Haven't been on here in awhile so this is an update. I've been doing really well. For the past month my pain levels have been between a 1 and a 5 and my fatigue has been between a 0 and 3. I think physical therapy is starting to catch up with me. I had a lot of issues that needed worked on (started pt back in October of last year) and think that just about everything is starting to get better. I'm still having problems with muscle spasms but my pain specialist has given me Flexeril and it's been working very well.
For those of you that haven't tried physical therapy, it has worked wonders for me. Also, I'm not on any pain meds. I've been allergic to everything. The only meds I take for Fibro now are Flexeril and Aderrall (brain fog).
Congrats! I’m thrilled to read that you’re doing well!! It’s awesome news!
I too was in PT but had to stop because it increased my flares and my migraines. Since stopping the PT I’ve actually been doing better also. So strange isn’t it?
Congratulations! It's great to hear of someone getting some serious improvement with their fibro.
I just posted some research a few days ago about how people with fibro have damaged mitochondria, the area in our cells that gives, takes and stores energy. The research said that physical activity helps to regrow the areas of mitochondria that explode from having their energy used up, but, of course, we know that it hurts to exercise! So we're making it harder for our mitochondria to regrow the used up energy. That's why when we've done a lot in a day and then suddenly feel like we've hit that brick wall where we cannot do another thing, we truly have hit the brick wall, with the mitochondria taking several days to regrow the used up energy. And that's why it takes us several days to feel better after hitting the brick wall.
Bevie, I tried PT on at least 4 different occasions and it never worked for me, only made me worse for days and days. So it's not for everyone, that is for sure!
Unfortunately, I'm not doing great anymore. I was unaware that Fibro can go into remission???? Does that make any sense? I also have PTSD and Myofascial Pain Syndrome. And my muscles have been tightening up to the point where it feels like my calves are cement blocks. I'm also starting to have problems with my hands again, but I've had numerous x-rays done and nothing is wrong with them. Why am I picking up new and strange symptoms?
Anyway, my pain specialist wants me to stop going to physical therapy and try hydro-therapy. So, we'll see if that can help some.
I am sorry to hear that you are flaring. My symptoms do that, sometimes everything feels improved and then …bang…I am flaring again. And many members have reported getting new symptoms as they go through life with this disease. I wonder if people lose some symptoms too? I really hope the hydra therapy works for you. Sending you big hugs!!!
I'd love to lose some of my symptoms...lol, all actually. I'm 39 and feel like I'm in my 70s. Fibro is starting to remind me of MS with the remission and then gaining new symptoms.
I hope the new therapy works for you. I was in remission for several years. I had days that were worst than others but over all I was much better. Let us no how the therapy works for you.