Hello again Tmama,
Mmm I tend to agree with you, it does take its’ toll mentally. Makes it harder to cope as you get older and not so fit! Also it seems typical of Fibro that other things crop up, as time goes by, whether it is mimicking something, or it is a genuine new symptom. Which is why, in my opinion, if you do get a new symptom you need to insist it gets investigated thoroughly.
Take care, Anne
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I’m not sure about “worse,” but I have noticed a cycle. I also have RA, which is also cyclical and is progressive, so I’m not sure if the Fibro is progressing as well. I had a kidney infection in January, and now my “ok” is not as good as it was before that infection. I can no longer walk distances, and am now just getting off using a cane to go everywhere. I know that this can be caused by the RA, but it feels like more than my joints were affected by that illness. I need to talk to my new rheumatologist for confirmation, but I think that the Fibro also got worse.
Right now, I’m in a part of the cycle where having cloth against my skin makes me feel like I am encased in a bed of tiny nails. I, also, used to love the cold, and wind and rain, but now that’s a flare trigger for both RA and Fibro. I get worse in times of physical or emotional stress, sudden changes in weather or with other illnesses (such as colds).
I have read that Fibro is considered autoimmune/rheumatoid in nature, which is consistent with my experience over the last couple years. As such, the oddest symptoms do manifest, both physical and mental. Fortunately, they eventually get better with time (but never disappear entirely). I am hoping I get a pain management doctor that can help me level out my pain levels to they will be tolerable.