JayCS’s Fibro Blog

Symptoms & Treatments
708

2022-02-18, Friday 15% - OK-ish despite pain, paperwork; interesting ‘research’

v2 16:15: Cdn’t manage 4’ of workout, but 3 games of TT without pain. :crazy_face:
v1: Long deep night (almost 11h) with 3 passiflora added again to the antihistamine + GABA, still very awake at 4 (after 7h), solved with an alternate shower… → another 4h of sleep straight! Interesting ‘research’ on MCAS and CoV.

Triggers & resulting Symptoms

SLEEP (click for details): 10h40, up 5x (44') 🧐/✅, ➔ Feeling 80(-70)% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐. Well being again wide awake and also very tired at 4 after 7h was strange, I knew I needed sleep, and I was close to it, but something again wonky. Trying an alternate shower was perfect. The other possibility GABA sublingually didn't occur to me, but I think this was better and lead to another 4h of sleep straight, so could make up for the short nights. Also Pf#3 in A4 didn't come out, didn't realize and didn't take it, either I could've taken that with Pf#4 in B1, or at 4, seeing as I knew how much sleep I was missing. The other main problem was freezing, despite the warm part, so after shower at 4/5: Always HWB.

No fw! lbu: belly tensing? No half-sitting on sofa! SUPPS & AIR 1st!
cold shower p0 Sleep 21:05-
22:15 3’ 80%/2 p1-2 st1 drink fw1’
23:15 3’ 80%/2 p1 st1 drink fw1’ A4 (but 1 Pf#3 didn’t come out)
01:25 3’ 80%/2 p0 st1 drink fw1’
04:10 3’ 70%/2 p0 st1 drink fw1’ dozing, as tired/awake, after 7h sleep.
04:58 28’ still awake. fw 14’, then alternate warm-cold shower. Yoga Nidra.
-8:29.
Sum: 2h55+8h29-(4+4+4+4+28=)44’ = 11h24-44’ = 10h40, up 5x (44’)

ACTIVITIES (aiming for 40% - well 20% - of pre-fibro) ➔ ACHE: ➔ 80%/3
3xTT :ping_pong: ➔ 80%/3 (not worse than before) :face_with_monocle:, 3h online meeting with friends :speaking_head: ➔ 80%/3 ➔ 80%/4
"HOW DO I LOOK?" Pale as always, poor thing, good I’m caring :trophy:
ACTIONS ➔ PAINS: :white_check_mark: Sitting’s got worse :x:, I’m thinking it’s my getting lax on my back exercises of late, after realizing my “hunchback” isn’t that bad anymore if I put a hard cushion under it for a time at time: Not enough! :face_with_monocle: Neck was a little stiff at night, so bit of neck ex. soon please. :face_with_monocle:Occasional pee pain.

Treatments

Docs:

  • N-methylhistamine for MCAS-proof: came today, using it from Sunday to Monday.
  • Factor VIII up: MCAS and CVD? Cardiologist. Hyperlipidemia from MCAS??
  • (Re-check my old blood Anti-P note.)

WHB (3 rounds) :one: 15:25 1’30’’ 1’30’’ 2’ :trophy:
RIBOSE: :zero:

SELF-PHYSIO (click for details): 2h21 ✅. More combinations. To incite more: List-prioritizing what I might feel like doing next. temperature 36,55°C - a little higher again.

:white_check_mark: aloe vera 1’, plantar/calf stretch 3’, hand-exerciser 5’, airing 1x2’, cold shower (10’)+(10’), cream fc/ey/hd/ft 5x1’, breath exercises 4’, hair/nails 2’, Timing, hunchback-pillow 15’, HWB 2x3’, facetime 1x1’, temperature 5’, teeth 3x2’, Y. Nidra 30’, workout 4’ (had to keep it down, then break it off = worse than yesterday), massage gun 4’, breath-hold 12’, left foot on/under right knee/cross-legged 14’, loins 1’, twist-stretch 2’,

Combinations. What next?
palpate 1’, belly 3’, back 12’,

:x: neck 1+ 2’, neck 2 4’, horse stance 1’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, acupressure 6’, bent leg fall 1’, calendula/tea tree x1’,
Breathing: https://www.youtube.com/results?search_query=acupressure+breath e.g. How to improve your breathing with this acupressure point - YouTube Acupressure Breathing Technique - YouTube Lungs: Mandell: AWAKEN YOUR LUNGS IN 30 SECONDS - Dr Alan Mandell, DC - YouTube & 😤 PUSH HERE AND YOUR LUNGS WILL THANK YOU - Dr Alan Mandell, DC - YouTube Joe Dispenza Breathing Technique Demonstration - YouTube https://www.youtube.com/results?search_query=+Joe+Dispenza’s+breathing+technique
Circulation: How to Improve The Blood Circulation in Your Legs in Just 3 minutes! - YouTube
Eyes tired https://www.youtube.com/results?search_query=acupressure+tired+eyes, e.g. Massage and Acupressure for Tired Eyes - Massage Monday #109 - YouTube
Face Feldenkrais: Feldenkrais® Facial #1: Relax Face, Jaw and TMJ tension - YouTube Feldenkrais Free Your Face - YouTube
Groin: 2, 5 and 6 may be best for me: How to Relieve Groin Muscle Pain in 30 SECONDS - YouTube
Legs weak: https://www.youtube.com/results?search_query=acupressure+weak+legs e.g. Pain: Acupressure Points For LEG PAIN || Leg WEAKNESS || NUMBNESS In Legs || TINGLING In Legs || SCIATICA - YouTube. best acupressure points for leg & thigh muscles , pain , weakness , numbness , strength , leg pain - YouTube
Pain, Stress, Energy: 3 Common Acupressure Points Everyone Should Know (Pain, Stress, Energy) - YouTube
Reflux: https://www.youtube.com/results?search_query=acupressure+points+for+esophagitis e.g. The 4 minute natural trick to prevent acid reflux in the oesophagus - YouTube https://www.youtube.com/results?search_query=esophagus+block
Skin itchy: https://www.youtube.com/results?search_query=acupressure+itchiness, e.g. How to relieve itchy skin naturally - 3 simple steps - YouTube, Acupressure points for skin allergy, hives, rash or eczema - YouTube, Acupressure For Itching - YouTube
Stiff: https://www.youtube.com/results?search_query=stiffness+points, e.g. Leg Pain & Stiffness Acupressure Points - YouTube
Stomach burn Acupressure Points for a Burning Stomach - YouTube
Tailbone: https://www.youtube.com/results?search_query=acupressure+tailbone+pain, e.g. Acupressure Point For Tail Bone Pain - Instant Tail Bone Pain Relief - YouTube
TCM: "It Takes Seconds" | Master Chunyi Lin on "The Most Powerful Chinese Medicine" - YouTube, qigong: "If You DO IT PROPERLY, Every Cell in Your Body Will Be Fixed" | Master Chunyi Lin - YouTube
Vagus: Vagus Nerve Massage For Stress And Anxiety Relief - YouTube
:question:: foot bath 15’, gums 2x30’’, V ‘, mirror 2’, RR x2’, nux vomica 1’.

Supps (Feb 12th: 31): Supp costs: ~344€/m (halved CoQ10, no Sr, re-added vit. C.+NAC, minus re-ordering some). CHANGE: Stop NAC again! ALA & pine: later(?) - increases alertness; but praps more for burning mouth? CoQ10/ubiquinone <150mg/d better for lp(a). Look for better honokiol & rhodiola. Starting arginine soon for lipids. Magnesium malate good for waking(?), so stopping evenings. RIBOSE!? PLANNED/TAKEN TODAY: click for details:

ZERO: Arg, B3/Nia, Mum, (Nd), Rib, Pe, Ps, Se, 0 Sr 0x31125k.
(REGULAR as of Feb 12th (31, except I need new Mg Gly, Pf, pine bark, Zn & will be starting Ar soon): ALA .2g, B2 2*.1g, B12 5mg/2m, C 12.5g, Cr 31g, DAO before meals, D3 1/w, EGCG 50%.5g (praps also contains L-theanine?) EllagicA .2g (+43mg vit. C), Fev/MSM .4g (+.2g MSM) Ga: 4*.6g+.4g=~2.8g, 3Gi, Glu:~0.8g, Hon 2%.4g=8mg, Luteolin .2g, Mg (Gly) 0250mg, Mg (Mal) 0245mg, Ω3, Nc 1.5g, P5 27mg, Pf4, pine bark 2*.5g, Pq 1, Q10 (ubq) 1*.1g/d, Qc 4*.5g/d, Rs 250%.4g, Ro 2*.2g(+B1 1.4mg (& MgCO3 60mg)), Sa .1g, Sily 80%*.5g (+83mg L-cholin) , The.2g (+.15g polyphenols), Zn 1)
What-when-details: Updated Feb 15th (before: see the reference post)
/19:20-30 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P/2Rho(0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:05 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC!
/21:05- Chamomile tea.
/23:15 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
PF#3 stayed stuck,
/01:30 B1 “01:00” PF#4 0SRP#1
Heating on! Warm shower?
/08:40 B2 “07:00” +ALA+2x pine bark, (teeth)
/08:40 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:40 B4 “07:00” EGCg + Fev/MSM + Sily
/10:20 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn 1xHon! DAO?
/10:20 C3 “MEAL” .5gC#1 2The2 (0NAC)
?14:00 12:00 C4 “11:00” (+2h/) gi#2 gly#1+2 0SRP#2. Nd#? & Ellagic acid
DAO (D1) “13:00” 0psyllium
/16:15 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/19:45 (but didn’t seem to contain Rs…) D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? 0SRP#3.
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Arg: Capsules? (0)Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, 0Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Rs:B3,D4 SINGLE: A2:P5/Ro A3: Luteolin A4: Rup! B2: ALA+0x2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:0Zn&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

Jab-sfx/MCAS/antihistamine:
What was the important thing I was gonna write yesterday? I’ll remember soon…

’Research’ today:

- MCAS and COVID and jabs: One of the world experts, Afrin wrote Mar21 that these may be very related, also in his anecdotal experience and still urges to take the jab after being on an MCAS regimen: General Thoughts on MCAS and Covid by Dr. Afrin - AIM Center for Personalized Medicine
On pubmed the MCAS / CoV connection is mentioned in about 5 studies, e.g.

Lessons in self-care #227 Watched for not overdoing it, apart from the video meeting with mates…
Reasons to be cheerful #234 Finally did some paperwork - sickness insurance bills:crazy_face: