Hi Davey, thanks for such a long post - I’m with you!
On comparing transplant meds to FM I first of all empathize with how much you must’ve been thru!
Of course transplanting is a really big one, so I’m not surprised good meds aren’t possible (yet?)
Don’t misunderstand: I do talk with my docs about my trials (- however leave them far behind…)
I’ve had to - but also been blessed with the energy to - “fight” / work hard for a happy life, fibro is praps the last step making me “feel” it’s time to stop outside struggle & focus on self-care now.
I wish you all the power to hang on in, with eating, exercising, painkillers, transplant meds…
Well, fullest details about where I’m at on my daily blog, but I like the challenge of any questions, so in short: My long-acquired optimism is unbent. After a few small miracles and a lot of hard work (2x2h/wk since November) “under ACUpressure”, my successful trials with GABA since April are branching out to all amino acids. After a few days’ sfx from 2 overdoses I’m back to perhaps normalizing my sleep. I feel like my own supp test guinea pig, Alex in Wonderland. What keeps me very busy is the load of research, forum / “fibro-work” (avg. 6h/d at the moment) plus 2h/d of physio-type self-treatments, but it’s self-caring & resting & excited in the process. Whilst my daily table tennis, listening to & buying unusual new music on bandcamp, recording own tracks & talking with my wife takes me into different worlds. I love coming home to fibro ideas and self-care, but reckon once I’ve got the fullest handle on it possible today I can start some new otherwise exciting phase in which FM is only a part. Unless I find a good way to make myself more useful using what I’ve learnt. Probably better for me than trying to work more than 10h/wk again in my pretty stressful job.
All the best & thanks for promoting my long babbles to being “refreshing” - aimed at & hoped for, but self-doubt keeps me ever sceptical… 