# Savella, people on it more than 1 year

**URL:** <https://forum.livingwithfibro.org/t/savella-people-on-it-more-than-1-year/13644>\
**Category:** Symptoms & Treatments\
**Created:** [May 19, 2021, 5:29pm UTC](https://forum.livingwithfibro.org/t/savella-people-on-it-more-than-1-year/13644 "2021-05-19T17:29:27Z")\
**Posts on this page:** 1\
**Showing post:** 4

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**Author:** ![JayCS](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithfibro.org/jaycs/32/9520_2.png) [@JayCS](https://forum.livingwithfibro.org/u/JayCS)\
**Post date:** [May 21, 2021, 5:58am UTC](https://forum.livingwithfibro.org/t/savella-people-on-it-more-than-1-year/13644/4 "2021-05-21T05:58:58Z")

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Hi Starr 🙂 - your melatonin thread seems like yesterday, but I think that’s cos I’ve been trying it… 🙂 Short indirect answer to your question: Looking at what a lot of others have written here, I’d say: Yes, it does stop working for some.  
Pardon me for “analyzing” what you’ve written, that’s what I do with my blog/diary…: Based on what you’ve written in former posts I’d think it didn’t help you that long, since 2x25mg didn’t help and 2x50mg only a bit. That was about two months after starting: July 2020? And in Dec 2020 you already wrote that it is not helping any more, which you probably realized quite a time before. If that all fits together, it was less than half a year. And you even needed to increase from 100mg to 125 - Was it praps your adamant doc’s enthusiasm that made you think it worked 😉 So it doesn’t sound at all worth it to me. What you could try to repeat the effect is to stop it for a few months and then start afresh, going up quickly (inside of weeks) from 2x25 to 2x125mg in cycles…

Out of interest I’ve had a look at a third of the 345+ posts here on savella and found the following:  
_**Summary: For some it’s a miracle, even after 2… years (dee\_B, last seen 2014, Luna01, renewing profile 2015), which they feel everybody should take (them and Suzyb! ;-)), some have side effects but the body got used to most of them or the benefits outweigh them, and quite a lot stop it early or after a few months because of bad side effects.**_

Cutting the price (no idea if this is realistic): [I can't afford my Savella - #2 by Laura\_Weir](https://forum.livingwithfibro.org/t/i-cant-afford-my-savella/3218/2), [Anyone try "Milnacipran" marketed under the brand name of "Savella"? - #4 by Jackiem](https://forum.livingwithfibro.org/t/anyone-try-milnacipran-marketed-under-the-brand-name-of-savella/3952/4), [Just started taking Savella - #2 by Luna02](https://forum.livingwithfibro.org/t/just-started-taking-savella/11539/2), [https://forum.livingwithfibro.org/t/savella/5144/2:](https://forum.livingwithfibro.org/t/savella/5144/2:) The cost varies so much even in the same area that the best way to find out is to call several pharmacys.  
[https://forum.livingwithfibro.org/t/savella/5144/3:](https://forum.livingwithfibro.org/t/savella/5144/3:) My scrip usually cost me about $50 a month but it also depends on insurance because it was less with my other insurance I had before.  
[Savella? - #4 by ShanesGirl4Ever](https://forum.livingwithfibro.org/t/savella/5144/4) With my insurance it was under $10.

Not working any more (Rebecca, niteowlie): [What do you do when it gets really bad?](https://forum.livingwithfibro.org/t/what-do-you-do-when-it-gets-really-bad/158), [Sick & tired of being sick & tired - #2 by Rebecca](https://forum.livingwithfibro.org/t/sick-tired-of-being-sick-tired/164/2)  
[Savella - #5 by niteowlie](https://forum.livingwithfibro.org/t/savella/4006/5), [What pain medication do you take? - #24 by Rebecca](https://forum.livingwithfibro.org/t/what-pain-medication-do-you-take/392/24)

You yourself:  
["Cymbalta? Lyrica? Gabapentin? I'm confused - #19 by Starr1](https://forum.livingwithfibro.org/t/cymbalta-lyrica-gabapentin-im-confused/13392/19) Dec, where you also mention starting melatonin, [Nervous about returning to work full time - #3 by Starr1](https://forum.livingwithfibro.org/t/nervous-about-returning-to-work-full-time/12811/3) up from 2x25mg to 100mg, after it had not been working at 25mg and only a bit at 2x50mg.

Wonderful first, but stopped helping after 4 months (12mamabear): [Have you found Savella effective? - #10 by 12mamabear](https://forum.livingwithfibro.org/t/have-you-found-savella-effective/3376/10), Wonderful first, but stopped helping even on the highest dose paid for (12mamabear): [Have you found Savella effective? - #16 by Snooty](https://forum.livingwithfibro.org/t/have-you-found-savella-effective/3376/16)

For Starr (!) it was too expensive: [Cymbalta for fibro pain - #6 by Starr](https://forum.livingwithfibro.org/t/cymbalta-for-fibro-pain/5702/6)

Taken for a year, not working (Rebecca too…): [What do you do when it gets really bad? - #9 by Rebecca](https://forum.livingwithfibro.org/t/what-do-you-do-when-it-gets-really-bad/158/9)

Savella with Lyrica after 8 years stopped working [Just started taking Savella - #6 by witsend](https://forum.livingwithfibro.org/t/just-started-taking-savella/11539/6)

Increasing from 50 after not working any more: [Savella increase?](https://forum.livingwithfibro.org/t/savella-increase/5362)

[https://forum.livingwithfibro.org/t/savella/1095/2:](https://forum.livingwithfibro.org/t/savella/1095/2:) once the side effects went away so did the drugs effect in my body (MoMerrell)

100mg is the highest safe dose(?) [Savella? - #15 by Laura\_Weir](https://forum.livingwithfibro.org/t/savella/3146/15)

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