JayCS’s Fibro Blog

Symptoms & Treatments
720

2022-02-27, Sunday 8% - getting things done, moving slowly…

:turtle:

Triggers & resulting Symptoms

SLEEP (click for details): 8h10 up 5x (56') ✅, ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐

cold shower p0 Sleep 23:25-
0:45 10’ 80%/2 p0 st1 drink fw1’ B1
2:06 3’ 80%/2 p0 st1 drink fw1’
4:11 5’ 80%/2 p0 st1 drink fw1’ air HWB
4:28 3’ 80%/2 st1 fw1’ gun for LBU
5:34 35’ 80%/2 st1 fw1’ GABA 200mg (atho wasn’t really chatter, it was dream sleep, but getting up too much tonight, need one last stint) 6 :white_check_mark:
-8:31
Sum: 35+8h31-(10+3+5+3+35=)56’ = 9h06-56’ = 8h10 up 5x (56’)

ACTIVITIES (aiming for 40% - well 20% - physical activity of pre-fibro) ➔ ACHE: Doing a bit of housework moving very slowly is OK, so I’ll say ➔ 80%/2. Double antihistamine? Nope. Don’t feel it’s right today. 30’ cycle walk meant only 10’ service was possible, as the break of 40’ in between was far too short. 70%/3.
(e.g. cycle :biking_man:, TT :ping_pong:, meetings/social :speaking_head:, mask :mask:, kids :child:, work ➔ ?80%/2) ?:white_check_mark::x::face_with_monocle:
"HOW DO I LOOK?" White face & lips, but when I try to take a pic, both always come out reddish… :trophy:
ACTIONS ➔ PAINS: :white_check_mark:

Treatments

Docs:

  • Psychotherapist: Do I talk too “medical”? (details on Saturday’s entry)
  • Cardiologist: Factor VIII & lipids up: MCAS and CVD? White Lips, blue fingers? Atorvastatin vs. rupatadine?
  • Allergologist: Prostaglandin D2 or 2,3-Dinor-11beta-prostaglandin F2 alpha or - Leukotriene-E4? (NHM OK)
  • GP: Check magnesium level instead of just stopping it.

WHB (3 rounds) :one: 3x1’30’’ :trophy:
RIBOSE: :zero:

SELF-PHYSIO (click for details): 112'... ✅. Combine. List-prioritize: next. 3 Acupressure points for pain, stress and energy helped a bit, so I'll be repeating them several times a day.

:white_check_mark: aloe vera 1’, hand-exerciser 3’, twist-stretch 5’, airing 4x2’, cold shower (10’), cream fc/ey/hd/ft 3x1’, teeth 2x2’, HWB 2x3’, breath exercises 4’, facetime 2x1’, Timing, hunchback-pillow 5’, palpate 1’, belly 3’, back 8’, massage gun 5’, breath-hold 11’, left foot on/under right knee/cross-legged 33’,
Combine: next? workout 7’, horse stance 1, something new?
Pain, Stress, Energy: 3 Common Acupressure Points Everyone Should Know (Pain, Stress, Energy) - YouTube
Stiff: https://www.youtube.com/results?search_query=stiffness+points, e.g. Leg Pain & Stiffness Acupressure Points - YouTube
Tailbone: https://www.youtube.com/results?search_query=acupressure+tailbone+pain, e.g. Acupressure Point For Tail Bone Pain - Instant Tail Bone Pain Relief - YouTube

:x: hair/nails 3’, neck 1+ 2’, neck 2 4’, plantar/calf stretch 5’, loins 5’, yoga/stretching 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, acupressure 6’, bent leg fall 1’’, Y. Nidra 20’.
Breathing: https://www.youtube.com/results?search_query=acupressure+breath e.g. How to improve your breathing with this acupressure point - YouTube Acupressure Breathing Technique - YouTube Lungs: Mandell: AWAKEN YOUR LUNGS IN 30 SECONDS - Dr Alan Mandell, DC - YouTube & 😤 PUSH HERE AND YOUR LUNGS WILL THANK YOU - Dr Alan Mandell, DC - YouTube Joe Dispenza Breathing Technique Demonstration - YouTube https://www.youtube.com/results?search_query=+Joe+Dispenza’s+breathing+technique
Circulation: How to Improve The Blood Circulation in Your Legs in Just 3 minutes! - YouTube
Eyes tired https://www.youtube.com/results?search_query=acupressure+tired+eyes, e.g. Massage and Acupressure for Tired Eyes - Massage Monday #109 - YouTube
Face Feldenkrais: Feldenkrais® Facial #1: Relax Face, Jaw and TMJ tension - YouTube Feldenkrais Free Your Face - YouTube
Groin: 2, 5 and 6 may be best for me: How to Relieve Groin Muscle Pain in 30 SECONDS - YouTube
Legs weak: https://www.youtube.com/results?search_query=acupressure+weak+legs e.g. Pain: Acupressure Points For LEG PAIN || Leg WEAKNESS || NUMBNESS In Legs || TINGLING In Legs || SCIATICA - YouTube. best acupressure points for leg & thigh muscles , pain , weakness , numbness , strength , leg pain - YouTube
Reflux: https://www.youtube.com/results?search_query=acupressure+points+for+esophagitis e.g. The 4 minute natural trick to prevent acid reflux in the oesophagus - YouTube https://www.youtube.com/results?search_query=esophagus+block
Skin itchy: https://www.youtube.com/results?search_query=acupressure+itchiness, e.g. How to relieve itchy skin naturally - 3 simple steps - YouTube, Acupressure points for skin allergy, hives, rash or eczema - YouTube, Acupressure For Itching - YouTube
Stomach burn Acupressure Points for a Burning Stomach - YouTube
TCM: "It Takes Seconds" | Master Chunyi Lin on "The Most Powerful Chinese Medicine" - YouTube, qigong: "If You DO IT PROPERLY, Every Cell in Your Body Will Be Fixed" | Master Chunyi Lin - YouTube
Vagus: Vagus Nerve Massage For Stress And Anxiety Relief - YouTube
:question: (usually not necessary): calendula/tea tree x1’, foot bath 15’, gums 2x30’’, V ‘, mirror 2’, RR x2’, nux vomica 1’.

Supps (Feb 25th: 29): Supp costs: ~344€/m. CHANGE: Passionflower .35g 3/d? Pine bark, Cu, rhodiola (& Zn) arrived. Rhodiola now 2x.3g 30' before meals. Look for better honokiol. Quercetin and EGCg may cause RIBOSE!? PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Mum, Mg Gly 50mg, Mg Mal 45mg, Nc 1*.5g, (Nd), (Rib), Pe, Ps, Se, Sr 31125k, Zn.
REGULAR as of Feb 25th (29 incl. now Cu, pine, Pf, Rho, not Zn during Cu): ALA .2g, B2 2*.1g, B12 5mg/2m, C 2*.5g, Cr 31g, Cu 1x, DAO before meals, D3 1/w, EGCG (50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4*.6g+.4g=~2.8g, Gi 3*?, Glu:~0.8g, Hon (2%).4g=8mg, Luteolin .2g, Ω3 5mg, P5 27mg, Pf 3-4.35g, pine bark 2*.5g, Pq 1, Q10 (ubq) !1*.1g/d, Qc 4*.5g/d, Rs (50%) 2*.4g, Ro 2*.3g(+9mgC), Sa .1g, Sily (80%)*.5g (+83mg L-cholin) , The .2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/21:10 A1/2 “19:00” PF#1 Cr#1 0mal#1+2 P5P/2Rho(0Se) PQQ Ω3 & Qc. Meal: DAO.
/21:10 A3 “21:00” PF#2 .6 GABA&.4glu#1 & Lut (slp!) & Qc +0NAC!
/23:05 Chamomile tea.
/23:05 A4 “23:00” PF#3 .6 GABA&.3glu#2 & Ellagic acid + Rupafin
/00:45 B1 “01:00” PF#4
Heating on! Warm shower?
/08:35 B2 “07:00” +ALA+2x pine bark, (teeth) +!Ro
/08:35 B3 “07:00” (-30’) Q10#1 Qc#1 Rs#1 SAM-e
/08:35 B4 “07:00” EGCg + Fev/MSM + Sily
/09:30 C1/2 “MEAL!” 2Cr#2 .6GAB#3, (C2:) .1gB2, gink#1, Cu or Zn 1xHon! DAO?
/09:30 C3 “MEAL” .5gC#1 2The2 (0NAC) Essen -11:30. & -12:45
/13:45 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
1 DAO (D1) “13:00” 0psyllium
/14:45 D2/3 “15:00” .5gC#2,Cr#3,!.6GA#4,gink#3,0gly#3+4, 0NAC#5 DRINK!
/17:55 C4 = xEllagic Acid 1h after meal
/17:55 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
/19:50 A1/2
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; next: Mar 10th.)

The day's 16 compartments (10', plus 5' making capsules)

Pf: A1+3+4+B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. Ga: A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 0x2Gly0x2Mal: 0C4+0D3,0A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2:P5 A3: Luteolin A4: Rup! B2: ALA+2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:Cu(0Zn)&Hon C3:2Th (A2:Ω/Pq:meal) DAO before every meal.
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development
Jab-sfx/MCAS/antihistamine:
Reduced histamine foods Saturday evening, only 4 tiny slivers of cheese, 10 raisins, a 100ml soy yogurt. If that doesn’t help I’ll double the antihistamine tomorrow late morning. Didn’t seem necessary, unless it can improve pain & fatigue, so didn’t double it and tried a similar amount of cheese, spelt bread, reaisins and a bit less soy yogurt.

’Research’ today:
Only bits’n’bobs, forum work.

Lessons in self-care #235 Slow and pausing like a tortoise/turtle all day. :turtle:
Reasons to be cheerful #242 Quite well inside today.