Hi Freedom/Jean -
Of course you belong here 
- and will get our prayers and support and all 
This isn’t any old condition anyway, it’s very close to fibro, so even apart from you, the condition should belong here too.
However I’ve found one “tiny” sub-forum somewhere else about it, which might be a help. Ben’s Friends doesn’t seem to have one yet. And very moving youtube-videos of stiff-persons… 
I see you’ve done a lot of homework already! I always find that helps me to realize where I am.
One thing I’m wondering is how many other indicators apart from the GAD-antibodies you have:
Neither GAD-antibodies nor their levels seem to be a safe one. As a neurologist he will have done an EMG, but has he also let more bloods be done and excluded the similar diagnoses?
I’m really with you here…
This is carrying on from here: JayCS’s Fibro Blog (see summary-thread ∑) - #332 by JayCS