Hi all. Just wondering a few things about you:
Are you working? If yes, is it full-time or part-time? At-home or outside the house? Do you struggle with it?
If you’re not working, how long did you deal with the fibro/work issue before you realized it was too much? How long have you been out of work? How do you make ends meet?
Is there anyone who works from home that has found reputable, decent jobs online?
These are all questions I’ve been contemplating myself. I’m 29 and have been diagnosed for 2 1/2 years, but suffering much longer. It is extremely tough a lot of days to keep a full-time job, but I do it because, well, you know, bills. I’ve looked into working from home, but I’m not sure it would keep me afloat.
Thanks for your input!
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Hi Jenny,
I am working full-time at my office. My boss is very flexible though so if I am having an issue I can work from home. I am in HR - specifically recruiting. I do not think I am at the point of working differently (but that may be because I feel amazing today) Ask me when I am mid flare how I feel about it. As far as work from home, you should check into some inside sales roles, not selling over the phone but sales support, quoting, estimates etc. We have a few people at my company who do this from home. Usually a nice salary and benefits plus you would have the flexibility of being in PJs in bed if you needed. 
Thank you! That is something I will start to look into!
Hello Jenny,
This is an interesting topic, I hope lots reply as it would be good to know how people cope. My story is that I tried to continue working, I am a teacher, eventually had to face the fact I couldn’t work full-time. Then I did supply teaching on a part-time basis, managed that for a couple of years. Then I had to admit that was even too much! Luckily I had just hit 60, so was able to draw my teachers pension. That helped towards bills, but not enough. I than took in a lodger, that’s how I mange! I have thought about seasonal work… but that is as far as I have got, just a thought.
Take care, Anne
Hello Jenny,
I am currently working fulltime doing accounting and have been for 20 years. This past couple of years has been really tough on my body and I do not know how much longer I can continue to work. Sitting at a desk is the most difficult thing for me to be doing right now. I try to stand and work part of the day but that too gets tiring and I am hurting in other places after I stand a while. I am also so very tired from Fibro and not sleeping plus all the meds I am on that I can barely stay awake most days. It has really made for long days for me to work lately. I have to get up several times a day to walk around my building to try and stay awake. I have caught myself starting to nod off many times. I am looking into the possibility of disability. There are many prep things I need to do in order to even get close to trying to apply for it. I am starting my journey towards that now. Next July I turn 50 and I am trying to continue working at least until then. We will see how the winter goes in my cold state of VT. I never thought it would come to this at such a young age but it seems to be heading that way more and more every day. Luckily my husband and I have been very good savers and hopefully we will be all right if I stop working until (hopefully) I can get disability. My job is not one that can be done on a part time basis so until the time comes to leave I will need to stick it out full time. I am not sure if you are ready to look into disability but if you think you are; I definitely recommend looking into some websites that guide you through the process of what will be needed especially for those of us that have Fibromyalgia. It is a difficult things to get disability for but it is getting better from what I have read. My doctor is on board with me so that helps. I wish you luck in what ever you decide to do. Best wishes.
Hi Jenny, I work FT at a desk. I get up and move around now and then so I don’t get too stiff. When I am in too much pain, I use FMLA time. The reason I keep working is if I quit, in my strange mind I’ll feel like I lost the fight. I know it’s ridiculous, but that is how I get through each day - seeing it as I’m a warrior and I have to win against fibro.
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Hi Jenny, I worked as a nursing assistant for hospice full-time until 2 years ago. My line of work was too difficult for me to do anymore. I started doing home care part time while I go to school full-time. I am a widow with a 12 year old, so I have to do something. I am going back to school to start a career in something that isn’t so physical.
Hi Jenny,
Great topic, I feel the same way as you at the moment. I’m 27 and have suffered with severe pain and exhaustion for as long as I remember but was only diagnosed in March last year.
I currently work full time in a Customer Service call centre, I’m doing very well and have made a great impression in the company but the work drains me, most of the time I’m thinking about leaving for a gentler job but I feel guilty all the time so I haven’t made the jump.
Working from home is too much of a jump for me but what I’d really like is an office based job with the flexibility to work from home when I need to (without having to justify it since I would feel too guilty if I had to).
How is your search for reputable home work coming and how you today?
Siân xx