How precious your kitty is. Hugs. Sorry for your frustration. I hope things get better for you, but you need to keep on these people until you get what you deserve. Look, I am sounding like my father telling you what you need to do-sorry. Just be at peace my friend.
Thanks Sage for your comments. Here's a hug thrown at ya...thank God for this website, a platform to let others know how we are coping with this illness, and other illnesses too.
Armando,
Excellent info on helping members to know where they stand and how they must be in criteria's.
Best wishes Terri
I had just filed my claim about 2 weeks before their guidelines came out. I started out with a lawyer to hopefully help speed the process but I've also taken as much into my own hands as possible. I sent them extra medical records from the years of trying to get a diagnosis and have called my caseworker several times to add information that I wanted them to know. Believe me, I fit all the criteria and then some. I'm in Alabama so I'll keep you informed of the progress. I'm hoping and praying we all have good luck and rapid response to our claims. We definitely deserve it!
my hat is tipd to you on raising a son with his own debilitaing diseases. I have several chronic diseases my self and this fibro is awful! I workd full time till 89 yrs ago and then I had to stop, tried to work again a few yrs ago I lasted 2 wks! had to quit I was in bed and couldnt move. now Im feeling guilt for not being able to and I have a claim for ssi and its been a yr and I havnt heard anything back, Im going to talk to somebody about this this wk I hope. I know its not much but anything is helpful. rely on the creator everyday to get you through. we need him. I too suffer form bipolar and it makes it that much more complicated. hang in there. you'l get support on here. have a good nite. ~~gigi
gigi, you can’t be 90 some years old, can you? No, you must be fogging some hon. I get you. Hang in there. Hugs.
Thank you so very much for this info, I am passing it on to my disability lawyers as I have been denied 3 times .
Hello,
I am new to the forum. I've had Fibro for 3 yrs. The last 6-8 months it has gotten worse. My hip and lower back pain is the most difficult. I just applied for disability but it appears from the research I have done I don't have a chance in hell getting it. Just the forms alone overwhelmed me. I contacted a disibility attorney and have a consultation with him tomorrow. When we spoke on the phone he told me his wife also suffers with Fibro... would you guys think that is shady? Part of me thought, oh wonderful... he will understand. But then upon thinking I thought,,, is this just a slimy lawyer? I read that they can get 25% of you entitlement if they win for you. Is that for life?? After reading some of the others posts I don't know if I am in as bad of shape as some of the others are. I sleep ok, but with the help of a xanax but if I don't take one I wake up feeling like I just came out of a coma and am exhausted. My doctor hasn't been much help. I think he is tired of me complaining. All I do is cry when I go to see him. I've tried cymbalta, lyrica, nuerotin (SP?), and he recently perscriped Pamelor (which I just stopped taking because it was making me even more depressed). When I told my doctor at the last visit that I had applied for disability he replied, "Why'd you wait so long"? so I guess he must feel it is something that is possible. I presently rely on help from my very kind ex husband for financial help and work on my computer designing logos for online logo contests. Has anyone actually won a disability case? Am I wasting my time? Is the lawyer on the up and up? Would there be any reason for him to not be on the up and up? My family doesn't understand, as I have read others have the same problem. My one sister is in another state and is the only one who supports me when I need a shoulder. My other sister just thinks I am lazy and need to get a job. My kids tell me I need to exercise. UGH. I've tried riding a bike, walking... it seems to make it worse. I went to the emergency room on Labor Day because I had abdominal tenderness along with my usual hip, lower back, knee pain and they did a cat scan and blood work. Turns out nothing was going on so it must have been from the hip pain affecting my abdominal tenderness? They gave me a iv with duladid and boy did that do the trick! The doctor was even kind enough to give me one extra shot of it prior to being discharged. I took a nice walk around the block that evening and appreciated it more than ever because I could do it and not feel pain. Should I expect this pain to get worse as time goes on? I used to get a few days here and there where I was almost pain free, but those days seem to be gone. I have no health insurance and live alone. My kids are away at college. What will become of me? I am behind on my rent and am expecting to get a call any day now, with questions about where the rent is and if I am continuing my lease. The thought of moving seem impossible. I couldn't imagine having to pack boxes and moving things in my condition let alone where I would go. I am sure all the stress of these things are aggravating my condition. Sorry for the lengthy post but it is just nice to be in company with those who understand.
Kathy
Hi Kathy, You do need to apply and if your not comfortable with the attn. call Allsup, Ive seen several people on here have used them and won and I am in the process with them now. They have filled all my paper work out and have done all the leg work, all I have had to do is 2 phone conferences and some signatures. If you want the number Ill give it to you. Best of luck to you, Gentle hugs coming your way, Robin
most lawyers get 25% of your retro active check, that is normal. it is usually $6000 or 25% of retro check which ever is greater. I have been denied 3 times, it is not easy and you can not work and try to apply or they wont believe u. and the lawyers do not get 25% for life. Just the retroactive check from the day u were considered disabled and filed. It is a very long tedious process but dont give up. I have 0 income right now and $149/mon in food stamps that is it. Right now I have a free place to stay but it is with an abusive ex. Believe the system could care less what happens to you. I have no kids, no close family and no close friends to help. So I am doing this alone. You will have good days and really bad days as with everything it will get worse with age, esp. with arthritis too.
Good luck and I am sick of everyone saying exercise and work too
Hi Robin,
Thanks so much Robin. I looked them up and wrote the number down. Guess I am always skeptical when it comes to attorneys. After doing some research I see that the standard percentage is set by SS so I wasn't sure if he was just setting his own percentage amount or what. I'll meet with him tomorrow and see how I feel about him. I would have done this long ago had I known I didn't have to pay them unless I won the claim. Never too late I guess.
Thanks Wendy-Anne. I am sorry for you. I also live alone and am on food assistance. I bring in some income by entering logo design contests online but it is sporadic. I have squeaked by some months and other months I rely on my ex husband for help. I have to bring some money in. It this going to hurt my case? Probably so huh?
The grocery store trip always beats me up. I dread it.Your attorney gets a one time fee of 25% or $5000 whichever is greater. 25% of $20,000 is $5000 so your income doesn’t have to be that high for them to get $5000 KVH. I got my disability before I was diagnosed with fibro. I used a local attorney specalizing in disability claims. I got her after I was turned down. It took 18 months.
My daddy did that exercise crap until I had him read that Letter to Normals. It helped my boyfriend understand the disease also.
Like today I went to the dr then with my boyfriend to pick up his '57. I came in, put on a gown, and just woke up. I am still tired and shaky. I need to eat. I will probably take a pain pill.
I wish you the best. There are a lot of resources out there and in the phone book. Welcome to our group.
Letter to Normals??? Where do I find this?
Try this link, Wendy.
Is this what you were looking for?
Thanks Armando. I could not remember where I got it. I ran it off somewhere on the Internet.
Hi this is for the person who is having surgery on october2 im also going for preop on october 2.Are you going for endo because i have the same thing if you want to talk im here.Please let me knowif you dont thats fine to i wish you luck sherri