# Frustrated! **URL:** \ **Category:** Support\ **Created:** [May 21, 2015, 2:44am UTC](https://forum.livingwithfibro.org/t/frustrated/5438 "2015-05-21T02:44:06Z")\ **Posts on this page:** 5\ **Page:** 1
**Author:** ![Michelle17](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithfibro.org/michelle17/32/3847_2.png) [@Michelle17](https://forum.livingwithfibro.org/u/Michelle17)\ **Post date:** [May 21, 2015, 2:44am UTC](https://forum.livingwithfibro.org/t/frustrated/5438/1 "2015-05-21T02:44:06Z")
Just diagnosed in January and started meds a couple months ago . Well my Rhuemotologist just moved and I had a bad flare up so seen the new Dr yesterday. She educated me on Fibro, Lupus, Sjorens. As if I didn’t do any research. She says for sure I have Fibro and need to exercise and do water thErapy because she doesn’t like to medicate. And she s on the fence as to me having Lupus my blood work shows signs but my body doesn’t look like it. So why am I on 400mg plaqenil and flexerol and melexicam… I’m so frustrated… How can 1 Dr say I have Lupus and medicate me and another in the same office not so sure. ---
**Author:** ![BaltimoreBaby](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithfibro.org/baltimorebaby/32/1254_2.png) [@BaltimoreBaby](https://forum.livingwithfibro.org/u/BaltimoreBaby)\ **Post date:** [May 21, 2015, 3:12am UTC](https://forum.livingwithfibro.org/t/frustrated/5438/2 "2015-05-21T03:12:25Z")
Hi, Michelle. Lupus like Fibro is difficult to diagnose. As I understand it, having positive bloodwork isn’t a straightforward indicator for Lupus. It seems as if the doctors are basing their conclusions on their experience and what they professionally consider definitive diagnostic indicators. I myself would follow advice of the doctor I feel most comfortable with and find most knowledgable. Feel free to join our Lupus community also for member feedback on similar concerns. Hugs, Laurie ---
**Author:** ![Madere\_dancermom](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithfibro.org/madere_dancermom/32/2613_2.png) [@Madere\_dancermom](https://forum.livingwithfibro.org/u/Madere_dancermom)\ **Post date:** [May 21, 2015, 12:28pm UTC](https://forum.livingwithfibro.org/t/frustrated/5438/3 "2015-05-21T12:28:35Z")
Yes, I agree that the Lupus community can shed some light on this. Blood levels fluctuate a lot, especially if you are on meds. So starting up with a new doctor can definitely seem like a step backward at first. On the bright side, if she was taking the time to tell you about Sjogren's and Lupus, then that means she knows something. I would take it as a good sign. ---
**Author:** ![Michelle17](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithfibro.org/michelle17/32/3847_2.png) [@Michelle17](https://forum.livingwithfibro.org/u/Michelle17)\ **Post date:** [May 21, 2015, 1:55pm UTC](https://forum.livingwithfibro.org/t/frustrated/5438/4 "2015-05-21T13:55:51Z")
Thank You!!! I felt like she didn’t believe I was sick, but your probably right she s starting at step 1 and I’m looking for a fix and there isn’t really a true fix Madere (dancermom) said: > Yes, I agree that the Lupus community can shed some light on this. Blood levels fluctuate a lot, especially if you are on meds. So starting up with a new doctor can definitely seem like a step backward at first. On the bright side, if she was taking the time to tell you about Sjogren’s and Lupus, then that means she knows something. I would take it as a good sign. ---
**Author:** ![Michelle17](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithfibro.org/michelle17/32/3847_2.png) [@Michelle17](https://forum.livingwithfibro.org/u/Michelle17)\ **Post date:** [May 21, 2015, 1:56pm UTC](https://forum.livingwithfibro.org/t/frustrated/5438/5 "2015-05-21T13:56:42Z")
I am also on the Lupus site it’s amazing the support and info these sites have. Thanks for your response BaltimoreBaby said: > Hi, Michelle. > Lupus like Fibro is difficult to diagnose. As I understand it, having positive bloodwork isn’t a straightforward indicator for Lupus. It seems as if the doctors are basing their conclusions on their experience and what they professionally consider definitive diagnostic indicators. I myself would follow advice of the doctor I feel most comfortable with and find most knowledgable. Feel free to join our Lupus community also for member feedback on similar concerns. > > Hugs, > > Laurie