JayCS’s Fibro Blog

Symptoms & Treatments
714

2022-02-22, Tuesday 10%-5% - hard to move: stiff, & sinuses too: jab#2 on day 12 now in full effect!

Triggers & resulting Symptoms

SLEEP (click for details): 9h35, up 3x (15') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐, very ?overdeep sleep, similar to the jab#1-sfx

cold shower p0 Sleep 22:30-
1:15 5’ 80%/2 p1 st3 drink fw2’ Sore throat. Air. Dry nostrils. Left nostril congested. air
3:24 5’ 80%/2 p0 st2 drink fw2’ sore throat, left nostril like a cold. air
6:15 5’ 80%/2 p0 st3 drink fw2’ same, but right (alternating several times), slightly nauseous. air
7:00: Heating on!
-8:20
Sum: 1h30+8h20-(3x5’=)15’ = 9h50-15’ = 9h35, up 3x (15’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Resting, hardly doing anything ➔ 70%/3, 30’ shop ➔ 60%/3-4 for a time, then back “up”.
(e.g. cycle :biking_man:, TT :ping_pong:, meetings/social :speaking_head:, mask :mask:, kids :child:, work ➔ ?80%/2) ?:white_check_mark::cross_mark::face_with_monocle:
“HOW DO I LOOK?” Bad today 5x :trophy:
ACTIONS ➔ PAINS: :white_check_mark: Few quick ones, got 'em down immediately.

Treatments

Docs:

  • Factor VIII up: MCAS and CVD? Cardiologist. Hyperlipidemia from MCAS?? White Lips?
  • N-methylhistamine? If not: Prostaglandin D2 or 2,3-Dinor-11beta-prostaglandin F2 alpha or Leukotriene-E4.
  • (re-check my old Anti-P note.)

WHB (3 rounds) :one: 16:20 1’ 1’30’’ 1’25’’ :trophy:
RIBOSE: :zero:

SELF-PHYSIO (click for details): 1h35 ✅. Combine. List-prioritize: next.

:white_check_mark: facetime 6x1’, airing 4x2’, cold shower (10’), cream fc/ey/hd/ft x1’, teeth 2x2’, HWB 3’, breath exercises 4’, Timing, hunchback-pillow 15’, palpate 1’, belly 3’, back 12’, breath-hold 11’, left foot on/under right knee/cross-legged 10’, plantar/calf stretch 2’, massage gun 3’,
Combine: next? horse stance 1’.

:x: calendula/tea tree x1’, Y. Nidra 20’, hair/nails 3’, neck 1+ 2’, neck 2 4’, twist-stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, hand-exerciser 3’, shaking dance 1’, acupressure 6’, aloe vera 1’, bent leg fall 1’,

Breathing: https://www.youtube.com/results?search_query=acupressure+breath e.g. https://youtu.be/7_nu5NP8Sdk https://youtu.be/k0RdtszE12c Lungs: Mandell: https://youtu.be/ai7fRWnD3hM & https://youtu.be/BaFosbmCYWQ https://youtu.be/0prKElQzGu4 https://www.youtube.com/results?search_query=+Joe+Dispenza’s+breathing+technique
Circulation: https://youtu.be/X0gUg09Gcho
Eyes tired https://www.youtube.com/results?search_query=acupressure+tired+eyes, e.g. https://youtu.be/qvvDanzzsaQ
Face Feldenkrais: https://youtu.be/cGGjXKJvw-U https://youtu.be/C4yVO7oPJcc
Groin: 2, 5 and 6 may be best for me: https://youtu.be/6sLC_x1tUT0
Legs weak: https://www.youtube.com/results?search_query=acupressure+weak+legs e.g. Pain: https://youtu.be/oaUUI8jXb38. https://youtu.be/BEuBYjGkfK4
Pain, Stress, Energy: https://youtu.be/YP1xt62u5r4
Reflux: https://www.youtube.com/results?search_query=acupressure+points+for+esophagitis e.g. https://youtu.be/ukjDvQzij8Y https://www.youtube.com/results?search_query=esophagus+block
Skin itchy: https://www.youtube.com/results?search_query=acupressure+itchiness, e.g. https://youtu.be/wfGhIX1RX8M, https://youtu.be/_zRRN33xWVY, https://youtu.be/TxQSSMeTJc0
Stiff: https://www.youtube.com/results?search_query=stiffness+points, e.g. https://youtu.be/kQCzk2TxqNo
Stomach burn https://youtu.be/-W-_dJiwgNU
Tailbone: https://www.youtube.com/results?search_query=acupressure+tailbone+pain, e.g. https://youtu.be/zvTBcYVaQdw
TCM: https://youtu.be/DsU9ydJS-1c, qigong: https://youtu.be/qWfXJ5l3jPo
Vagus: https://youtu.be/LnV3Q2xIb1U
:question:: foot bath 15’, gums 2x30’’, V ‘, mirror 2’, RR x2’, nux vomica 1’.

Supps (Feb 12th: 31): Supp costs: ~344€/m. CHANGE: CoQ10/ubiquinone <150mg/d better for lp(a). Look for better honokiol, rhodiola AND PASSIFLORA! Starting arginine soon for lipids. RIBOSE!? PLANNED/TAKEN TODAY: click for details:

ZERO: Arg, B3/Nia, Mum, (Nd), Rib, Pe, Ps, Se, 0 Sr 0x31125k.
(REGULAR as of Feb 12th (31). Ordered pine bark, Cu, Zn, passionflower & rhodiola. Ar 0, cos maybe bad for lp(a)!): ALA .2g, B2 2*.1g, B12 5mg/2m, C 12.5g, Cr 31g, DAO before meals, D3 1/w, EGCG 50%.5g (praps also contains L-theanine?) EllagicA .2g (+43mg vit. C), Fev/MSM .4g (+.2g MSM) Ga: 4*.6g+.4g=~2.8g, 3Gi, Glu:~0.8g, Hon 2%.4g=8mg, Luteolin .2g, Mg (Gly) 0250mg, Mg (Mal) 0245mg, Ω3, Nc 1.5g, P5 27mg, Pf4, pine bark 2*.5g, Pq 1, Q10 (ubq) 1*.1g/d, Qc 4*.5g/d, Rs 250%.4g, Ro 2*.2g(+B1 1.4mg (& MgCO3 60mg)), Sa .1g, Sily 80%*.5g (+83mg L-cholin) , The.2g (+.15g polyphenols), Zn 1)
What-when-details: Updated Feb 15th (before: see the reference post)
/19:45 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P/2Rho(0Se) PQQ Ω3 & Qc. Meal: DAO.
/22:00 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC!
Chamomile tea.
/01:15 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/03:25 B1 “01:00” PF#4
Heating on! Warm shower?
/08:30 B2 “07:00” +ALA+2x pine bark, (teeth)
/08:30 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:30 B4 “07:00” EGCg + Fev/MSM + Sily
/10:10 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn 1xHon! DAO?
/10:10 C3 “MEAL” .5gC#1 2The2 (0NAC)
/14:15 C4 “11:00” (+2h/) gi#2 gly#1. Nd#? & Ellagic acid
1 DAO (D1) “13:00” 0psyllium
/15:50 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:50 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#?
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Arg: 0! (0)Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Rs:B3,D4 SINGLE: A2:P5/Ro A3: Luteolin A4: Rup! B2: ALA+0x2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:0Zn&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development
Jab-sfx/MCAS/antihistamine:
After getting up stiff and eye/head pressure at 8:30, sinuses building up at 9:55 (need GABA/food)
11:40 Still very stiff, still sinuses despite eating. Remembered now that this overdeep sleep was the same after jab#1.
If it were food: I ate a little green beans and tiny slids of the young cheese, both may’ve caused a flare 2 days ago, but with 5x the amount. So if I don’t repeat it today, will it get better again? That’d be #2.
Floored most of the day.

‘Research’ today:
A new study was published today on JAMA that there is only a low risk for quick allergic reaction to a 2nd mRNA jab after one on the first. No help for me there…
Also today a French editorial was published on JAMA about taking statins: “The message for clinicians is, therefore, that the level of LDL-C should be lowered below 70 mg/dL by any means after an ischemic stroke in patients with evidence of atherosclerosis. For those [after an ischemic stroke] without atherosclerosis, the benefit of lowering the level fo LDL-C below 70 mg/dL vs between 90 and 110 mg/dL is much smaller, and an individualized evaluation of the risk to benefit ratio, bearing in mind a small increase in risks of intracerebral hemorrhage and type 2 diabetes, is needed.”
Also today a similar Chinese meta-review was published about statins concluding amongst less relevant things for me "For patients without evidence of atherosclerosis, intensive LDL-C–lowering statin-based therapies might not be needed in most situations considering the uncertain benefits of secondary stroke prevention and the increased risk of hemorrhagic stroke associated with intensive LDL-C lowering.

Lessons in self-care #231 My wife tries to help, but many things are better to do alone.
Reasons to be cheerful #238 Considering I’m basically floored, I’m doing quite well in between.