Petunia Girl, what helps control your pain-the meds?
I CAN REMEMBER WHEN THEY SAID TO ME: "ON YOU LOOK SO GOOD HOW CAN YOU BE SO SICK".
THE HELL WITH PEOPLE, YOU NEED SELF CONFIDENCE AND NOT LISTEN TO SOME PEOPLE, JUST REMEMBER THEY ARE NOT WALKING IN YOUR SHOES!!!!!!! SO, LISTEN TO ME. YOU HAVE NOTHING TO PROVE TO ANYONE. YOU KNOW HOW YOU FEEL. THAT IS ALL THAT COUNTS. I HAVE NOT SEE A DOCTOR FOR MY LUPUS. JUST MY INTERNAL MEDICINE DR. AND MY PAIN MGR. DR.
SO, TAKE CARE CHIN UP AND WALK AWAY.
ALWAYS MICHELE AND RUSH S.D.
Hi,
Awe I felt exactly the way you feel when I was first diagnosed...my family doubting my illness...like ok...~I just love laying in bed on a weekend pretending to be in pain~ they will never get it unless they educate themselfs or have it ...so don't let anyone bug you about that..all that matters is your opinion..and how you feel..and how you are going to manage to feel better. Don't guestion yourself..don't even start that ocd thingy...I almost did...it doesn't get you anywhere...you have your doctors diagnose to prove that you have an illness..so just leave it at that..and try to feel better. I hate the nights..the restlessness..and can't sleep...even tho I take sleeping pills..so whatever..I stay up all night and sleep from 6am until 1pm ...works for me...at night is when I get energy and feel more positive about my life. I worry about issues that shouldn't be issues as well...but to us that are ill..thats just normal I think because for us to get anything done..it takes alot...we have to talk ourselves into it. Stairs are hard for me as well...every year I develop a new symptom..this last year I fell down alot and walked into walls...now my feet and hands get really swollen...its crazy..this damn disease...did you know that just two years ago it was finally recognized as a disease..a serious disease..before docs and other professionals did think it was all in our minds. Christmas was hard for me too this year...everything seems hard..unless I am taking my pain meds regularly...and they make me feel so numb to the world..and my body...its awful...!!! One thing I have learnt since I was diagnosed with Fibro in 2005...is to screw what everyone else thinks...it only matters how you think and feel..so forget them. I know the pain is hard to describe...mine comes in like tidal waves...starts at my feet and slowly goes up until it gets to my neck..then I have a 5 minute breather then it starts again..a terrible, sickening, biting, skin aching pain...I have lupus in my heart as well..and my heart jumps, ticks, tocks, all over the place..and the ache is awful...just horrible this disease...god I hate it...I just joined this site maybe a month ago..and I like it...its the first one..that is really alot of help to me...just chatting to others who have what I have...feels better. So ya...look me up if you want to be friends...and if you want to vent to me...write to me...I am a veterinarian Nurse...and a crisis counselor..but can't work...I do computer work for a friend who has websites...shes an artist...one day I would love to work with animals again..that is my calling my passion...on Facebook I am a huge animal activist...but god it makes me angry and so so sad. Try not to worry so much...it will make you worse...and do not guestion yourself...and please feel free to message me...I have had this disease since 2000..diagnosed in 2005...so I know alot about it now...ok....I wish you a peaceful fun weekend...be safe!!! Jesseblue oxo