JayCS’s Fibro Blog

Symptoms & Treatments
719

2022-02-26, Saturday 5%, not 10% - Stiff and difficulty targeting switches and handles.

v2: 13:45 Extremely stiff today, need minutes to get up.
v1: watch similar food triggers (but less amounts, no soy y.). 22:00 after having procrastinated with self-treatments, I did a whole stint in a “revenge bedtime procrastination”, so my back wouldn’t hamper with my sleep. 11:30

Triggers & resulting Symptoms

SLEEP (click for details): 7h08, up 3x (19'), plus 55+52 Nidra/doze ✅, but ➔ Feeling ?90% well, Ache ?2 of 7 🧐, getting up: ?70%/3 ❌

cold shower p0 Sleep 23:15-
1:05 5’ 80%/2 p0 st1 drink fw2’ sore throat → calendula ess. air. B1.
3:31 9’ 80%/2 p0 st1 drink fw3’ elbows → twist-stretches air
5:32 5’ 80%/2 p0 st1 drink fw2’ dry mouth/stomach → almond milk
-6:42 3’ 80%/2 p0 st1 drink fw1’ own Y.N./doze
7:40 6’ 80%/2 p0 st1 drink fw1’ B2-4 Ally’s Y.N. cos of chatter. But sinuses too, GABA?
-8:38
Sum: 45+6h42-(5+9+5=)19’ = 7h27-19’ = 7h08, up 3x (19’), plus 55+52 Nidra/doze

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: 70%/3 most of the day I spose, quite OK if I don’t move. :face_with_monocle: (Cycling very short distance fun: 90%/1. :white_check_mark:)
“HOW DO I LOOK?” 11:00 face + lips a little reddish due to housework before :trophy:
ACTIONS ➔ PAINS: :white_check_mark: Again: Not the problem!

Treatments

Docs:
Psychologist: I’ll bring this topic up on Tuesday, see what she says: My wife thinks I explain FM & MCAS to others too precisely and long to others. She’d prefer me to just say ‘soft tissue rheumatism’ and ‘histamine intolerance’ and leave it at that. She thinks they don’t understand me anyway and stop listening. (A part of this is that she doesn’t want to hear much about it.) I realized and said that I do that FOR MYSELF and not them, and DESERVE to do that, it’s the way I cope with it plus - if people ask me how I am - I can demonstrate to them that I’m coping well by understanding and acting on it; whilst other sufferers etc. may feel they want to moan or the lack of understanding of others which I neither have. When I realize that people don’t understand I try to reduce the complexity. And my table tennis mate just says: Ah, just talk to our other mates about that, they’re interested in medicine. My wife had to concede a bit, and realized that I don’t see my mates much nowadays and they just really are interested. So maybe that topic’s thru…

  • Factor VIII up: MCAS and CVD? Cardiologist. Hyperlipidemia from MCAS?? White Lips?
  • Prostaglandin D2 or 2,3-Dinor-11beta-prostaglandin F2 alpha or Leukotriene-E4? (NHM OK)

WHB (3 rounds) :one: 22:05 1’ 1’20’’ 1’20’’ :trophy: 11:00 (doing the exercise by sight and listening and writing other things…) 1’ 1’30’’ 1’40’’ (why is it always less at the moment?) :trophy:
RIBOSE: :one: ?

SELF-PHYSIO (click for details): 3h33 ✅. Combine. List-prioritize: next.

:white_check_mark: hair/nails 15’, cream fc/ey/hd/ft 2x1’, airing 4x2’, cold shower (7’), Timing, teeth 1x2’, HWB 3’, breath exercises 4’, hunchback-pillow 15’, Y. Nidra 1h30’, facetime 1x1’, palpate 1’, belly 3’, breath-hold 10’+11’, back 7’+10, left foot on/under right knee/cross-legged 16’, twist-stretch 5’, hand-exerciser 3’, aloe vera 1’,
Now:
Combine: next?
:x: calendula/tea tree x1’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, workout 7’, massage gun 20’, shaking dance 1’, acupressure 6’, bent leg fall 1’, horse stance 1’.
Breathing: https://www.youtube.com/results?search_query=acupressure+breath e.g. https://youtu.be/7_nu5NP8Sdk https://youtu.be/k0RdtszE12c Lungs: Mandell: https://youtu.be/ai7fRWnD3hM & https://youtu.be/BaFosbmCYWQ https://youtu.be/0prKElQzGu4 https://www.youtube.com/results?search_query=+Joe+Dispenza’s+breathing+technique
Circulation: https://youtu.be/X0gUg09Gcho
Eyes tired https://www.youtube.com/results?search_query=acupressure+tired+eyes, e.g. https://youtu.be/qvvDanzzsaQ
Face Feldenkrais: https://youtu.be/cGGjXKJvw-U https://youtu.be/C4yVO7oPJcc
Groin: 2, 5 and 6 may be best for me: https://youtu.be/6sLC_x1tUT0
Legs weak: https://www.youtube.com/results?search_query=acupressure+weak+legs e.g. Pain: https://youtu.be/oaUUI8jXb38. https://youtu.be/BEuBYjGkfK4
Pain, Stress, Energy: https://youtu.be/YP1xt62u5r4
Reflux: https://www.youtube.com/results?search_query=acupressure+points+for+esophagitis e.g. https://youtu.be/ukjDvQzij8Y https://www.youtube.com/results?search_query=esophagus+block
Skin itchy: https://www.youtube.com/results?search_query=acupressure+itchiness, e.g. https://youtu.be/wfGhIX1RX8M, https://youtu.be/_zRRN33xWVY, https://youtu.be/TxQSSMeTJc0
Stiff: https://www.youtube.com/results?search_query=stiffness+points, e.g. https://youtu.be/kQCzk2TxqNo
Stomach burn https://youtu.be/-W-_dJiwgNU
Tailbone: https://www.youtube.com/results?search_query=acupressure+tailbone+pain, e.g. https://youtu.be/zvTBcYVaQdw
TCM: https://youtu.be/DsU9ydJS-1c, qigong: https://youtu.be/qWfXJ5l3jPo
Vagus: https://youtu.be/LnV3Q2xIb1U
:question:: foot bath 15’, gums 2x30’’, V ‘, mirror 2’, RR x2’, nux vomica 1’.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Re-order ALA. Passionflower .35g 3/d? Pine bark, Cu, rhodiola (& Zn) arriving. Look for better honokiol. Arg 0 since praps bad for lp(a)! RIBOSE!? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3&K2 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.2g(+B1 1.4mg), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P/2Rho(0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:55 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC!
/21:50 Chamomile tea.
/23:15 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/01:05 B1 “01:00” PF#4
Heating on! Warm shower?
/7:40 B2 “07:00” +ALA+2x pine bark, (teeth)
/7:40 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/7:40 B4 “07:00” EGCg + Fev/MSM + Sily
/09:00 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Zn 1xHon! DAO? +Cu
/09:00 C3 “MEAL” .5gC#1 2The2 (0NAC)
Sat 26th: vit. D3. Chamomile tea didn’t help the sinus burn.
/11:30 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
/12:35 GABA-speck: 150mg sublingually.
1 DAO (D1) “13:00” 0psyllium
/~15:00 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/18:30 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#?
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4,0D3, Gi: C2,C4,D3 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.

(0x2Gly0x2Mal: C4.D3.A2) (B2:0mu) (0Nc: A3, B1,C1,C3,D2) (5NADH if nec.) (0 Nia) (D1:0Pe) (A2:0Se) (0Sr: B1,C4,D4)

Development
Jab-sfx/MCAS/antihistamine:
Lots of sinus burning in the morning, even after eating and supps. Yesterday’s food? Cheese slivers, spelt bread, raisins… Blowing nose helps clear the nose, but not the burning (and headache and nausea). Try breath-holding… Bit better, but not gone. Then GABA? After C4-batch: 12:35, about 150mg → 13:50 sinuses another bit better.

‘Research’ today:
Reading up a bit in Afrin’s big fat book Never Bet Against Occam. The cases are a bit boring, it’s so individual they’re far away from ‘me’, but there’s a big part at the end where I can look up things like Factor VIII and triglycerides. What he says about the anti-inflammatory side-effects of statins increases the case for atorvastatin again.
But the interaction between atorvastatin and rupatadine is a problem: https://www.medicine.com/drug/atorvastatin/hcp: " Rupatadine: May enhance the adverse/toxic effect of HMG-CoA Reductase Inhibitors (Statins). Specifically, the risk for increased CPK and/or other muscle toxicities may be increased. Monitor therapy" My CPK is already increased, however I haven’t yet experienced muscle pain from statins, if that is what this is referring to. C(P)K = Creatin(phospho)kinase, an enzyme in brain as well as muscles. Reasons for its increase: Statins, infection, immobilization, lack of blood supply to a particular limb. Its breakdown in the kidneys causes myoglobin, which is attacked by white blood cells.
https://www.healthcheckup.com/general/high-cpk-levels-causes-symptoms-side-effects-treatment/
Hoffman warns about quercetin and EGCg, cos the COMT++ enzyme can cause problems (gene). Praps before I do a gene test for this I should try a few days without the 2? But the symptoms I should be looking for are anxiety, insomnia and pain, and I have absolutely no anxiety, my better sleep is the only positive thing about the jab-sfx and my pain is probably caused by the jab and isn’t my biggest problem.

Lessons in self-care #234 Quite a bit of housework, but breaks every 2-3 minutes, trying not to overdo it.
Reasons to be cheerful #241 Still getting lots done, piles down.