JayCS’s Fibro Blog

Symptoms & Treatments
707

2022-02-17, Thursday 15-20% - Brain chatter stopping sleep at 6 again proves I do need the passiflora again. So a cortisol day, but used it to get things done (about 150 tabs and 50 mails), and kept table tennis down to 2 games. Suddenly tired at 19:30… calls for self-discipline…

Triggers & resulting Symptoms

SLEEP (click for details): 5h46, plus 52-3' = 49' YN = 6h35 ❌, but ➔ Feeling 90% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐 No NAC: no problem with showering. No Pf yet. 2x HWB, brain chatter, but timing 2.5h too late. Stomach burn a bit less than the last few days. So if no NAC, then at least Pf is nec.

No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 00:45- HWB#1 (tough getting to sleep)
2:32 3’ 90%/2 p0 st1 drink fw1’ air (stool!)
5:14 3’ 90%/2 p0 st1 drink fw1’ dry mouth & throat
6:25 3’ 90%/2 p0 st1 drink fw2’ brain chatter: GABA speck.
7:00: Heating on!
-6:40 awake, wind, stomach, so B1-3, wait, eat, praps nidra?
8:00- Yoga Nidra/dozing
3’ 90%/2 p0 st1 drink fw1’
-8:52 still tired, awake again.
Sum: 6h40-45-(3+3+3=)9’ 5h55-9 = 5h46, plus 52-3’ = 49’ YN = 6h35.

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: Too little sleep means too much cortisol (always an open hen or egg question I think), so lots of rest and kept table tennis to the sweet spot of 2 games, not tempting fate ➔ 80%/2-3
"HOW DO I LOOK?" pale all day, poor dear. :trophy: :crazy_face:
ACTIONS ➔ PAINS: :white_check_mark:

Treatments

Docs:

  • N-methylhistamine for MCAS-proof: ordered it.
  • Factor VIII up: MCAS and CVD? Consequences? Cardiologist.
  • (Re-check my old blood Anti-P note.)

WHB (3 rounds) :one: 16:10 1’20’’ 1’40’’ 1’30’’. :trophy:
RIBOSE: :zero:

SELF-PHYSIO (click for details): 2h40 ✅. More combinations. To incite more: List-prioritizing what I might feel like doing next. Temperature 5' 36,45°C, slightly lower (interesting that I can't feel it that high, I'd've thought it's back to 35,5.)

:white_check_mark:
cold shower (10’), cream fc/ey/hd/ft 7x1’, teeth 1x2’, breath exercises 4’, massage gun 8’, HWB 2x3’, hunchback-pillow 15’, AuTr 40’, facetime 3x1’, aloe vera 1’, breath-hold 12’, left foot on/under right knee/cross-legged 28’, temperature 5’, horse stance 1.5’= “3’”, loins 3’, plantar/calf stretch 3’, shaking dance 1’, airing 3x2’,

Combinations. What next?
:x: calendula/tea tree x1’, palpate 1’, belly 3’, back 12’, hair/nails 3’, neck 1+ 2’, neck 2 4’, twist-stretch 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, acupressure 6’, bent leg fall 1’,
Supps (Feb 12th: 31): Supp costs: ~344€/m (halved CoQ10, no Sr, re-added vit. C.+NAC, minus re-ordering some). CHANGE: Stop NAC again! ALA & pine: later(?) - increases alertness; but praps more for burning mouth? CoQ10/ubiquinone <150mg/d better for lp(a). Look for better honokiol & rhodiola. Starting arginine soon for lipids. Magnesium malate good for waking(?), so stopping evenings. Order Copper. RIBOSE!? PLANNED/TAKEN TODAY: click for details:

ZERO: Arg, B3/Nia, Mum, (Nd), Rib, Pe, Ps, Se, 0 Sr 0x31125k.
(REGULAR as of Feb 12th (31, except I need new Mg Gly, Pf, pine bark, Zn & will be starting Ar soon): ALA .2g, B2 2*.1g, B12 5mg/2m, C 12.5g, Cr 31g, DAO before meals, D3 1/w, EGCG 50%.5g (praps also contains L-theanine?) EllagicA .2g (+43mg vit. C), Fev/MSM .4g (+.2g MSM) Ga: 4*.6g+.4g=~2.8g, 3Gi, Glu:~0.8g, Hon 2%.4g=8mg, Luteolin .2g, Mg (Gly) 0250mg, Mg (Mal) 0245mg, Ω3, Nc 1.5g, P5 27mg, Pf4, pine bark 2*.5g, Pq 1, Q10 (ubq) 1*.1g/d, Qc 4*.5g/d, Rs 250%.4g, Ro 2*.2g(+B1 1.4mg (& MgCO3 60mg)), Sa .1g, Sily 80%*.5g (+83mg L-cholin) , The.2g (+.15g polyphenols), Zn 1)
What-when-details: Updated Feb 15th (before: see the reference post)
/20:15 A1/2 “19:00” 0PF#1 0Cr#1 0mal#1+2 P5P/2Rho(0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:20 A3 “21:00” 0PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC!
/ Chamomile tea.
/22:55 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
(B1 “01:00” 0PF#4 0SRP#1)
Heating on! Warm shower?
/06:40 B2 “07:00” +ALA+2x pine bark, (teeth)
/06:40 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/06:40 B4 “07:00” EGCg + Fev/MSM + Sily
PQQ & Ω3
/07:40 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn 1xHon! DAO?
/07:40 “MEAL” .5gC#1 2The2 (0NAC)
? EllA C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
1 DAO (D1) “13:00” 0psyllium
/14:50 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:00? D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? 0SRP#3.
eve:

“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Arg: Capsules? (0)Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, 0Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Rs:B3,D4 SINGLE: A2:P5/Ro A3: Luteolin A4: Rup! B2: ALA+0x2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:0Zn&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development
Jab-sfx/MCAS/antihistamine:
BTW did I say… ehm… what was I gonna say? :crazy_face: It was fairly important…

’Research’ today:

  • Chromium to decrease glucose up isn’t proven (EU vs. USA): wpe, so not doing it.

Lessons in self-care #226 Took good care of myself as cortisol day.
Reasons to be cheerful #233 Worked thru all >160 tabs and worked thru/answered my >60 mails!