Awwww, a Jacka-wawa! How Cuuuuuuute! Such soulful eyes too. And smart!
Yes, you do belong. You are welcome and you are wanted. Your advice is welcomed and your questions will be respected as we attempt to answer you. You are no longer on your own.
Hugs and some nice hot cocoa to you,
Petunia
Oh that was good, the great grandson will go nuts over that! See how much energy you need for one of those characters, they really are balls of fire! ha!
Hi Nicole Jade
I am new too. I’ve found lots of friends here and help with my fibromyalgia. You have found the right place and welcome. Barb
thanks you and also hello :)
i have had a really bad day but being able to come on here at the end of the day makes things easyer :)
she is loverly i will upload some pics if every one would like to see her :)
thanks hugs to you to :)
sk yea she sure is smart my partner was trying to teach her paw and she wasnt getting it but then i gave it a go and within mins she got it she also dose sit and lie down now witch helps a lot stilll being at terrible 2s stage like she is asking y all the time b4 doing anything , i also had a springer spainle who lives with my mum as was to much for me to handle as he keeped pulling my shoulder out of place :/ miss him but he is so smart and loayal
tez 20 wow i lover staffys my partner has one her mum also has one and they are great dogs so loving nothing like what image they have been given her mums dog is due puppies soon its going to be hard not to fall in love with one :/ thanks again x
Hi Nicole,
Sending you gentle hugs and special blessings for a better day !!!
Please don’t feel alone in your pain, we all understand exactly how you feel !!
thanks dee yeh not been a good day woke up with back pain down one side legs and arms feeling weak
and the pain still not going away :/
so glad you all do its hard trying to explain and then i keep being called lazy and then havin to do things that make it all worse so i dont get moaned at :(
Hello nicole,
Sorry to hear you woke feeling bad...back pain is terrible as i've got cervical spondylosis so i know how painful it can be.
You should'nt be called lazy at all and are you pacing your body while doing things like taking a break in between because if you go constant at doing things it will only draw what wenergy you have from you and make your pain worse besides fatigue.
Oh i do feel for you mate ((Hugs Terri)) xxx
aww thanks terri that made me cry for some sypatheic words finally wish i could get the others to relise that like carrying heavy bags of shopping witch makes my arms feel weak then i have to tidy the room up nd make coffees ect doing my head in im sure im not the only one who has broken down and cryed over silly things that that :/
Hi again Nicole Jade (love the name!)
Oh yes, those heavy shopping bags are the pits! And the baggers always load all of the cans in one bag and you kill your arms and back trying to handle them...I have ten steps to carry all of the bags up to get into the house. It's just all I can do to get me and the bags in much of the time. I wish there was an upwards moving slide into the house!
I hate vacuuming. Any cleaning that is counter level or higher is okay with me. Anything lower is awful. I vacuumed my car out last week to get out all of the pieces of fall leaves and by the next day it was filled with them again. Plus my back and knee were killing me.
Please don't feel alone in your struggles. i would be surprised if a single person here didn't have the same issues as you do with housework and life in general. But remember, you may be down, but you're not out. Fibro can knock you for a loop but it won't crush you. We all learn ways to compensate for it. We're all fibro fighters and fibro survivors. You too.
A warm cup of tea to you,
Petunia
Tez, SK tells me how dreadful spondylosis is. I am dreadfully sorry that you or anyone has to suffer from it. Do you have any meds that help with the pain? Are you able to get up and about much? It seems that you and SK will have much to talk about with you both having fibro and spondylosis.
My hat is off to you for even getting onto a computer and being cheerful. Brave girl!
A VERY gentle hug and some hot tea,
Petunia Girl
nicole i am sorry for making you cry as i did'nt mean to upset you more concerned than anything else knowing what these disease can do to we.
I can't carry heavy bad through my muscle atrophy so god knows how your doing it...it seems to me like your daily life is a struggle even with those around you not uderstanding it just gets me md sorry....it's like compassion with some people as just gone through the window.
Cryingdoes release stress and pressure and it's better out than bulit up inside because these diseases get such a kick from it, it's like the lupus i have it actually thrieves off depression and when it gets old of it double our symptoms up...i'm forever telling members not to get depressed and i'm a manic depressive and no what it can do.
Love you dearly and keep positive although it hard in life. 
xxx
angleonearth...how correct your input is :)
Hello Petunia,
Thank you for your lovely words...well i was born with cervical spondylosis i have 2 vertebra's supporting my neck, ones damaged in the middle of my back my backs disfigured from birth and it's spread into my ribs, my cervix as been fractured twice, two ribs have been done through my epilepsy...it's terrible which susan knows but i'm well supported by a chair got my legs up because of my huhes syndrome because of blood clotting.
Besides taking the plaquenil as they have to watch with the amount of meds i'm on for other reason's i can take upt 4000mg a day of paracetamol, if i go to 2000 my hubby ste always says i look stoned out of my head but the rheumo wants me to trial Rituxan IV infusion's and he wants my answer on the 30th of this month.
I don't have fibro only Lupus with other A1 Diseases overlapping autoimmune diseases which makes symptoms more omplicated daily.
Regarding getting about i use a rollator and wheelchair, ste takes me outin the car when i do wnt to go or for short journey's my electric scooter but i live like an hermit through the cold and come summer the heat alone fries my skin so i mainly live in 4 walls.
Life carries on though, i have my hubby who understand well what we suffer and LWL are my 2nd family and your site and the sjogren's are completing what i love about these sites compassion and love.
Well i due a cuppa and you also takecare my friend. (Hugs Terri) xxx
Pet
I use an I robot clearner for my floors. Wonderful,I couldn’t bend down to vacuum and it makes a big difference. Cheers Barb
What I’m reading are stories from a lot of brave people. Take Care Brave Hearts.
terry they were more happy tears as finally people understand and that its not all in my head as iv been told many a time yeh i cant hover either any more but even washing up hurts
yeh im also suffering with depression lost my flat and now living with partner and there mum but i dont like it there always rows and my partner is with me nd dosent understand that a cuddle is somtime all i need not to be left alone then ask for me to make coffee where i will tip hot water on my hand coz the kettle is to full :/ so trying to sort my self out and get my own place again so i can relax a bit more
hugs to evey one x
Bless you Barb and the same to you also. :) xxx