Hey SuzyB, I am on Savella, I hear you loud and clear. And yes it is a great relief for the fibro stuff. For me it cleared the fibro fog and I rarely ever have it now. I can only tolerate 25mg 3 times a day. 50mg all at once made me sick. But I wonder if sometimes if I should take it 4 times a day. It did get rid of the feeling like having stickers in my clothes for the most part. I still have fatigue but it is better than it was. I have RA so I know alot of my fatigue is from that also. But I do agree it is worth a try. Cymbalta made me so sick. I couldn't sleep but couldn't lift my head. It was 2 weeks of hell. Savella took time to increase the dose but yes, a very very good medicine. My Rheumatologist said it is one of the most important meds I am on and not to stop it because I would be very sorry.
that is beautiful and encouraging kitty. I HAVE been feeling a lot of guild without realizing it, and my thoughts are often negative. I shall try applying what you have said...and thank you!!! hugs, annie
Kitty, you reminded me of something I used to do, and will start again. Everyday I wrote a “happiness is” to myself. Today my happiness is that my daughter found out she got the solo of O Holy Night for this years Christmas concert. My heart is over flowing with joy for her. Thanks for reminding me.
Hugs, Scarlett
Hi Suzyb TY for your insight, I have not heard of Savella yet, this is pretty new to me and we are just addressing it's problems. We are going with Requip at the moment and I am taking steroids as of 2 nights ago for the other issues, things are beginning to settle after almost 2 weeks of pure hell so not sure if the flare is over, I'm getting more sleep the requip is starting to help or all of the above. But i am more than willing to talk to my doctor about this. Is it by I.V.? or by injection? mouth? I'm curious. Do or did uyou go through any side affects? did you notice soon after taking it all of the pain and fatigue go away? Sounds very reassuring and totally worth talking about TY SO MUCH!
OMG cymbalta was horrible, I reacted waking suddenly in the night and sitting up and staring…like I've seen a ghost it made me act like a nut. This is great to hear you have used Savella too and that it is helping. Side affects?
I swear we are like twins…. my hubby too is very supportive and does his best for me except the cleaning lol I just said this to him a few days ago, I HATE THIS IM SORRY YOU DID NOT THINK YOU'D BE A NURSE, CAREGIVER AND CAN'T GO ANYWHERE WHEN I'M LIKE THIS FOR WEEKS 9 YEARS AFTER MEETING ME, THIS WAS NOT IN MY PLANS AT THIS EARLY AGE TO HAVE TO DEAL WITH AND I'M SORRY YOU ARE HAVING TO DEAL WITH SO MUCH AS WELL. We practically said the same things. I added, I cannot be and live like this every single minute of every single day, I'd rather the good lord take me. I shouldn't have said that as that makes him have less hope and now I feel bad theres been so much hell in my life medically since the ankle fusion i just keep going down hill and gaining new problems and I can't believe it. I told him I will make it up to him when I feel better as I know how hard this has been on him too. You have been wonderful on here for me and I'm glad to have you to chat with and listen to as it gives me strength xo Hugs!!
Dear Cyn, We are happy you have found this site..I cannot tell you when the pain will let up as it is different for us all.
I am so sorry to hear you are having a rough time. Just know you can come and talk or chat anyway you like on inspire. There are many people here to support and comfort and who have been thru this very same thing. It helps me to not feel so all alone.
I especially find it better than talking with my hubby as he must live with it and I truly feel only people who experience this understand fully.
I wish you luck with your doc as mine just keeps telling me to take Tylenol which doesn't help much.. . If at all
Just woke up so had to respond to you. Hope everything gets lighter for you . Hugs Patti
I feel your pain. I am going through the same thing every day and I can’t seem to get relief. Just wanted to let you know your not alone.
So, I did ask my doctor about Savella and she said that Cymbalta and Savella are very similar; however, she prefers Cymbalta because it does have a mood component in it as well and also she has more experience with it. She's quite aware of my history of depression and wants to always keep that in mind with things, and I have to say, I can respect that. Plus, we are giving the increase in Lyrica and the Cymbalta a chance for a total of 6 weeks and if there is no change, she is referring me to a rheumatologist. She doesn't want to keep experimenting on my, she wants to officially say that she has really tried to help me, but now it's time for someone else to try. Again, I have to respect that.
Sounds like your doctor has a good plan and that is good. My primary care doctor is the one that prescribed the Savella and diagnosed Fibro and we gave it time but she is the one that said my pain and fatigue were just too much and referred me to a Rheumatologist who diagnosed the Rheumatoid Arthritis and other immune system issues. Hopefully your increase will work for you. A couple weeks back we increased one of my meds and I had the best weeks I've had in months. Unfortunately it didn't last so we are working to get that back.
how much celexa are you on?? I started 20mg. a year ago, but the effects are wearing off, and I am soooo depressed. I am in a new town, have no real family nearby and feel totally alone. thank you all for being here,,,it helps a lot....hugs, annie
Hi Leesa
Thank you so much for your response you have no idea how much it means to me especially when I have been really struggling with depression on and off. You know something, what I find the hardest since I was diagnosed almost 4yrs ago is doing everything alone. Not having someone there to lean on is extremely difficult no close friends ( disappeared when I got ill) and no family support.
But you know what as long as my daughter is happy that's all I want and strive for right now everything else has become secondary. I lost everything a good paying job, my home and furniture, even had to claim bankruptcy all due to the nasty illness called Fibromyalgia.
Oh well I guess its an opportunity to start a new life right.
Once again thank you for the compliment it made me feel good that I helped someone else.
Hugs
Strong mom ( what I tell myself lol)