See if you can change doctors as soon as possible! Yes there are many ignorant and/or stubborn doctors in the world and I have been to too many of them! That is such a normal write-off of Fibromyalgia. And how we all have been misunderstood by the medical profession for too long! I get angry when I hear about the so-called family doctors who know nothing. You need to see a specialist to have a diagnosis made. It took almost a year to get my Fibro diagnosed but it was worth it.
The best kind of doctor is a Rhuematologist. They also cover Fibromyalgia and most other syndromes.
Well, thanks. Now I can say Iām ridding my body of toxins through my eyes! lol You made me smile. Thanks! I have to have cervical epidurals for my neck. That also affects my migraines. I realized a good day may be a day in bed, but itās a day without much pain and I can do for myself. Hugs Leesa.
yes My Doc is a woman, she is my Rhuemy :) and brilliant she is trying to help me but says these new issues have to firstly be brought to my primary care doc, although I'm not really happy with him his staff is amazing and his nurse loves me an cares and as i leave she gives me better insight then he does lol I wish there was a specialty doc for people suffering from fibromyalgia, there needs to be.
There is yet another condition that it occurs to me that I and many of us may have.It sounds like you may also the line"all trigger points are active" is what tells me that this may be the root cause of this bout.The condition Reflective Pain Syndrome RPS, is ussually the result of a major trauma,such as a broken bone.The bodies sympathetic nervous system turns on and doesn't turn back off. The sympathetic nerves are those you don't control and cause anxiety and for you to be "on". Because you are always "on" any new trauma are much harder on you than they would normally be. Example if you are about to be in a car wreck and you know it,your bodies symphathtic nerves come on and you tense up in expectation of the crash so you get hurt more than you would have if you had not know or been relaxed like the preveribable drunk who always walks away.Your ankle trauma's are also what makes me think this as everyone I know who was diagnosed with this RSP had injured or broken their ankle or wrist.I don't know the treatment or if there is one. Good luck and be gentle with yourself you deserve it.
Hello, I am new on this site and like reading a bout others fibro difficulties although sometimes I feel overwhelmed and canāt read alot. I am a woman in my 70ās who lives alone but until last September was my usual active self. The fibro slowly returned after a hiatus of 5 years. The first time was horrible as I was trying to work. After about a year or maybe more it gradually went away. I did get relief from savella. I am retired now but the lonliness and isolation I feel having to give up on some favorite activities is only made more intense because so few people know anything about it. I just started with a young doctor who seems knowledgable. She tested my blood and found there to be big deficits in DHEA, vitamin D and iron. She has me on supliments but so far no lrelief more than one or two days. I am wondering if the flare is being made worse by the cold weather. I live in Maryland. I am always more active where it is warm so I guess I have a 3 month wait for some relief. Also what is PSA? Some say this is the cause of their fibro. Thank all of you for being here. Hoping for some answers.
Hello mukkiepc, I donāt have fibromyalgia but I do have PsA so I thought Iād answer your last question as this is quite an old discussion and thereās a possibility the original posters wonāt reply. I hope we do hear from them though, so itās good youāve revived this thread!
PsA is psoriatic arthritis. Itās an inflammatory arthritis, a bit like rheumatoid arthritis but different! Quite a few folks with PsA also have fibro so clearly there is a complex link of some sort.
Itās good to hear youāve found a doctor who seems to have her thinking cap on. How long have you been on the supplements? I know the cold weather often worsens PsA symptoms and I have heard many times that it has the same effect on fibro patients. Happy Christmas to you ā¦ but also āHurry up Springā!
Hi Christina, Thanks for your reply and info. I am slowly learning to control my symptoms by pacing myself as Iām sure those with similar disorders must do. I have been on supliments for about a month so Iām not sure how much they are helping at this point. Have also gotten back on savella recently. I think the cold weather does affect me since my symptoms escalated during the late fall. The worse thing is having to cut back on activities like meeting with friends and walking and yoga. Since I live alone it is very hard to be in a flare. But I feel better if I am careful and am hopeful. Wish I could find a way to share expenses with someone in Florida for a time. Oh well. Thanks again and happy holidays to you also.