# New to the Group/ my journey **URL:** \ **Category:** General\ **Created:** [January 14, 2024, 3:13pm UTC](https://forum.livingwithfibro.org/t/new-to-the-group-my-journey/14405 "2024-01-14T15:13:19Z")\ **Posts on this page:** 1\ **Showing post:** 16
**Author:** ![JayCS](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithfibro.org/jaycs/32/9520_2.png) [@JayCS](https://forum.livingwithfibro.org/u/JayCS)\ **Post date:** [January 25, 2024, 8:07am UTC](https://forum.livingwithfibro.org/t/new-to-the-group-my-journey/14405/16 "2024-01-25T08:07:46Z")
> [@Lizrod](#): > > I honestly thought Dr. Gillis was amazing, at first. Now, I am a wee bit skeptical. Yeah, he cleverly stylizes himself as being our saviour, the only doc who wants to help us with fibromyalgia by revealing a truth that no one else does, a bit like clickbait youtube videos that have the cure for fibro (or similar). But actually he knows little and has done little on fibromyalgia As opposed to Frederick Wolfe and the others who contributed to the development of the ACR criteria and re-checked it. > [@Lizrod](#): > > valuable information about the 2016 ACR criteria. Going to check it out They’ve also been used as the basis criteria of the 2022 UK guidelines, the only difference being that there they omit the bit that even if something else explains some or all of our fibro symptoms we can still have fibro _and_ something else. I personally think this is a sensible.way of diagnosing, cos it leads us to a greater variety of things to try out on it. > [@Lizrod](#): > > HAS ANYBODY HAD LUCK WITH ‘POST-BIOTICS’ AND THEIR PAIN?! I had to check what postbiotics are, according to [Harvard](https://www.health.harvard.edu/nutrition/what-are-postbiotics): “Healthy postbiotics include nutrients such as vitamins B and K, amino acids, and substances called antimicrobial peptides that help to slow down the growth of harmful bacteria. Other postbiotic substances called short-chain fatty acids help healthy bacteria flourish. You can increase the amount of useful postbiotics in your system by increasing your intake of fermented foods, such as kefir, tempeh, and kimchi. Focusing on getting enough of the foods that promote a mix of healthy gut bacteria may help improve your overall health.” In short, I take quite a few of these (B12, K2, 3 amino acids and 1 derivative) and GABA is the main postbiotic that helps me a lot in 10 areas of my fibro, as I obviously have low serotonin, I just didn’t know it was one. I can’t say any other of my other 40-30 supps help my fibro, esp. not my main problem, energy, only those for sleep. I’ve tried various enzymes (expensive!) with only incidental success. I shouldn’t increase fermented foods cos of their high histamine vs. my MCAS. Generally I’m skeptical that a whole category, like “postbiotics”, will help people with fibro, in my experience it’s necessary to figure out which ones exactly. That’s why my 30 supps at the moment are all individual and dose-adapted. I’d encourage anyone having tried the basics to look into GABA, with the help of Trudy Scott’s blog, starting with her amino acid “questionnaire” (checklist), more details [here](https://forum.livingwithfibro.org/t/amino-acids-for-low-serotonin-dopamine-etc/13763), however it’s a bit tricky. --- _[View the full topic](https://forum.livingwithfibro.org/t/new-to-the-group-my-journey/14405)._