2021-09-30, Thursday - a “different” day, but altogether quite good, maybe serrapeptase does work - on an empty stomach?
Triggers & resulting Symptoms
SLEEP: 8h39, up 4x (28'(+22')) ➔ Feeling 90% well, Ache 1 of 7 ✅
FCS p1 21:45-
23:15 8’ 90%/1 p3-4!! st1 drink fw5’ bladder pain ⇰ too much GABA!(?), so only 1x289mg passiflora & instead: "400"mg tryptophan
1:50 7’ 80%/1 p1 !st3 drink fw4’ 3rd 1x289 passiflora NO HEARTBURN
4:07 8’ 80%/1 p1 s1 drink fw5’ 4th passiflora. drama dream, starting with a church service, then went outdoor, a giant folk choir was suddenly there, then got bigger and bigger, rain poured, still to start, it became a matter of rich families, then secret documents turned up, a Henrike who had cancer or similar wanted to pledge her belongings to me… Only after a side turn due to a big fire somewhere else did the dream come to an end. Dry mouth → gel
5:22 27’ 6 90%/1 !p0 st1 drink fw3’ SAMe, serrapeptase, zinc (empty tummy!) (stool, nausea?) Dry mouth → drink lots.
7:14 90%/1 !p0 st1 drink fw3’ no GI!
-End
Sum: 2h15+7h14-(8+7+8+5(+22)=)50’=9h29-50’=8h39, up 4x (28’+22’)
ACTIVITIES➔ACHE: Music production, 2.5h, standing first ➔ 70-80%/2, but commuting & work, despite quite a bit of talking, praps cos of 2nd serrapeptase, feels like it at least) ➔ 90%/1, sleep lab psychiatrist was even more of a strain than usual, as he was less open, so I had to force my experiences & questions in more ➔ 70%/2, table tennis after was pretty easy ➔ 80%/?2, wish I'd tried a 3rd serrapeptase on an empty stomach (maybe that's the difference), then eating/resting ➔ ?85%/?2, listening to a 65' live talk and 10' questions, asking one myself ➔ 85%/2
Ache = also Exhaustion/Tired 
➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔
ACTIONS➔ PAINS: Lying ✅, standing 🧐, loins ✅✅ (yippee!), sitting: normal chair in the talk, without getting up, but turning my legs from one side to the other every 4-10' (rewarding myself by counting that as 'self-treatment'; yoga before and twist-stretching after) ✅, arms up ✅, neck stiffness 90° ✅, stiffness after poses ✅🧐, , fast cycling ✅, bladder 4xp1-2 + 1x3-4!, so increasing GABA at daytime is NOT seeming to help 🧐, GI good, despite same supps ✅✅, talking ✅, mask-talking ✅
➔
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.
Treatments
SELF-PHYSIO: 2h17 (1h20 = continually twist-stretching while sitting) ✅, fibro-work (fw) 37'
Timing, AuTr 5’, hunchback-pillow 5’, cold shower 1x(10’), palpate 1’, belly 3’, back 7’, neck 1+ 10’, neck 2 3’, marionette-hang 8’, yoga 5’, twist-stretch 1h20,
loins 5’, gums 2x30’’, thumbnails 10x30’’, V ‘, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’
fw: Night: 17. +10+10+10*
THERAPIES: Sleep lab/rehab psychiatrist, mostly praps of general interest, so I'm reporting it all out clear below. In these clickable "details" only about it being for the last time! :-( - and alternatives
His successor seemed pretty good to him, next appt January 6th, but I could contact him via kvmv and praps do zoom appts with him.
Acupressure / Therapy, Doc/Diagnoses ? Acupressure 2h Tues & 2h Fri:
Psychiatrist appointment: He didn’t have as much time this time, stressful, but I still landed most of my story and questions, and he told me about placebos & confirmed that my slow progression with GABA etc. for over 4 months can’t be placebo, and is way to go if it’s not too stressful for me…
Talked about using placebo fx, that they even work if you do it to yourself, even if you know it is one - which I knew; but also that migraine placebos work for about 1-2 months, whilst psychiatrical ones, like those pretending to be anti-depressants, work for about 1-2 weeks (about 30% improvement, compared to about 50% with real anti-despressants), so if something works longer, then it can no longer be counted as placebo.
We talked a bit about my use of theanine, passiflora, that the theories of medicine & pharmacy can only go so far and the empirical way I am going about it it good, if I am doing it as a hobby and not getting stressed by the amount of time I am doing it - which is the case.
Sleeping position: that I can now lie on my belly well means improved muscles, 4x sleep breaks per night and waking up for 10’ would be normal. But every day is different, a lot of things change, that makes it difficult, hard to, and it’s good how I’m making progress,
Didn’t manage to ask about melatonin. Didn’t really delve into using serrapeptase, however that if it sometimes works that can have many reasons.
Tough for working like I am is the confirmation bias that I have to think up hypotheses about what’s working how and we tend to believe these self thought up things more than other things, altho they may be misleading us.
Supps to KEEP UP amounts, roughly, but NEW: spacing everything out/reducing: Evenings: selene, rosewort/Mg carbonate/B1, SLEEP: 4x passiflora (spaced out), tryptophan (spaced), theanine (spaced) ✅ WAKE/FOG: +8h theanine + GABA ✅ & PAIN (ACHE; stiffness?): mg malate(?) serrapeptase? glutamine? ✅: 8:00 SAMe & zinc (on empty stomach, 30' before)
For heartburn: Almonds first. (Bentonite, medicinal clay, mumijo?).
Supps TAKEN TODAY:
/21:10 selene, rosewort/magnesium carbonate/B1 at meal,
/21:15 1st 1x289 passiflora + 600mg GABA + "500"mg tryptophan + 300 theanine
/23:15 2nd 1x289mg passiflora & 2nd "400"mg tryptophan
Nope (no, cos of bladder pain!?: 600mg GABA + 400mg L-glutamine)
/1:50 3rd 1x289 passiflora
/4:10 1x289 passiflora
/5:25 SAMe, serrapeptase, zinc (empty tummy!) (stool, nausea?)
/?7:30 !600 GABA + !500mg theanine,
/9:30 !3x400 malate
/10:40 serrapeptase: no GI after either, felt good 90%/1 soon after!
Nope: tryptophan at night - ?15:40 GABA + Glutamine
Supps UP NEXT: +STIFFNESS/Bladder: Repeat adding GABA & glutamine again - or the opposite, less? (glutamine overdose July 25th: stiffness same?) 🧐 ACHE: Carry on with serrapeptase, and order. 🧐 +WAKE/FOG/FATIGUE: 1)&2) Ordered Ribose & NADH/+ Sat 25th, shd be coming today, 29th ('2 days'); still not there 30th. 3) ginkgo? 4) ALC (I have LC: orally or injected?) 6) glycine. +SLEEP: More tryptophan? Less theanine? If melatonin (short half life) praps similarly spaced out in self-made capsules. Try NAC? (med). A) Schüssler B) SUPPS C) MEDS Info:
A Homeopathy: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
B SUPPS: Amino acids, Enzymes, Minerals, Vitamins
Amino acids: +B6 (as P5P), +Zn, +lithium orotate, more glutamine?, SAMe, glycine
1+2 Balancing GABA & glutamine: 1 Healthfully B6, 2 Perkins: Lithium orotate, Zn, 3 Jockers strange doses!? 4 Levy: vitamin B6, as P-5'-P?
1.1 Healthfully: tyrosine, tryptophan, B6, high complex carb early, low protein late"]
1.2 Zn Cynthia Perkins:: Low (<50mg) carb paleo, high animal protein; (Mg) Zn <40mg, lithium orotate 125-200mg, glycine often excitatory; praps, or not: taurine, vit. B6, SAMe, NAC, theanine"]
Glutamine/dopamine for stiffness/gait?!?: Low Dopamine in Fibromyalgia and CFS
SAMe: 400-800mg in the mornings, as stimulating, not much research.
SAMe - #2 by Anne (Sheila, links: Sahelian & webmd, now plus gapa)"]
NADH/NAD+ B3-coenzyme for energy & post exertional malaise.
Acetyl L-Carnitine (ALC)?: Drink as liquid… Or ask sleep lab psychiatrist to inject it? ALC’s helping Jemima feel alert, dose: 2x750mg, for no sfx keep under 3000. Needs to be Acetyl for the brain she sez. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
D-Ribose: muscle fatigue, ATP; GI-sfx, so keep under 500mg; little evidence.
Zinc again (bloods are in the middle)? Watch out for the sfx!
Magnesium - glycinate yes or no? malate? “60mg” carbonate in the roseroot?
Increase rose root from 1x200mg to 2 or 3 for serotonin etc. as well as blood pressure (normal now)?
Vitamin B12 injections again?
Vitamin B6 as P5P?
Vitamin C ultra-high dose 7,5g, to be put in 250ml NaCl solution & injected - if I can ever find someone to inject it.
C MEDS repeat?: NAC, levodopa, blood fat meds, blood pressure
NAC sleep -2400mg, better or worse (med)
(N-acetylcysteine) as I wrote here (better liposomal) as glutamate antagonist and to help sleep is mentioned on the last link (CFS/ME, with fibromites there too) suggest 1800 or 2400 mg, whilst more causes - again - diarrhea. The last person on that page also says “I elevated my glutamate / GABA levels with excess taurine” and very importantly “Once elevated Glutamate seems to be slow to rebalance” - got to watch that!
levodopa: repeat 50mg (100mg seemed to increase LBU),
Ezetimibe+atorvastatin if blood fats don’t stay down - smaller dose if at all?
Candesartan if blood pressure doesn’t stay down.
D) RELAX: A bit more Yoga Nidra on youtube.
E) MERIDIANS: real Chinese-trained acupuncture? Pardon Our Interruption
F) DOC Fibro-doc 200km from here?
G) REPEAT? Again in specks/diluted: Melatonin, 10% CBD oil, 5-HTP, ashwagandha.
Development:
Lessons in self-care #79 Maybe it doesn’t matter getting a new rehab psychiatrist, new game.
Reasons to be cheerful #82 Altogether a successful day!
- Highlights week 20th to 26th.
- My “How to symptom track & trigger hunt”
- Next up: Finishing off the treatment list & spreading that.
Abbreviations & explanations
Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.
Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments
My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.
TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD
’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.
SLEEP: slp, w, lbu/LBU, RLS, p, i
slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.
ACTIVITIES: TT, e.g. "5:1"
TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.
SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.
SELF-TREATMENTS (about everything else...)
The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “
” to show what I’m doing to alleviate something and mark it off in the details “/” whether it works well enough for a time or doesn’t’, e.g. Ache cold fast shower “”
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
“V” for loins = lie on back, legs up and let legs fall to sides;
twist-stretching more for the loins
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