JayCS’s Fibro Blog

2021-10-18, Monday - again great sleep, only 17’, 4 breaks - but GABA overdose!

Just 400mg (I take 3x600mg without problems): focal seizures and incredible bladder pain and frequency, now I remember how it used to be!
The added GABA wasn’t necessary, I’d just seen a certain supp-combi and thought I’d try to repeat it one more time at night, reduced: but it doesn’t work like that, that’s comfirmed!

Triggers & resulting Symptoms

SLEEP: 8h17, up 4x (17') ➔ Feeling 90% well, Ache 1 of 7 ✅. Using an expensive minty essential oil mixture 'breathe well' for my stuffy nostril worked without acidity sfx!

No fw!
FCS p0 23:50-
1:32 3’ 90%/1 p0 st1 drink fw1’
3:40 8’ 90%/1 p1 st3 drink8 fw1’ Some looser stool. GABA#3 theanine#2 PF#4 SRP#2
5:49 3’ 90%/1 p0 st1 drink fw1’ Zn, SRP#3 Intense dream: adoption of African boy (been on daily show with thin white older woman)
7:00 3’ 90%/1 p0 st1 drink8 fw1’ minty oils for right nostril, traumeel on right & left elbow, Schüssler too.
-8:24
Sum: 10+8h24-(3+8+3+3=)=8h34-17 = 8h17, up 4x (17’)

ACTIVITIES ➔ ACHE: 2h of music production without even taking any cps. ➔ 90%/1 ✅, housework, more music ➔ 90%/1 ✅, siting in the (cold) kitchen with my wife "in the sun" has made me start getting cold and aching ➔ 80%/2, so trying supps - helped.

Ache = also Exhaustion/Tired :white_check_mark: :x: :face_with_monocle: ➔ ?90%/1
Cycle➔ exhaustion, also as action➔pains;
TT = Table-Tennis➔ easy or effortless or strained or tough?
talk/meetings here (and actions➔pains?)
Grandchild➔
Work/Mask-talking➔
Socializing/Talking➔

ACTIONS ➔ PAINS: 5:50 right Achilles a bit, 7:00 elbows a bit, bladder 5xp6! and high frequency ❌❌, due to GABA overdose

:white_check_mark: :x: :face_with_monocle:
Lying :white_check_mark::x::face_with_monocle:, standing :white_check_mark::x::face_with_monocle:, loins :white_check_mark::x::face_with_monocle:, sitting :white_check_mark::x::face_with_monocle:, arms up :white_check_mark::x::face_with_monocle:, neck stiffness 90° :white_check_mark::x::face_with_monocle:, stiffness after poses :white_check_mark::x::face_with_monocle:, walking :white_check_mark::x::face_with_monocle:, fast cycling :white_check_mark::x::face_with_monocle:, bladder 0xp1-2 :white_check_mark::x::face_with_monocle:, GI :white_check_mark::x::face_with_monocle:, talking :white_check_mark::x::face_with_monocle:, mask-talking :white_check_mark::x::face_with_monocle:"
Lie ➔ LBU = lower back unrest, hunchback, Neck, thighs, elbows, itch, cold/hot, nose stuffy
Stand ➔ Legs, back
Knees up ➔ right loin
Arms up ➔ pain
Sit ➔ Backside, lower back
Pose ➔ stiffness (Stiffness after holding a posture): Time 0-60’’, pain amount if faster.
Walk ➔ Elbows, feet, right knee
Cycle ➔ Feet, knees, backside, elbows, hands, neck
Drink ➔ Pee frequency, pain before peeing (p0-6).
Eat ➔ Esophagus block, stomach, gut, rectum, stool (IBSD?). GI for short
Talk➔Jaw (& Ache)
Mask-talk ➔ not sure how to describe it, just plain yucky.

Treatments

Supps TAKEN TODAY: sleep ✅, starting PF early, plus a 3rd GABA (instead of mumijo and rosewort) was also good. Yesterday I had longer sleep stints, but also one longer break. ✅ Still no Ribose; still no GI... ✅. Meal end now: 13:40... (mumijo & SRP), 17:20 a focal seizure, and before that more bladder pain means GABA was overdosed tonight! Trying glutamine as antidote stopped further seizure-ishness, but once my bladder's set off it takes many hours to calm down again.

/19:55 mumijo. P5P. 1st 1x289 passiflora = PF, selene, 1x rosewort/Mg carbonate/B1 at meal.
/22:45 1st 600mg GABA 500mg glutamine 2nd passiflora
/01:32 2nd 600mg GABA, 1st !100mg theanine, 3rd passiflora, 1st serrapeptase = SRP (+2h/)
/03:40 3rd 400mg GABA, 2nd 100mg theanine, 4th passiflora, 2nd SRP,
/05:50 zinc, 3rd SRP.
/10:35 600 GABA !100mg theanine, 1 Mg glycinate. NAC.
/16:40 NAC, Mg glycinate, SRP.
/17:20 glutamine and theanine as antidote to the GABA.
/19:45 Mg malate, NAC, NADH, as well as SRP before eating and to help calm my muscles down.
1st NADH :white_check_mark::face_with_monocle:
?15:00 2nd NADH. :white_check_mark::face_with_monocle:
?16:20 NAC, malate, glycinate, SRP :white_check_mark:.
?19:40 NAC, SRP
Daytime: NAC :white_check_mark:, 3x1 malate :white_check_mark:, 3x1 glycinate :white_check_mark:, ? SRP (2h after meals) :white_check_mark:. tea tree oil
Leave out Ribose to watch if there is no GI :face_with_monocle: :white_check_mark:.

Supps to KEEP UP (3): passiflora, GABA, theanine ✅, to WATCH (10): Mumijo 2-3h from other meds, and that and SRP 2-3h after meals, both for inflammation (tooth!!) So I need to note/remember meal ends now. 🧐. Daytime: Mg malate & glycinate (< 6, GI), NAC, P5P, NADH, ribose only in emergencies. ✅🧐, ↗2-3x rose root, Sfx?: Ribose (GI!?!) Feverishness? 🧐. Glutamine? START/CHANGE: ALC ✅/❌/🧐

SLEEP:
:white_check_mark: Passiflora 4x289mg: drowsier, but not too much, deeper, shorter breaks. 18th: Starting earlier.
:white_check_mark: GABA 2x600mg: deeper, 10 areas in daytime
:white_check_mark: theanine 1x300 relaxed, not too long
:white_check_mark::face_with_monocle: glutamine 1x500mg: GABA antagonist. But maybe more day than night?
:face_with_monocle: P5P (serotonin/GABA)
(:face_with_monocle: SRP serrapeptase 2x10.000IU before sleep (but 2h after last meal!))
:x::face_with_monocle: melatonin 1mcg at 22, 1mcg at 2 - but not nice feeling, praps.
INFLAMMATION:
:face_with_monocle: 5:30 serrapeptase 2x10.000IU (more?)
:face_with_monocle: zinc
:white_check_mark: tea tree oil on gums
:face_with_monocle: rose root 20:00 2-3x200mg (serotonin & bp)
:face_with_monocle: mumijo (shihalit) 20:00: anti-infl., pain & GI: Mumijo attenuates chemically induced inflammatory pain in mice - PubMed (2015), Anti-ulcer activity: Ulcer healing activity of Mumijo aqueous extract against acetic acid induced gastric ulcer in rats - PubMed (2015)
German link: https://www.zentrum-der-gesundheit.de/ernaehrung/nahrungsergaenzung/heilpflanzen/mumijo: When ill, 2-3x200-300mg/d 30’ before eating for 20-30d. Then 10d without, then another 20-30d.
:x: 2h after meals SAMe :arrow_lower_right:0x100mg (max. !): pain, stiffness, sfx: GI, bladder!, dry mouth!, sleep!, serotonin-seizures! SAMe/SAM-e - #2 by Anne
WAKE/FOG:
:white_check_mark: 8:00 GABA & theanine
:face_with_monocle: Mg glycinate 2x400
:face_with_monocle: NAC
:face_with_monocle: Mg malate :arrow_lower_right:0-1 for the time being :face_with_monocle: , cos I’m running short. (2x500)
ACHE:
:white_check_mark::face_with_monocle: Serrapeptase up to 8x or more?
ENERGY/FATIGUE:
:white_check_mark::face_with_monocle: Ribose up to 6x2.5g muscle fatigue, ATP; GI-sfx, <500mg per serving?! No sugar allowed - #7 by Lynne etc.
:face_with_monocle: NAC -2400mg: NAC = N-acetylcysteine fatigue, anti-infl.
:white_check_mark::face_with_monocle: NADH/NAD+: Serrapeptase & NADH/NAD+ - enzymes - #4 by JayCS B3-coenzyme for energy (ATP) & post exertional malaise: 2.5mg, watch out for overstimulation & jitteriness.
:white_check_mark:/:x:/:face_with_monocle: Acetyl L-Carnitine (ALC)?: LC first? A for Alert brain, dose: 2x750mg, for no sfx keep under 3000. Question about kinds of pain | Page 2 | Fibromyalgia Forum.
:white_check_mark:/:x:/:face_with_monocle: glycine? Alertness
STIFFNESS:
Glutamine?: Low Dopamine in Fibromyalgia and CFS
NOSTRILS CLOTTED at night
:white_check_mark: tea tree oil (lavender not enough)
EVERYTHING:
:white_check_mark: Vitamin B12: injections again?
:white_check_mark:/:x:/:face_with_monocle: Schüssler 2, 4, & 7 (need 3-6 months sez my acupressurist).
ACID:
:face_with_monocle: Mumijo isn’t working: Still same heartburn, plus hungriness at 5/6.
Medicinal clay never stopped my gastric acidity in my twens, but is bentonite - or am I - different now? (= 95% Montmorillonite; zeolithe is OK too. IBSD & -C; not together with other supps… (ZdG))

SELF-PHYSIO: 46' ✅

:white_check_mark: Timing, AuTr 5’, hunchback-pillow 20’, cold shower (10’), palpate 1’, belly 3’, back 7’,
:x: neck 1+ 9’, neck 2 10’, twist-stretch 10’, loins 5’, yoga 5’, gums 2x30’’, V ‘, marionette-hang 1’, mirror 2’, shaking dance 1’, breath-hold 11’, RR x2’, HWB 3’, workout 7’, jolt-jump 1’

THERAPIES:

Acupressure / Therapy, Doc/Diagnoses ? :white_check_mark: :x: :face_with_monocle: Acupressure 2h Tues & 2h Fri:

Development:

I shd praps write a “my successes, my fails” as part of my reference section.

To put my supp-development short I just wrote someone “thanks to the new powders (aside of the previous neurotransmitters/amino acids and passiflower now a cough expectorant (amino acid-derivate), a sugar - however with sfx - and a vitamin B3-variant)”… And:
I’ve actually still got Mucuna on my list (the one-after-last, which is ALC ;-)…): Ayurvedic, good for neurological disorders and arthritis, so why not… I fear I’ll be getting bored in a few weeks, Dr. JayCyll at the end of his list, and no more Mr. Hyde sfx from (having to) overdose… more stability, less suprises (?!) yawn ;->

Lessons in self-care #96 Oh well, back down with the GABA tonight.
Reasons to be cheerful #99 Wonderful how clearly the overdose shows how well GABA usually works.

Abbreviations & explanations

Entries start with night meds & sleep, before triggers/symptoms & treatments, because the “night before” is vital. So Fri-day starts with Thursday night, the night before Friday.

Pain "7" = crying (/out) point; my 1 is others 2-3, and due to pacing/treatments

My wife says my 7 is other people’s 12. 1 is probably 2-3. Due to pacing, keeping work down to 25% (12h/wk) and all my treatments (acupressure, GABA) and physio self-treatments I manage to keep getting my pains & Ache down quickly. 3 usually means the Ache, not pains; these I address individually, often automatically and on the fly now, e.g. twist-stretching everything or something specific after getting up.

TIME DATA, e.g. ' = mins, h = hours, 18:10:40', date YYYY-MM-DD

’ = mins = minutes, ‘’ = secs = seconds, h is hours as time length, 3h is 3 hours long, 3:00 is 3am, 15:00 is 3pm. 18:10:40’ means 40 minutes, starting at 18:10, = 10 minutes past 6pm up to 10 to 7pm. The date is the logical digital standard: YYYY-MM-DD.

SLEEP: slp, w, lbu/LBU, RLS, p, i

slp = sleep; reasons for getting up: w = (a)wake, lbu/LBU: lower back unrest (‘RLS’?), p: pee, p2: pain 2 of 7 before peeing, i: ideas.

ACTIVITIES: TT, e.g. "5:1"

TT = table tennis, 5:1 = score, usually showing how well I’m feeling: energy, relaxedness & alertness if the first number is much higher than the second.

SUPPS: supplements (as opposed to herbs & meds). Fx: Effects. Sfx: Side effects.

SELF-TREATMENTS (about everything else...)

The self-treatments listed are only things that I’m spotlighting & rewarding myself for at the mo by counting them; much of what I do at night is self-treatment to get back to sleep or alleviate (1-2h/d), certain regular movements at daytime, like twist-stretching (30’), writing this blog is self-treatment (30’-60’/d), and the further fibro-work is an indirect form.
Self treatments are usually preventative or always have the same positive effect (e.g. cold showering improves Ache and sleep) - at least I do them for that - and I use “:arrow_forward:” to show what I’m doing to alleviate something and mark it off in the details “:white_check_mark:/:x:” whether it works well enough for a time or doesn’t’, e.g. Ache :arrow_forward: cold fast shower “:white_check_mark:
fw = fibro-work, meaning reading and writing this blog, the reference base, on 4 fibro-forums and researching fibro-stuff on the web.
AuTr = Autogenic Training (usually to actively get - back - to sleep, so counting it as sleep and AuTr…),
FAT Flash/fast autogenic training: immediate image of dreamy floating in space or liquid from jaw to legs.
cold/FCS = Flash Cold Shower (20’’-60’’) , I count it as 10’ tho. At night with ear plugs & all lights off.
breath-hold/WHM-B-H = Wim Hof Method Breath-Holding,
Neck 1 is stretching top right to bottom left, vice versa & sky/ground, neck “1+” is stretching far further diagonally downwards, neck 2 is pressing my head against my hand “without moving”, left right and front.
loins = loins/groin = stretching the ligaments there.
ex = exercises
HWB = Hot water bottle,
RR = bp = blood pressure (Riva Rocci), plus pulse. Used to be normal, plus sometimes white coat syndrome, went up since fibro, seems to have gone down again enough so I’ve not only stopped lercanidipine, but also candesartan and am checking RR regularly.
:new: “V” for loins = lie on back, legs up and let legs fall to sides;
:new: twist-stretching more for the loins
:white_check_mark: :x: :face_with_monocle: ➔ ⇄ ⇨➜ ➞ :arrow_right: ➲ ↔:⇰↔ →:arrow_upper_right: :arrow_lower_right:

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