, 12:56am UTC](https://forum.livingwithfibro.org/t/fibromyalgia-and-lupus/5835/1 "2016-04-05T00:56:54Z")

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Hi, I have both Fibromyalgia and Lupus. I am not sure where one starts and the other ends. My Rheumy does not believe in Fibromyalgia. He said it is due to a misfire in the brain.

Does anyone have both? How are you handling it? I am not handling it very well at all.

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**Author:** ![AnneV](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithfibro.org/annev/32/3148_2.png) [@AnneV](https://forum.livingwithfibro.org/u/AnneV)\
**Post date:** [April 5, 2016, 10:26pm UTC](https://forum.livingwithfibro.org/t/fibromyalgia-and-lupus/5835/2 "2016-04-05T22:26:01Z")

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Hello Petsway,

Having both must be very tricky, I know some members here do have both, so hopefully they will weigh in. My thoughts are, first find a rheumotologist who recognises Fibro ( in UK they are usually the ones that diagnose ), if that is possible for you. Then try a variety of approaches to manage the Fibro ( there are groups here that you might like to join, which will help you with this). I have a 'toolbox' different strategies which help, for instance, pacing, relaxation tapes, mindfulness, ACT (Acceptance Commitment Therapy), gentle stretches and Tai Chi. I don't take meds for pain, but I do take meds for depression. You need to find what works for you, it takes time and is all trial and error. Wish you well.

Take care Anne

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**Author:** ![suzie](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithfibro.org/suzie/32/2053_2.png) [@suzie](https://forum.livingwithfibro.org/u/suzie)\
**Post date:** [April 9, 2016, 8:43pm UTC](https://forum.livingwithfibro.org/t/fibromyalgia-and-lupus/5835/3 "2016-04-09T20:43:53Z")

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Hi . Sending you some good thoughts for your  
well being  
HUGGGGGGGGGS  
Suzie

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**Author:** ![BaltimoreBaby](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithfibro.org/baltimorebaby/32/1254_2.png) [@BaltimoreBaby](https://forum.livingwithfibro.org/u/BaltimoreBaby)\
**Post date:** [April 9, 2016, 8:55pm UTC](https://forum.livingwithfibro.org/t/fibromyalgia-and-lupus/5835/4 "2016-04-09T20:55:56Z")

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Hi, Petsway.  
You’ve received great support from others here. I only want to add if you’re able to seek a second opinion from another doctor, it’s worth considering. Although its cause isn’t yet entirely clear, scientific-based evidence has proven Fibromyalgia is a very real condition and you deserve understanding, treatment and relief from pain and its’ symptoms. Also, if you haven’t yet, please check out our Lupus community. It’s a wonderful support for those with Lupus.  
Hugs,  
Laurie

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**Author:** ![Petsway](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithfibro.org/petsway/32/9307_2.png) [@Petsway](https://forum.livingwithfibro.org/u/Petsway)\
**Post date:** [April 14, 2016, 10:33am UTC](https://forum.livingwithfibro.org/t/fibromyalgia-and-lupus/5835/5 "2016-04-14T10:33:57Z")

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Thank you all for your supporting words. I am a member of the Lupus page too. My doctor is supposed to be a leader in his field. That is why I do not understand his reasoning. However, the treatment for the Lupus, in addition to the Gabapentin my internist prescribes, helps both symptoms to a point. My blood work on the Lupus is borderline and he is proactive in the treatment to prevent further damage. I guess I am just confused and want my life back. Again, Thanks for listening.
