# JayCS’s Fibro Blog **URL:** \ **Category:** Symptoms & Treatments\ **Created:** [October 17, 2020, 8:07am UTC](https://forum.livingwithfibro.org/t/jaycs-s-fibro-blog/13307 "2020-10-17T08:07:59Z")\ **Posts on this page:** 1\ **Showing post:** 111
**Author:** ![JayCS](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithfibro.org/jaycs/32/9520_2.png) [@JayCS](https://forum.livingwithfibro.org/u/JayCS)\ **Post date:** [November 21, 2020, 8:26am UTC](https://forum.livingwithfibro.org/t/jaycs-s-fibro-blog/13307/111 "2020-11-21T08:26:36Z")
**Day 27 - Saturday, time to cuddle in, settle down, rest & praps think how I’m doing & where I’m going** First - making amends: 1. I thought I’d lost a day, but had just counted wrong, set that right now, I hope. 2. The supplement-guru is a doc whom my acquaintance, ‘Harry’, is following. This doc is just as limited and even more self-glorifying than Harry. I’m not saying they are wrong, the supp-regime is well thought up. So it was OK for me to spend quite a bit of money on it. 3. Bella, bella, bella! The beautiful. The gorgeous. Like Sady Ann one of our forum-mascots… Can she forgive me?.. Ah, no, I’ll take this one over to [the other thread](https://forum.livingwithfibro.org/t/time-for-some-friday-quotes/13363/23)… 2 hours later ✅ 12 Aching all morning, laughing & fooling around helped to distract tho. Grey outside. Table tennis?! 🤪 Best breathe first: 2x1 was a good help, table tennis 4-games-no-breaks was a good laugh in drizzle with everything wet, the ball was swooping like it was learning to fly. But after it the Ache is coming back fully, 5/6 of 7. OK: **Where am I on Day 27 of working at 20%, 2 days before going up to 40%?** Did I manage 20% well, am I full of zip, raring to go up to 40%, no problem, sky’s the limit? Ehm, no. At the moment I’m feeling so bad that I shouldn’t make a decision based only on this. But it might be a better time to start calculating what makes sense than if I were feeling good. The basics: As long as I’m trying and progressing, I’ll be getting full pay, more than enough, putting it aside. If I could manage working 40%, then that’d be 50% work, +10% for being “severely disabled”, on disability it’d be +25%=75% pay. The most effective solution: 40% work for 75% pay! If I could. If I don’t manage it up to 40%, I’m out and will get 50% disability pay. Less than these 40=50% is not allowed. Which is still just about enough, I don’t need much money, I have no car, don’t like going on holiday and my hobbies don’t cost much. And I could always work extra or for free if I wanted/needed to. Others in my job work 50% and get paid 50%, just because this job is otherwise too hard for them. And in the first five years I can apply to try working again. I don’t want to work if that means overdoing it, making it flare up, “too much” - but how much is too much? (Why are _ **you** _ working altho it flares up?..if you are…) And is it really the work which is causing the flares? And what about work is it? Seeing as tho I don’t _need_ to work, it should be giving me more than it’s taking. It’s not giving me much. It’s OK, but I didn’t miss it and at the moment I’m getting used to it and it’s nice seeing everybody, but I don’t need it much inside. But I do like it a bit. I used to say I’d made it in to my dream job. But at the moment it’s not that. Day 1 OK Day 2 OK Day 3 work tough; plus dentist Day 4 Ache 6/7 from work, tt3. Day 5 weary Day 6 depressed Day 7 Sunday good # Week 1: too tough. Day 8 Ache 7, later 5/6 & seizures Day 9 fresher, bit feverish Day 10 quite good Day 11 Success Day 12 Weak but happy, Acu-success Day 13 Acu-success Day 14 Good, self-care # Week 2: Monday too hard, Tuesday & Friday just about OK. Day 15 Good, but torso-Ache Day 16 Energy Day 17 Energy, posture Day 18 Ache / ill 5 bc of work Day 19 Work Ache 4 bc of work, later 5 despite therapy Day 20 OK Day 21 Overdoing it deliberately: Shower OK. # Week 3: Thursday & Friday too hard. Day 22 Weary, cold wrists. Bashed. Day 23 OK. Therapy did nothing. Day 24 Not sure. Stirring. Day 25 Achy after work, zoom, singing, dentist: too much. Day 26 work ok, after therapy nauseous, then achy Day 27 Ache 6… # Week 4: too tough, Monday, Thursday, Friday, Saturday. So: Week 1 was without nosestrips. 2 & 3 were OK. But 4 should’ve been an improvement. Stress? That was more this week, feeling bashed by several people… Sleep worse than I thought? But no, I don’t think it was that much. Initial worsening after Treatment? (has happened 1 or 2x) - that would mean tomorrow and next week should be brilliant? 🥳 ☀ If not… ⛈ _(Oops, “overediting” stopped me for 9 hours!)_ Ache5/7 till the afternoon. 1h housework OK, but the limit, Ache5. Then my anus started worsening ↗ praps from fruit salad (bits of orange?) yesterday. ⏫ cost me 3 h of sleep first, neither 3 lotions, nor cold, nor heat helped, nor distraction/self-hypnosis etc. ▶ cold showering, out of desparation, after having to cry out 3x ✅ ‼ Rest of the night OK: Right knee, left elbow ▶ arnica cream (Traumeel), cold water, hot water bottle. Elbow ✅ Knee: Continuing. --- _[View the full topic](https://forum.livingwithfibro.org/t/jaycs-s-fibro-blog/13307)._