JayCS’s Fibro Blog

[JayCS]

@ModSupport:

Another draft glitch:

Altho I was editing, a shortcut (wrongly) lead to going to the first post of the thread instead of going to the top of this edit. The whole page renewed. The edit was still there, incl. changes, but ‘post 302 and Avatar/JayCS were missing’ (no problem, but disquieting).

2021-04-12, Monday - restructuring - re-inventing myself - once again PROGRESS
21:00 End of the day: whoops: PROGRESS only for yesterday … so no: sick leave…

FEELING during/after ACTION
Sleep: 80%/2 10h55
Activities: 30%/4 6h50
(cycle, shop, table tennis 3h10; docs & sorting for docs 3h40)

Feeling/action-details

(Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment) (Well in % / Pain incl. Gut 0-10)

Sleep: 21:35- 23:05p5’ 0:45lbu → 3ex15’ AT 2:25?10’ 3:15 FCS10’+i10’ 4:08i work-i → tooth & hungry ( ate too late, 20:00) → ate 10’+i10’ → HWB 6:10 sore throat → Marigold essence, but why, HWB too late? → Regularly at/before 4am i10’ 8:15p (throat bit sore still) -8:55 Tired, not enough but i/stress due to work & appt. 11h20-1h20=10h + nap 55’ = 10h55

80%, 2 (only back 2 → yoga/ex & left big thumb 3-5: PsA? → derm., 3:15 Ache 2, tooth 2 thumb 2 neck 3 4:08 70%/2 09:00 50%/3)

50%/3 50’ Tired-Ache Palpating & back ex. 8:55
70%/245’ 9:45 CS to override it, but AT up, against the Ache. 45’
30%/4 Fever-Ache 10:30 Sorting, GP 20’ shop 30’, eat & sort 30’, cycle 35’, doc, 1h10 cycle, shop, cycle Cycle 17:20 work 20’ 17:40 eat & talk 18:05 cycle & TT 4:0 & cycle, eat, play, housework FM-work 1h35 Movement Activities (cycle, shop, TT, housework): 30+35+40+20+60+5 = 3h10 Docs: 20+1h10 1h30 Pressure/Work-type activities (digi work, sort): 1h30+30+20 =2h10 Work 20’, = 6h50! FM-work 1h35

6h50, so that’s why my wife asked if I hadn’t been overdoing it today…

Abbreviations: AT = Autogenic Training, FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle
Reasons for getting up lbu: lower back unrest, p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
Perhaps link these in a seperate post?

Development:
Fibro-work 0:50 5’ 2:25 4’ 3:15 5’ 4:10 15’ 6:10: 10’ 9:30: 5’ 9:45 5’ 10:00 5’ 20:40 20’ 9:30 20’= 1h35
Autogenic Training = HACK #1? 21:35 quickly asleep! 23:05 again. 2:25 very relaxed, very sleepy in a good way, despite the usual neck & throat & ? problems. sigh-breathing. 3:15 head a bit too taut, massage → OK. 4:05 work-i robbing concentration. Keep up during day, not just table tennis, but CS, Ache/Shakiness.
Lower Back-Unrest - yoga!? 21:15 2’ 0:50 5’ yoga & bar hanging (After which sleep position?)
Neck ex! 21:00 2’ 0:55 2’ 2:25 2’
Stretch Legs! 0:55 2’ (tog. w. neck & fibro-work) 2:25 2’ 4:10 2’
Palpate! 5’ gut p
Premeditate work! 20’
Oldie but Goldie: Eat 18:00, bedtime 21:00, no joke… howzabout 18:00+19:20 for starters
HWB regularly at/before 4:00
Q: Is my even higher sleep-need since mid-March due to trying to flexibilize my sleep for work?

Diagnoses:
PsA? I hurt my left big thumb (loads of notches and scars) → derm on 26th. (also under feet)
Reference Ideas: Just put everything in the “200 symptom list” thread first.
Psychologist: Relaxation-Supervision, Work-Supervision

[JayCS]

2021-04-13, Tuesday - Focussing

FEELING Well % / Pain 0-7 DOING

Sleep: 80% / 2 8h25, 3x up: 2 long stints, then just dozing. /
Activities: 80 → 50% / 4 → 2 (sports h digi-work h live-work h shop h)
Treatment: 80% / 2 for 5h? (cryo&APM 1h45, self ?50’, fw 5h )

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Sleep 21:50- 1:35p (=3h45-stint!) 4:25p (2h45!) fw 25’ → arrrgh: dozing/AT 5:50i10’ HWB dozing/AT -6:55 2h10+6h55=9h05-5-25-10=8h25 Fairly hard to keep at AT, so only ‘1h’. A few short shooting pains

60%/4 Ache, not feverish fibro-‘work’
80%/2 11:00 cold shower table tennis 7:1!
50%4 12:25 Ache, not feverish eat
80%/2 12:50 ri hd hurts 0 from acupressure 1h45, le hand more while cycling cycle cryo acupressure cycle psychologist cycle
50%4 16:10 feverish, tired, Ache fibro-‘work’ 16:50 ? 17:00 phone.
70%/3 feverish, tired, but fresh air exhilerates, gut 4, 17:25 cycle (very carefully with energy right hand hurts less from acupressure , left hand more) shops talk 18:40 mails, housework, fibro-‘work’:5’
40%/3 20:30 deteriorating…

Development: ()
7:10 Ouch! Shooting pain went out of my body fairly quickly, but not out of my brain/CNS.
Higher Sleep-need can’t be due to flexibilizing my sleep, otherwise it’d’ve got better in the break.
Focus on and increase self-treatments!:
Sleep Timing: Eat 20:00 , bedtime 21:50 sleep-breaks <5’ , HWB (4:00?)
∑ 5h05 cut it! Fibro-work <4h 4:25 25’ 6:55 1h35 8:40 1h20 +30 (1h of this unnec. for fibro) 16:10 30’ 16:10 40’ 18:40 5’ ∑ 5h05
∑ 1h00 night “2h” day 30’ AT
∑ 10’ 30’ Yoga! (slp)
∑ 10’ 10’ Neck! (slp)
∑ 5x1’ 5x1’ Stretch Legs!
∑ 5’ 1-2x5’ Palpate!
∑ 1x 2-3x30’’ cold! 11:00 → itchy eyes, tired?
∑ h 1-2x11’ breath-hold!
∑ h 1-2x4’ workout!
Timing: *Premeditate work!
Docs/Diagnoses: Endocrinologist (yesterday) says Thyroid looks perfect. So only half-Hashimoto (GP says it is). Bloods. 24h-urine for cortisol (starting 9:00?)
Psychologist: What I have done and still am doing to accept, cope with and adapt to fibromyalgia seems like a tour de force. Despite that trying to overcome the overboarding tiredness is will be thwarted by the complication of having to get up at 6:30 on Thursdays - is there really anything sensible keeping me from stopping work? Will I miss anything? I have so much I cd do.

Abbreviations

AT = Autogenic Training, FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, WHM-B-H = Wim Hof Method Breath-Holding
Reasons for getting up lbu: lower back unrest, p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point

[JayCS]

2021-04-14, Wednesday - Rerranged a bit more

FEELING Well % / Pain 0-7 DOING

Sleep: 80% / 2 ∑ 10h05, up 4x
Activities: 40-50 % / 4-6 ∑ 6h (digi-work: 2h sports: 2h15 TT 5:3, music: 1h45) /:
Treatment: 60% / 3 for ‘1h’ ∑ 50’ (self) /: Tough today.

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
80% / 2 Sleep 21:30- 0:25p.i30’(!) 3:05p(!) 4:40p HWB 5:05 dry mouth & throat gel -8:20. Acupressurist had suggested being careful with the self-hypnosis at night, cos that makes her ‘float’ on it, stops her from sleeping, so I watched out for that. 2:30+8:20=10h50-30’-5-5-5 =10h05, up 4x tired/fibro-work
Wife’s brought home spinach and mangold, seems OK for mediterranean diet and for IBSD, but has oxalates, and I don’t tolerate beetroot which does too, so I don’t think I’ll try it.
60% / 4 Feverish-heavy-ache (despite the good night!) sore back muscles left hand 5 palpating, exercising, arranging my night tubes in a small box, so they stay put & I can find them quicker in the dark (lavender oil, soothing balm, hand cream, GS dry mouth gel, lip balm, breath improving essential oil spray, Traumeel arnica complex cream, oil joint spray; eye mask, menthol oil; tissues). 9:30 preparing music lesson 10:15 warm shower, good while under, not after. In the mirror: I look pained and plain crap. 10:30 music lesson: exciting but tiring, need to sleep! In Christ Alone-cover 11:35 work-call 5’ 11:45 cycling to endocrinologist 50’.
40% / 6 Shake-Ache work-mail 1h15 eat & 14:30 table tennis 5:3 with 1 proper break, and short breaks after each point due to tiredness more than Ache. 16:25 work 5’ 16:30 fibro-work 1h40.
50% / 4 Feverish-cortisol-tired 18:15 Work10’ 18:25 Fibro-Work30’ 19:40 work30’

Development: ()
Focus on and increase self-treatments:
Sleep Timing: Ate 19:00 , bed 21:30 sleep-breaks <5’, once 30’ (), HWB
∑ 3h25 … Fibro-work 00:30 25’ 8:20 40’ 9:25 10’ 16:30 fibro-work 1h40 18:25 Fibro-Work30’ ∑ 3h25
∑ 10’ night: 10’ was enough, day 30’ AT
∑ 20’ 20’ Yoga! (slp)
∑ 5’ 5’ Neck! (slp)
∑ 4x1’… 5x1’ Stretch Legs! - hurts.
∑ 1x10’ 1-2x5’ Palpate!
∑ 0x 2-3x30’’ cold! No, cos of acupressure body points yesterday
∑ 0x 1-2x11’ breath-hold!
∑ 0x ? 1-2x4’ workout!
∑ 1x /? 10’ olive oil on hands!
Timing: Premeditate work!
Docs/Diagnoses:

Abbreviations

AT = Autogenic Training, cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up lbu: lower back unrest, p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point

[JayCS]

2021-04-15, Thursday

FEELING Well % / Pain 0-7 DOING

Sleep: 80% / 2 ∑ 9h05, up 8x /? (Feel best in bed ; alternate sleep & doze nights? )
Activities: 70% / 2 ∑ 5h05… (live-work 2h55 digi-work 1h40 sports 50’) /?
Interestingly different feverishness at work (like Nov/Dec): Mask After how long
Treatment: 70 % / 2 for 2h ∑ 4h38 (cryo/APM 1h45, self 2h53)
GABA 1st: Prickly lips & face for 5’ shortly after, strong sudden bowel movement, take 45’ after the last meal, 30’ before sleep. To take together with glutamic acid, altho this is often contained in meals. Or with passioflora. Sort of tingling-fluey all over, strange feeling, esp. inside of the mouth (not outside, like after 5’ for 5’.)

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Sleep 80% / 2 21:45- doze/AT work-ideas 22:40i5’ (work) → cold shower doze/AT fibro-work-ideas → 23:20 1x 750mg GABA (since ashwagandha might be a thyroid-problem). BTW self-hypnosis/jaw relax before AT leads to sigh-breaths and yawning every time! Dozing with only a bit of AT, hoping the GABA will do its work. Doesn’t, just prickly lips & face for 5’ shortly after. 1:10p maybe a bit more drugged, strong sudden bowel movement (side effect). Just read up: not good if epilepsy at least 45’ after the last meal, 30’ before sleep, did that. To take together with glutamic acid, altho this is often contained in meals. Or with passioflora. Sort of tingling-fluey all over, strange feeling, esp. inside of the mouth (not outside, like after 5’ for 5’.) Feel like Dr. Jekyll. Taken both 2x330mg glutamin and passioflora 2x300mg. OK, when’s the seizure gonna come? 20’ 1:30 back to bed. self-hypnosis / relaxed / autogenic training, counted down from 100 to 0 with every breath out, first deep-breathing 100-50, harder pulse, then from 50-0, soft pulse. Body slightly drugged, head clear. Almost no distracting thoughts. But no sleep inclination apart from 2x10’’. 2:00 Try another 30’’-FCS, again with eyes closed and ear plugs in. Dry mouth → gel & lipstick. Lavender/sleep balm on chest. 4:15p Dozing / AT again ?30’ then a CD ‘Children dreaming’ with babies googling I’d never tried - dreadful. Oh, I thought I’d just only dozed, apparently not, then I’ll try to carry on… doze 4:50 gurgling belly, hungrybut soy milk is enough. HWB (‘WWB’) 25’ Dozing, then sleeping. 7:35p No stiffness, no seizure, no drowsiness or numbness, no further side effects aside from tingling, bowel movement & stronger pulse at the beginning like belly ache or breathing problems.
21:45-7:35=2h15+7h35=9h50-1h15 = 8h35, up 7x, despite GABA, sleep 2h30. 7:35p.fw 8:05-35 = +30’ = 9h05 9:25 My wife says I have dark circles, but look fairly good today.
80% / 2 9:40 Fibro-work 40’ 10:20 workout 10:30 premeditate work. bp 136/76 84 after workout 10:35 starting work. 12:30 (bit of stress at 11h)
60% 3 stress 11h, but soon
70% 2 eat, cryo 13:15 acupressure: right hand, 15:15 cycle/train/work, work, cycle train/talk, no table tennis work = 15:30-18:40-30:2h40 (digi-work in xls) 19:00 breath+fibro 19:30 drink & eat

Development: ()
Focus on and increase self-treatments - sequenced / for when best:
Sleep Timing: Ate 18:00-20:30 , bedtime 21:45 sleep-breaks <5’ , HWB (4:00?) (Did my best )

1. ∑ 2h night “2h” day 30’ AT Night, meals.
2. ∑ 5’ 1-2x5’ Palpate! First thing.
3. ∑ 7’ 1-2x4’ workout! Second thing. 10:20-10:30
4. ∑ 2h15 Fibro-work <4h 15’, 7:30:25’ 30’ 5’ 9:40:40’ 19:05:20’ ∑ 2h15
5. ∑ 10’ Timing: Premeditate work! 5’ before work
6. ∑ 1x 1-2x11’ breath-hold! After strain.
7. ∑ 3x 2-3x30’’ cold! For sleep; after strain.
8. ∑ 6’ 5x1’ Stretch Legs! In between.
9. ∑ 6’ 5’ Neck! (slp) Evening. Immediate twist-stretch in bed.
10. ∑ 20’ 20’ Yoga! (slp) Evening.
11. ∑ 1x 10’ olive oil with sugar on hands! Evening.
    Docs/Diagnoses: Remember to ask endocrinologist about selenium and ashgawandha (and GABA?)

Abbreviations

AT = Autogenic Training, cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up lbu: lower back unrest, p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point

[JayCS]

2021-04-16, Friday - Shorter night, brilliant day - is that the GABA?

FEELING Well % / Pain 0-7 DOING

Sleep: 80% / 2 ∑ 8h50, 4x up (40’):
GABA plus glutamic acid plus passiflora half an hour before bedtime for the 2nd time
Hardly any side effects: dry mouth, slight belly pressure-pain, slightly feverish-squeamish.
Activities: 90% / 1 ∑ 5h15 (digi-work 3h15 sports 2h shop 0h)
Treatment: 90% / 1 ∑ 1h… (APM h, self h)

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Sleep: After going to work and taking GABA cd be good. But tomorrow?
80% / 2 21:30 0:45!p.fw10’ 1:30i25’ 5:15!p doze 6:00w 8h30-40=7h50 My eyes don’t want to get up, my body does. -6:35 Now my eyes do too. +30 = 8h20, up 4x (40’) Let’s see how it goes. work 8:40 10’ First fibro-work, then 3h15 digi-Work incl. phoning. 13:15 Still OK, tho I may be overdoing things, no breaks, not enough change of position, too much flow. Tired eyes. 13:15 Fibro-work 30’. Eat. Table tennis 8:0, no breaks, no problems! Work 10’ 17:15-17:35’ 17:45 Grandchild playground etc. 45’ action without breaks!

Development: ()
Focus on increasing self-treatments:
Sleep Timing: Eat 19:00 , 20:30 GABA bed 21:30 sleep-breaks <5’ , HWB
0. GABA side effects: No tingling any more, just 0:05 dry mouth → 2xgel/lipstick. 5:30 slight belly pressure-pain 5:15 & 6:00 Ever so slightly feverish-squeamish-ill.

1. ∑ 30’ night 30’, day 30’ AT Night, meals.
2. 1x 1-2x5’ Palpate! First thing.
3. 0h *1-2x4’ Grandchild instead of workout!
4. ∑ 4h10 Fibro-work <4h all the time. 0:55:10’ < at night! 6:35-7:40 8:10-8:20=10’ 8:30-9:30-10=50’ +5’ 9:40-10:00=20’ 13:15-45:30’ 14:35-45=10’ 16:30-17:10 =4h +10’
5. ∑ 0h10 Premeditate work! Used templates, but not enough pre-m.
6. 11’ / *1-2x11’ breath-hold! not properly, too distracted.
7. Cold showering not possible due to body-acupressure yesterday.
8. 3’* 5x1’ Stretch Legs! In between.
9. 3’ 5’ Neck! (slp) Evening.
10. 10’ 20’ Yoga! (slp) Evening.
11. 10’ 10’ Hands! Evening
    Docs/Diagnoses:

Abbreviations

AT = Autogenic Training, cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up lbu: lower back unrest, p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point

[JayCS]

2021-04-17, Saturday - On the 3rd Day of GABA … 3rd GOOD DAY!

FEELING Well % / Pain 0-7 DOING

Sleep: 80% / 2 ∑ 9h35, 3x up (15’) :
3rd time GABA + Glutamine + Passioflora before bed: Again - less stiffness
BTW: I’d eaten a whole old, mild orange 2 days ago: No problems with hunger at night.
Activities: 90%/1-100%/0 ∑ 2h10 (sports 1h30 shop 0h40)
Treatment: 90% / 2 ∑ 1h (APM 0h, self 1h, GABA+)

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
80%/2 Sleep 22:00 23:45p Very dry mouth again → dry mouth gel 2:20p No stiffness, slightly squeamish. Bit awake in between, but don’t need to get up. 5:05p Slightly stiff, but no need to twist-stretch. Clotted nose right & left. 2+7:50 = 9:50-15, 3x up (15’)= 9:35
7:50- fibro-work off and on -9:05 … 10:40 cycle table tennis 5:3 cycle -11:50. Lots of fibro-work…
90%/1, sometimes 100%/0, after activity I’m sometimes getting a bit of Ache & feverish-feeling.

Development: ()
Improving self-treatments, summarized:
Timing: Eat 19:00, bed 22:00, breaks <5’ , HWB unnec. (left heating on)
: 5’ Palpated. 7’ workout, 5’ Neck, 11’ breath-hold-ex, 20’ AT (chatting), 15’ Yoga, 1’ stretch
warm/cold shower - but cold weather & doing a lot bad muscle tone at table tennis 5:3. Watch it!
∑ 6h15 < Fibro-work 7:50:15’ 8:15:40’ 8:50:10’ 9:20:20’ 5’ 11:50:1h 14:30:10’ 14:57-17:25:2h30 10’ 19:10:10’ 18:53: Can’t edit any more, 7h?!? 19:25:15’ +30’ = 6h15
Changed this ‘Gaba’-thread into a GABA&Co.-resource-thread: GABA & derivatives, gabapentin (Neurontin), pregabalin (Lyrica), phenibut, baclofen, picamilon
Premeditate work: decided not to do any
Hands!

Docs/Diagnoses:

Abbreviations

AT = Autogenic Training, cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up lbu: lower back unrest, p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point

[JayCS]

2021-04-18, Sunday - On the Fourth Day of GABA … FOURTH GOOD DAY!

FEELING Well % / Pain 0-7 DOING

Sleep: 90 % / 1 ∑ 8h15, 4x up (50’): (yucky vivid dream)
Activities: 80 % / 2 ∑ 4h10 (digi-work 3h10 sports 1h)
Treatment: 90% / 1 ∑ 1h (self 1h)
GABA-effects: no side effects (mouth gel before sleep). 1:55 leg kicked back, like in a dream standing at a cash terminal. RLS or self fulfilling prophecy? 4:45:25’ Harry Potter type dreams - yucky feeling, esp. after bowel movement.

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Sleep
22:00- 00:35p 100% / 1 almost no stiffness, no side effects (mouth gel before sleep). 1:55 leg kicked back, like in a dream standing at a cash terminal. RLS or self fulfilling prophecy? Bit dozy. 4:45:25’ Harry Potter type dreams - yucky feeling, esp. after bowel movement. Good to take the HWB. Side effects of GABA! (Fibrowork 10’ as I can edit again after 7h of waiting…) dozing 5:40:15’ dozing/i -7:15 9h15-5-5-25-15=8h15. Praps continue…
90% / 2 no stiffness, bit tense, capable of loosening up tho. Exercises?
→ 60% / 4 Fibro work 7:15-9:45 =2h30 Working myself down writing my complete timeline, but very helpful idea for seeing the big problems and development, the big picture.
→ 80% / 2 continuing after workout and bonking my head on my chin-up bar. → 90% / 1 Housework, Table tennis 4:2, relaxed, 80% 3 14:10 socializing not that relaxed.

Development: ()
Improving self-treatments
Timing: Ate 19:45, 20:45 GABA+2 22:00 bed & dry mouth gel 21:00, breaks <5’, HWB
∑ 4h55 /? Fibro-work: 4:55:10’ 7:15-9:45:2h30 9:50:5’ 10:30:20’ grr: +70’? 14:40-15:20=40’ = 4h55
Excited about ideas → carried away → less sleep, strain on my body, no breaks.
The gabber-GABA-man : high excitability → high muscle tone → pain & fatigue…
I may need to balance & channel my energy more, even when self-caring, like here.
In that sense autogenic training may still be hack #1, and GABA only hack #2, twist-stretching #3…
Workout, Palpate, 1 cold shower, yoga .
AT, Premeditate work, breath-hold, Stretch, Neck, Hands
Docs/Diagnoses:

Abbreviations

AT = Autogenic Training, cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up lbu: lower back unrest, p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point

[Freedom]

Hi JayCS! I need to go back and read your daily blogs these last 10 days. I scanned them. Sorry you’re not feeling well. Just one thing, are you taking Atorvastatin? I’m hearing more and more that “statins” can have some unpleasant side effects. You might want to look into some studies about them and talk to your doctor. Hope you feel better soon!

[JayCS]

Hi Freedom, thank you! As I write so much that I sometimes don’t know where I am myself I’ve decided to do a separate thread with a very short summary for me and anyone else. Here you can now see quicker that I’ve been feeling great again suddenly, after taking GABA (again, this time together with passioflora and glutaminic acid).

Yes, you’re right about statins, they can lead to muscular pain for instance, something all my docs & I have been very aware of from the start, so I’m taking the least amount of atorvastatin I can, 20mg. I however didn’t see any increase in muscle pain at all upon first taking 20mg, then going up to 40mg, then down again, so I’m pretty sure it’s safe for me.
I also checked which of my meds can cause sleep need, tiredness & drowsiness, because that was a big problem last year with amitriptyline and in the last few weeks from CBD oil and melatonin. I’ve realized that 3 of my 5 blood meds (lercanidipine for blood pressure, ezetimib and atorvastatin for blood fats) and selene for my thyroid can . Knowing it’s dangerous for me to disregard my blood fats, altho my extreme diet has got a handle on them, I started with lercanidipine and got the OK from my docs to take double candesartan instead, which has almost no side effects. As I stopped it and selene (my thyroid is OK at the moment) at the same time as starting GABA, I’m not sure if that has a part in feeling well. So I may be experimenting putting them on again after a while, just to know…
Feeling so good now at least seems to show fairly clearly that it’s not the blood fat meds after all.
Thanks again for your ideas!

[JayCS]

2021-04-19, Monday On the Fifth Day of GABA … FIFTH GOOD DAY!

FEELING Well % / Pain 0-7 DOING

Sleep: 80% / 2 ∑ 10h, 3x up (15’) (why so long?)
Activities: % / ∑ h… (6h20 work, 1h40 sports)
Treatment: 90% / 1 ∑ 1h… (self)
Side effects of GABA+2? at night: Dry mouth, vivid dreams, nose clot, ?!severe but short nose bleed (RR: 138/73 59) (bleeding)

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
90% / 1 Sleep 21:30- 0:05p 1:50p dry mouth → gel & clotted nose → oils 4:50 dry mouth → gel, nose OK. Dreams somewhat unnerving, but controlable. 5:05p cold → HWB -7:45 10h15-15’, 3x up (15’). Nose bleed Short Fibro-Work, then digi-work 1h15 getting pretty strained → cold shower, workout. work: digi&live 4h25
cycling 4x8’+2x5’=42’, 1h table tennis 5:1 music lesson & prep 1h15
18:20 tiring due to relaxing. Hard to get a balance. Actually I’d still need to work a bit… My wife just asked me to take care, however good I may feel my face still looks yellow-white-grey.
19:20 Work - 21:05

Development: ()
Improving self-treatments:
Timing : Ate 18:30, GABA+2 21:00, bed & 2xgel 21:30, breaks <5’, HWB.
Palpated 2’, workout 7’, cold 1x, breath 11’, neck 3’, autogTr 6’, yoga 7’, stretch 2’, premeditate 2’
∑ 1h20 < Fibro Night:5’ 7:45-8:25:40’ 14:10:10’ 17:15:5’ 18:25:5’ 21:10:15’

Abbreviations

AT = Autogenic Training, cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up lbu: lower back unrest, p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point

[JayCS]

2021-04-20, Tuesday. On the Sixth Day of GABA (+ Glutamin + Passioflora)… SIXTH GOOD DAY

FEELING Well % / Pain 0-7 DOING

Sleep: 90% / 1 ∑10h20, 4x up (25’) (2nd time so long?)
Activities: 90%/1 → 70%/2 ∑ 4h30 (work 3h sports 1h30)
Treatment: 80% / 2 ∑ 3h… (cryo+APM, self 1h)
Effects of GABA+2: Good like before sleep/wake-wise, not stiff, only side effect: dry mouth. No nose bleed. No weight gain: 79kg. Bit of Ache and stiffness in the evening. Still long sleep & tired early.
Effects of acupressure (1h45 today!): Felt good & free, except knees, esp. right.

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
90% / 1 Sleep 21:30- 23:55p 1:45p.i10’ 3:31p 6:50p -7:50 2:30+7:50=10h20, 4x up (25’), Why long again? First hard getting up, but upon deciding fairly awake fairly quickly.
90% / 1 most of the day, but
70% / 3 after a 1h work video conference in the evening, the cool evening got me down.

Development:
Improving self-treatments:
Timing: Eat 19:00, GABA+2, 21:00 bed & dry mouth gel 21:25, breaks <5’ , HWB
Basics: Palpate, Workout, warm-cold shower, Autogenic training, Neck, Yoga, Premeditated work, Fibro-work 1h15
breath-hold, Stretch*
Fibro-work: 1:45:10’ 7:50-8:15:25’ 8:45:5’ 20:45-21:20:35’ = 1h15

Abbreviations

AT = Autogenic Training, cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up lbu: lower back unrest, p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point

[JayCS]

2021-04-21, Wednesday

FEELING Well % / Pain 0-7 DOING

Sleep: 60%/1 → 70%/2 ∑ 9h45, up 3x (50’)
Activities: 90%/1 (70%/2 after stint of a few hours of work → FCS & break) ∑ 5h25 (digi-work 3h, sports 1h45, shop 40’)
Treatment: 90%/1 ∑ h… (self 1h)
Effects of GABA+2: 23:55 bit ‘ill’-fluey-feverish, 1:48 confusing sad dream: yucky feeling. Mouth dryness OK, no gel! How do I get bad feeling down quicker? Anti-nightmare-imagery? Not too long dozing after. Some Ache/stiffness in the evening, but not at night or in the morning.
Effects of acupressure: Right knee again at night. Intermittent full breathing-in good.

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Sleep 21:30- 23:55p bit ‘ill’-fluey-feverish 60% / 1 1:48 confusing sad dream 60% / 1 → 35’ fibro-work, 5:25p/fw10’ too long that ‘late’ -8:05 2h30+8h05-50 = 9h45, up 3x (50’)
90%/1 8:05 fibro-work 8:40 work, body 10:25 fw, work only 2h40 → 70%/2 so cold & break → 90%/1 Stretching whatever when it hurts works (neck legs). table tennis 5:3 (wind) with 15’ back yoga in between, then 2 shops 40’. AuTr. Mails lying down.

Development: ()
Improving self-treatments:
Ate 19:20, GABA+2 20:40, bed 21:25, breaks <5’, HWB, Palpate, Workout, Yoga, AuTr, Premeditate work Fibro-work: 1:55:30’ 5:25:5’ 8:05:35’ 10:25:15’ 17:10:20’ 17:35:5’ 19:45:25’ = 2h15
breath-hold, Stretch, Neck

Abbreviations

AT = Autogenic Training, cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up lbu: lower back unrest, p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point

[JayCS]

2021-04-22, Thursday

FEELING Well % / Pain 0-7 DOING

Sleep: % 80%/1 ∑9h30, up 3x (45’)
Activities: 90%/1 ∑ 4h55 (digi-work 3h25, sports 1h30 (no TT), (fibro-work 1h40))
Treatment: 90%/1 for x’ ∑ 1h45? (APM 1h15, self 30’?)
Effects of GABA+2: Short image of a tornado coming up during table tennis. 11:20 2nd nose bleed, slight. RR 123/64, 71. After hearing my son has CoV-suspicion → rapid test negative.
Effects of acupressure (focus on right knee/thigh): Light & free, except thigh skin. Breathing free.
Idea for ideas: Cut off thoughts with scissors or a chainsaw.

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Sleep
90%/1 21:55 bit of jaw pain → auTr! 23:30 ? (p) 1:38 ? (hot?) → fibro work → Try AuTr before FCS. 15’ 4:05 image of a tornado during table tennis. But AuTr seems to suffice. If need be: cut off thoughts with scissors or a chainsaw (suggestion of acupressurist). 35’ dozing after must’ve turned to sleep → 8:10 = 2h05+8h10-45=9h30, up 3x (45’) work, shop,
cycling 1h30. no table tennis, acupressure 1h15

Development: (/)
Improving self-treatments:
: Ate 20:00, GABA+2 20:45, bed not gel 21:55, breaks <5’, HWB unnec, AuTr, Palpate, Workout, Neck*
? Premeditate work, breath-hold, cold shower, Stretch, Neck, Yoga
Fibro-work 1:38:10’ 4:10:30’ slightly yucky feeling after, not from a dream but from too long break, too much fibro-work. But I can shove it on the dream before…
11:28:60’ = 1h40

Abbreviations

AT = Autogenic Training, cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep, TT table tennis.
Reasons for getting up lbu: lower back unrest, p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point

[JayCS]

2021-04-23, Friday

FEELING Well % / Pain 0-7 DOING

Sleep: 90%/1 ∑ 9h35, 4x up (40’) (sore throat )
Activities: 90%/1 ∑ 4h45 (digi-work 4h25 sports 20’) (fibro-work 2h40)
Treatment: 90%/1 1h
Effects of GABA+2: Hope my 2-4 focal seizures this evening aren’t a side effect. Actually GABA is sposed to stop seizures…
Effects of acupressure: Good, but stabs in right thigh at midday.

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Sleep
90%/1 despite the 1h40 cycling yesterday, 25’ shopping. Bed 22:20- 00:15p15’ fibro-work, sore throat like my son whose rapid CoV-test today was positive , feverish feeling no temperature. 2:20p.fw15’ sore throat → Marigold 5:30p sore throat → Warm water bottle → 7:00p -8:25 1h40+8h25-40=9h35, 4x up (40’). Sore throat was maybe cos of forgetting woolen socks over the 4 cotton pairs… HWB clotted nose, but a gentle peppermint type spray got that down too. Temperature up from 35,7 to 36,3°C, but I feel very warm from the HWB, and not feverish.
Work first from then on whole morning apart from going to get a lab CoV-test, pretty stressful, but with a few breaks 3h30.

Development:
Improving self-treatments:
Timing : bed 22:20 : Eat 20:00, GABA+2 20:50, breaks <5’, HWB
breath-hold, Yoga
AuTr, Palpate, Workout, Neck, Stretch, Premeditate work
Fibro-work 0:15:15’ 15:40-17:40 + 18:05:15’ 21:25:10’ =2h40
18:00 Not allowed out cos I’m waiting for a negative CoV-test. My wife’s is negative tho.
Still haven’t done workout etc…!

Abbreviations

AT = Autogenic Training, cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up lbu: lower back unrest, p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point

Sorted quite a bit of the treatment part of the reference-thread today.

[AussieMom]

Hi JSC!
Good luck on the test outcome! I’m glad your wife is well.
Hang in there, my friend.
AM

[JayCS]

2021-04-24, Saturday

FEELING Well % / Pain 0-7 DOING

Sleep: 90%/1 9h55, up 4x (1h15)
Activities: 90%/1 6h10 (digi-work 2h30 sports 30’ housework 3h10) (fw 3h10)
Treatment: 90%/1 self 1h
Effects of GABA+3: 23:10 Dream about sorting symptoms … in an old monastery… And a pet kangaroo with a block-headed Afro. No further seizures.

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Sleep
21:35- 23:15dr(p)5’ 0:51u.p 2:30 more unrest than usual 35’ 6:10 Ah, that’s better. 30’ → dozed, but -8:45 2h25+8h45-1h15 =9h55, up 4x (1h15)
btw jaw/tooth ache in the background - more during & after working again: only 1, but warning sign. Housework tidying up/cleaning 1h30+1h40 only back. Energy still there. Too much fw in the afternoon, but work too.

Development: ()
Improving self-treatments:
Timing Eat 19:30, GABA+2 20:50, bed 21:35, breaks, palpate, Workout
? AuTr, premeditate work, cold shower, Stretch, Neck, Yoga
: breath-hold
Fibro-work: 3:00:5’ 6:15:25’ 9:35-10:40 15:10-16:10=60’ 18:40-19:15=35’ = 3h10

[JayCS]

2021-04-25, Sunday

FEELING Well % / Pain 0-7 DOING

Sleep: 90%/1 9h45, up 3x (15’)
Activities: 70%/2->80%/1 7h20 (digi-work 6h20 sports 1h) (fw 30’) (Amount of housework yesterday, amount of work today?)
Treatment: 80%/1 self 30’
Effects of GABA+3: I keep forgetting I’ve also been taking Mg in the evenings. Maybe I shd take the GABA earlier as getting to sleep wasn’t too good at first. When my acupressurist argues GABA is artificial, try less or without if the side effects are too bad, she’s forgetting how much it is helping me in the daytime, not just at night.
Side effect ?Clotted nose. Or was the bedroom just too cold? I always find it hard to decide if I’m too hot or too cold. As a HWB bottle helped I think too cold. Fuzzy vision?

Feeling/Action-details, thoughts, stories...: CoV-negative... lots of work, still good

(Well in % / Pain incl. Gut 0-10) (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Sleep
90%/1 21:25- dozing 23:35p 2:20p 6:30 clotted nose → blowing 50% & HWB 75% open -7:25 → getting up, cold → nose open. 2h35+7h25-15=9h45, up 3x (15’)
70%/2 8:30 Not feeling too good at the moment, bit cold (no sun), bit feverish, bit weak, bit stiffer, did workout all the same, after: RR & ° OK. Enjoyed 5’ warm & cold shower →
80%/1 As all my 3 pairs of woolen socks I got for Christmas have now got big holes and it’s a bit warmer, I’ve gone back to putting a 4th pair of organic cotton socks on. Still cold feet → HWB
Got to try getting up earlier. Still no CoV-result, but at least no symptoms. Hot pad on feet. Fibro-Work. Mails. Work 10:05-16:00, about 6h… In between: CoV negative Plus housework and another 1h. 19:30 IBSD - what from? Chocolate yesterday?!

Improving self-treatments ():
Eat 17:30, GABA+2 20:50, bed 21:20, breaks <5’, HWB, Palpate, Workout, cold shower,
Autogenic, Premeditate work, breath-hold, Stretch, Neck, Yoga
Fibro-work: 9:15:30’

Abbreviations

AT = Autogenic Training, cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up lbu: lower back unrest, p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point

[JayCS]

2021-04-26, Monday - still pretty good, but dead tired; live work despite lockdown, bit stressful first

FEELING Well % / Pain 0-7 DOING

Sleep: 90%/1 9h15, up 4x (55’)+1h=10h15
Activities: 80%/1 2h40 (live-work 2h, sports 40’) (fw 30’?) Feverish during live work. Very tired after → 1h nap. Jaw pain starting up.
Treatment: 80%/1 self 1h
Effects of ?GABA+3: Dead tired all day, despite taking it earlier yesterday.

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
Sleep 21:25- 23:05 top-of-calves-crampy-feeling & thigh pain left front → arnica cream (due to brisk walk 19:00:45’ ), heartburn (ate too late) → soy milk 0:35 heartburn → Gastritol.40’ 2:45 5:55p -7:35 up for work already… 2h35+7h35-55=9h15, up 4x (55’)
New type of work was stressful, but just gotta get used to it. Better is I don’t have to prepare anything. Worse is I have to get up at 7:45 3 days a week, despite lockdown, have to use trains (but they aren’t at all full at that time), have contact to people.
Table tennis 2:2, maybe wind, maybe tired. After the few days quarantine.

Fibro-Work 30’?

Development:
Improving self-treatments:
Timing, Palpating, Workout, cold shower, Stretch, Neck, Yoga, Fibro-work, AuTr
breath-hold
Fibro-work: 30’?
Docs/Diagnoses: Skin, dermatologist: 3 warty things and 3 nails all “OK”, one warty thing was iced away a bit, one nail must have been an injury, another an inflammation, nothing unusual, no sign of psoriatic arthritis, 1 periodic lump to the right of my nose is probably a wen/cyst which periodically fills with inflammation stuff, forgot to ask what to do.

Abbreviations

AT = Autogenic Training, cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up lbu: lower back unrest, p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point

[AussieMom]

@JayCS

Effects of GABA+2: 23:10 Dream about sorting symptoms … in an old monastery… And a pet kangaroo with a block-headed Afro. No further seizures.

LOL - This cracked me up!!! Only YOU, JCS! Only you!

[JayCS]

2021-04-27, Tuesday - Day 2 of Live work - good, despite wonky sleep till ear plugs (despite no noise)

FEELING Well % / Pain 0-7 DOING

Sleep: 80%/2 9h05, up 3x (1h30)
Activities: 90%/1 4h30 (live-work 3h sports 1h shop 30’)(fibro-work 1h40)
Treatment: 90%/1 2h30 (APM 2h, self 30’)
Effects of GABA+3: Inner disturbance at night kept me from sleeping until I added EAR PLUGS, altho there were no noises. Dream: In an old wooden windmill I had to prevent my lunatic dad from trying to - longwindedly & narrowing down - trick my son into being killed, as he thought he’d done something wrong, which he hadn’t tho (Hmm, similar to the ‘video’ the other ∑night where I was having to sacrifice myself to save him - I’m obviously ambivalent towards my son at the mo… and I know why, too…). Dramatic tidal waves & other special effects included. Didn’t disturb or yuck me, quite entertaining actually, tooth ache down
Effects of acupressure: Did mainly hands, they & arms were & still are a bit better 2h later. More energy.
Monday night jaw pain from work stress → AuTr, belly ache from eating an apple in the evening → Gastritol, hot spelt cushion. OK then, and on Tuesday.

Feeling/Action-details

(Well in % / Pain incl. Gut 0-10) (Sleep, Fibro-‘Work’, Work Digi & Live, Activity, Treatment)
90%/1 Sleep 21:15- 1:05p40’ (fw 49’) dozy 2:37i40’ doze. EAR PLUGS HELPED QUICKLY! 7:10p.fw10’ EYE MASK -7:50 2h45+7h50-1h30**=9h05, up 3x (1h30)** Up. Live work. Acupressure.

Improving self-treatments : Timing, AuTr, Palpate, Workout, cold shower, Neck, Fibro-work 1h40 (1:05:40’ 7:10:10’ 17:20:50’? = 1h40), Stretch
breath-hold, Yoga*

Abbreviations

AT/AuTr = Autogenic Training, cold/FCS = Flash Cold Shower (20’’) , ex = exercises, HWB = Hot water bottle, breath-hold/WHM-B-H = Wim Hof Method Breath-Holding, slp = sleep.
Reasons for getting up lbu: lower back unrest, p: pee, i: ideas. PsA = Psoriatic Arthritis-suspicion
fw = fibro-work
Pain 7 = crying (/out) point