It makes perfect sense to me! I also among other things have been diagnosed with ADHD and have sensory integration disorder. The input sometimes comes in right but goes out wrong or comes in wrong and goes out wrong or doesn't go in at all! People generally don't understand it and although I have had to learn many accommodations to function in the world, it takes an awful lot of energy to just get through a day and do the things that come easily to others like drive and deal with sounds and lights and too much stimulation at all times. But at other times I need stimulation or I get bored and restless, it is a fine balance.
As I understand it, this is why meditation or calming music is so helpful. When the relaxation effect of the parasympathetic system takes over, the sympathetic system has to release its effect. I play relaxation music throughout the house on bad days. It really helps!
I love reading the abstracts on pubmed because they show the research that is going on. I understand most of the medical info (though not all), and it gives me hope. They really are stumped, but trying hard to figure it out! It's wonderful that fibro is no longer ignored!
Yes! What you say makes complete sense to me! Mike, you have hit on some very important points - especially the point about the number of system mismatches and how they affect our ability to function!
I have one child with ADD and one with ADHD, both with perceptual-motor disorders.It takes so much energy to communicate that one child talks in excess and the other hardly talks at all. I think it's not only exhausting for them, but they see the world in a different way and have to translate it before they can communicate. That adds to the exhaustion! Does this make sense?
Okay I have a question. It’s is supposedly triggered by a traumatic life event in our mid 20’s-30’s correct ? I watched my mother suffer through this from it being EBV Lupus to Fibro. I know her event. And I swore never for myself. I know my traumatic event. So what’s everyone else have to say? And how many have direct family that are carriers ?
Trauma, long-term stress, chemical sensitivity, and many other factors play into how one person can end up with fibro, yet another doesn't.
In my case, I suspect my mother had it, and I am concerned that my daughter may be showing beginning signs. However, from a dysregulation syndrome perspective, my children were born in the "perfect storm" of genetics. My husband has ADD, I have allergies/asthma, chemical sensitivity, weather migraines, probably family history of fibro/chemical sensitivity. My children seem to have inherited all of it. I also saw chemical sensitivity in my father and his mother. Signs of undiagnosed fibro follow my mother's line.
I think there is a genetic predisposition, but life events push some into full expression of fibro. This seems to be the gist of the medical readings I have done as well on pubmed, etc.
I have had several but it didn't get really bad until after being rear ended twice. It started in my neck and shoulders and I have read since then that many people have it start there. I thought it was the rear ending because the doc said so. But then it spread and got worse and someone I think might have told me about it and so I started researching it, filled out an online questionnaire and went to a Rheumatologist. I don't have anyone in my family that I know of. But my Mom had MS and Dad has Post Polio so who knows?
Your Mom having MS puts you in the predisposition place, autoimmune is in your genetic possibility, and mine as well, My third time being rear ended is what really kicked mine into high gear. I just could never get over it no matter what I did!
I always wondered about that and never have found any info that it could be part of it. I am a HUGE believer in emotional issues manifesting as physical and so have worked on it tremendously and continue to do so.
You are so right! Emotional can manifest into physical, all part of the stress response of the body, the ONE UNIT, that seems to get lost in specialized medicine societies. That we are ONE UNIT!!
Each and every thing mentioned is just another card in the complete deck of Fibromyalgia. It's so multi-faceted and complex.
If you google predispositon to autoimmune, it will bring up all kinds of genetic information on it.
Hope you are doing well, Susan, and fighting the good fight!
Wishing you well,
SK
I'm getting ready to take a LONG, HOT bubble bath, see if I can get some relief with this aching back!
yes, Pall in his book talks about a traumatic event such as an emotional issue, or a motor vehicle accident or plane crash or an infection, or some sort of toxin, either an infection or radiation or insecticide, some thing that actually overwhelms the body and it is overwhelmed. Mine was an emotional family issue, but most people seem to know what triggered their condition. it seems to me that it’s the body’s way of trying to cope with an overwhelming force, which effects the whole body every cell, including the adrenal and thyroid glands so probably the pituitary as well given that it is the governing gland that influences the endocrine system. My thoughts Barb.
Certainly possible Barb. Too bad no one agrees on what causes it and no money I don't think being put into it and so no known cure. But it does seem to be generally accepted that some trauma may cause it. Trauma whether physical or emotional (and of course with the mind body connection it is always both) effects the brain physically as it does everything else too.
Trauma of either type can affect the neural connections of the brain (neuroplasticity). Since the brain controls everything, changes in the brain can show up anywhere in any way. This is why it is so important to find ways to de-stress the body and mind, since they work together.
Ihave just received a tweet from one of my followers, by Greg and Linda Crowhurst. From the WPInstitute. Stone bird: the lived experience of Severe ME. 55 Reasons why people with Very Severe ME cannot access health care. You need to google www. stonebird.co.uk This is a worthwhile read although somewhat frightening. Barb