# Hello! Question, what is your Fibro day like? **URL:** \ **Category:** General\ **Created:** [May 28, 2021, 2:56am UTC](https://forum.livingwithfibro.org/t/hello-question-what-is-your-fibro-day-like/13655 "2021-05-28T02:56:33Z")\ **Posts on this page:** 1\ **Showing post:** 5
**Author:** ![JayCS](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithfibro.org/jaycs/32/9520_2.png) [@JayCS](https://forum.livingwithfibro.org/u/JayCS)\ **Post date:** [June 19, 2021, 10:52am UTC](https://forum.livingwithfibro.org/t/hello-question-what-is-your-fibro-day-like/13655/5 "2021-06-19T10:52:36Z")
Tough one for me to answer, as it’s all baby steps 👶 progress ↗ at a low 🔅 level 😺, which means my [blog](https://forum.livingwithfibro.org/t/jaycs-s-fibro-blog/13307/388) tries to answer it anew everyday, that and my new [high- & lowlights of the week](https://forum.livingwithfibro.org/t/jaycs-s-fibro-blog/13307/381) try to show the steps plus the [blog-summary](https://forum.livingwithfibro.org/t/jaycss-fibro-blog-summary/13606/2) the overall progress. I’ll try to put it in 2 🥥 nutshells. I would say that my fibro developed as Ache and tiredness starting 2011 and ended in a full flare Dec19, which I have been in since. My symptoms are very similar to yours, @Freedom, @Chameleona and @SueT. However what I thought was joints was mainly the tendons. Less burning and tingling, but also sleep, stiffness (which you just haven’t mentioned, I know), exhaustibility, many GI & bladder problems. Because of continual treatment (avg. 5h/wk) and self-treatments (10h/wk), mainly physio stuff and GABA, self-care, pacing (10h/wk of work, i.e. 20%) I have got all my symptoms down to usually 1 of 7 pain (my wife says 7 is others’ 12) and I say I am feeling 90% well most of the time, night and day (again my wife would considerably tone that down… [edit 90% → 50%]). If I’d stop all this and lived like I used to I would be back up to 4-5 of 7, which might be 7-8 on other’s scales. That’s why I consider this as being still in a continual full flare and not ‘healed’ in any way. I had been on sick leave for 10 months last year, then tested and found this level of work to be OK, but in March/April my sleep problems got so back I had to go on sick leave for a month again, but apart from that I’m pretty stable, my body is reliable enough. Thankfully it’s _not_ a desk job, at least not one where I have to sit a lot, I need to be able to change my position regularly. [Sitting is what I’m targeting at the moment](https://forum.livingwithfibro.org/t/jaycs-s-fibro-blog/13307/388#sitting-5). When working digitally at home I can lie down or change positions more often. Tiredness is a problem if I can’t sleep like I need to, esp. on the one day a week I have to get up early, so I’ve sorted out that I only have to get up at 9:00 at the earliest in 2 months. People apart from my wife can’t see my symptoms, so I tell them all the time. It’s not faking tho, it’s just that I’m a cheerful optimistic guy and have had pain all my life and got used to it and thus don’t need or want meds (which only harm me anyway). At the moment a lot of colleagues have been asking me, even regularly, so I’m getting into a routine for quick answers (at the moment “stable at a low level”), praps going a little deeper and then asking back “and yourself?” unless they want to delve out more details. … Would you agree that this is still a full flare I’m in, or how would you describe it? --- _[View the full topic](https://forum.livingwithfibro.org/t/hello-question-what-is-your-fibro-day-like/13655)._