Hiya 
Yep, and why not? 
- just using real names is may be a problem… 
Well my bladder pain is strange: It comes before I pee, not during. So it’s fairly clear from the start that it’s not inflammatory, confirmed by repeated tests.
It started with my fibro-full flare, so I think it is a muscular problem. I also believe my type of fibro generally is muscular, on the surface anyway. With tendons, nerves involved. That GABA has decreased it, supports it & my fibro being muscular. GABA is a inhibitory neurotransmitter that decreases excitability & muscle tone. Before GABA it hurt 80% of the time, with a pain of 2-5; with GABA it hurts less often & less strong, I think 40% of the time, with a pain of 1-2.
When did yours start, was that point in time connected to other fibro-type-problems?
That’s how I’d decide if it is connected to the fibro. Apart from that I always double-check everything, even if I believe it is connected, because every little information demystifies a bit.
So that’s why I would and I do definitely ask a urologist to check everything s:he can.
I agree if the only thing anyone has for IC is meds - then the diagnosis isn’t helpful. But during a cystoscopy the docs can do something to improve the problems, take out Hunner’s lesions or ulcers and remove fissures of the mucous membranes. Also there are many foods which influence them - maybe the cause of your “cycles” - you’ve eaten something which has irritated your bladder, like - possibly - nightshades, citrus, meat-sorts, dairy - seems like anything which can irritate the gut or anything else can irritate the bladder too. https://www.ic-today.com/wp-content/uploads/Anti-Inflammatory-Food-Chart-for-Interstitial-Cystitis.pdf - This overview only shows possibilities to test according other things I’ve read. I have to avoid a lot of these anyway, cos of GI & cardiovascular reasons - more isn’t necessary, but not possible either.
OTOH I’m wondering why you are thinking about IC if you only have to get up 1-2x per night, and I & my urologist’ve decided it’s not that, altho I (before GABA) had to pee 5-8x per night… 
Makes me think yours is ‘only’ fibro. In my case it won’t be IC because the pain only comes then, not at any other time.
In my case if it cycles then more like hourly, not days or weeks. And it’s usually there, whilst in your case it seems it’s usually not. Might still be somewhat periodic tho…
Since I have to pee less frequently day & night since GABA, I’d even say it’s completely normal now, it does seem somehow connected to the pain. But the frequency is normal, even if I drink quite a bit in the evenings, whilst the pain is still there a bit.
GABA I came across because it is touted by med-intolerant fibromites, altho docs used to say it can’t help. So I tried it mainly for sleep & muscles, and in the process have realized it is helping much more than that, esp. stiffness and energy/fatigue. It helping my bladder too is just a gratefully received chance finding…
If you feel & think your muscles may be a part of your fibro, then I definitely would try it.
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) and together with 2x330mg glutamic acid and 2x290mg passionflower=passiflora. One study says combine it with 5-HTP.