More shared information from Dr. John Quintner:
Eh, I got an error message when going to the site. Interesting discussion topic though.
SK
I couldn’t get into your reference, but it seems to me that pain is an indicator that there is a problem. Whether that problem is a classified disease or not is dependent on whether it has been adequately researched rather than it being a normal health state! My contribution! barb
This information was placed in a 'drop box', Renie and I are trying to figure out how you all can access it. I won't post more until this is figured out.
Try it now, let me know if it works, please.
Worked for me and it didn’t work before. Thanks for passing on all this information it’s very thought provoking.
Must be time for you to be in bed.
Ok I’ve got into it and see what they are getting at.Will need to read it a couple of times to get the whole message but from the abstract, they are saying that chronic pain alone has it’s problems above and beyond causative agents. From my viewpoint the quicker they find a way to stop it the better. It is clear however that there are so many physiological factors that are still completely unknown to even the most informed doctor, and research is so slow, and social change even slower that I suspect it will be beyond my lifetime. That is not to say however that I don’t think that they, researchers, shouldn’t keep studying. My main problem with health practitioners is that all too often they practice their craft as if they know all the answers when it is clear that they don’t.
Aren't you one of our nurses, barb?
My Internist tried to explain this idea to me, when he kept insisting I take Morphine as a maintence drug, of course the progression of the autoimmune arthritis is gradually making this a necessity, the pain is taking the fight right out of me about it. Right now I do not take it if I have do drive and do not drive once I have taken it, but in time, I won't be able to drive. Hell in time I won't be able to even ride!
The pain management injections must have sky rocketed my stress response, firstly they could never get me numb, or never took the time to get me numb, I there I was face down on the table, bare assed, without being numbed having those long needles injected into the root of my spinal nerves. I got to the point that I was so sensitive I could not stand to even be touched.
The Rheumatologist said "no way" to any implants while taking biologics, because of recurring infections, and that they usually were not that beneficial anyway.
So my options are so very limited, adverse reactions to codeine. So it's morphine, and at end of life it will be Actiq. Now there is a pain killer. My Internist had me on those early on, went to Hopkins to a surgeon, he sent me to my 5th PM specialist there at Hopkins, he hit the roof, raised hell with me, called my Internist, raised hell with him, explaining that this drug was ONLY meant for end of life patients, as a single dose could stop a heart, with what I have in time the pain alone will stop a heart!!
BTW, if you go to pain australia, to medical professionals, and from there to research, you will find a wealth of information that we have tried to hunt down for years.
I will be printing it ALL and carrying it to my Internist, my Rheumatologist and my Chiropractor.
When I recently had the fall, my Dr was out of the country, my DC would not see me until an MD had looked me over and x-rays were taken, so he said Urgent care, the nurse asked me my history, asked me to write everything down, and sent me to the ER.
When the ER Dr came in and asked if any meds could have caused the fall, I told him no, that I had only taken the phenergan, wanting to know why I took that, brought him to the question of why I took Morphine, so I just handed him the list. His response was "Oh, you poor thing. No wonder, you take it, you need it!" This was a totally different response than from the Dr in the ER when I was brought in from the last car accident that kicked this all off. He did not believe in pain meds, thought they only made pain worse. So perhaps his health and well being will one day deteriate and he will change his mind on that.
SK
Thank you for that reference, it is good to know that folk are working on the issue of chronic pain. from where I sit I don’t see fibromyalgia as just pain, in my view it is a constellation of symptoms, and pain is one of them. So yes it would be wo derful to be able to address the pain, but what about the other features. To me this misnamed fibromyalgia condition is concerned centrally with the autonomic nervous system, which influences many other body systems, and is a distinct disease state rather than a symptom. Of course I may be completely wrong!! Thank you for your efforts. Barb
Yes I was a registered nurse for over 40 years but I knew NOTHING about fibromyalgia. sadly I have had to learn fast!! Barb
yes they tried to convince me to take a maintenance dose twice a day, but I have ended up giving it away and trying to manage my pain in other ways. Cheers Barb
Barb5
I agree as I am laying here waiting for sleep to come. In my case right now my pain is a 3 varies to 5-6 but normally manageable, but I can’t get rid of the exhaustion, sleeping problems., cognitive problems, and mood swings My husband told me when he woke me up this morning I was breathing really strangely, couldn’t really wake up (probably meds) and slept 'til 3:30, , doing a sleep apnea test on 19th and will see if that’s part of it.
Hoping that maybe the other symptoms may be helped through alternative methods.
Barb5 would really appreciate any thoughts you have after reading this material.
SK you’re an amazing woman to have such a positive attitude and provide such support to everyone.
B2chi
I don’t know, I hate to say that but I really don’t know how to overcome these issues.I live on my own which I think helps, I don’t tolerate other people very well, they exhaust me and I can’t cope with them. so I am housebound and alone. I use this iPad to connect socially with others. My son visits me from time to time and is always there if I need help. I used to have friends for lunch but it all became too much and I’ve decided this year not to do that. I manage pain by staying away from stressors, pacing, limited exercise, and good nutrition. I take multiple vitamin B ,C and D3, muscles relaxant and tramadol if all else fails, every three
months or so. I used tryptophan for sleep but after a while it failed to work.Now I just tolerate sleeplessness thinking that at least I no longer have to work. I was forced to retire due to this illness.That’s how I cope but I have to say that each year I can see that I can do less and the pain gets greater! I have no answers! Barb
SK - when I clicked onto the website yesterday, the article was in HUGE letters and wasn't big enough width wise for me to read the sentences. The letters hurt my eyes. Is it just me or my computer?? Also, I just clicked onto the above that you mentioned in your discussion and now the words are so tiny, I can't read it. It drives me crazy, because I want so much to read what the Doctor has said!! LOL Laurie
If you move your mouse down the right side of the screen, an option to use a magnifier is available, try that!
front page