My Fibromyalgia journey

Support
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Hi, my name is Gianna. I have been coping with Fibromyalgia Syndrome since 2009. My journey has been a struggle. It began with the chronic pain all over my body. I have tried every treatment and therapy the Doctors, such as Rheumatologist, Epidemiologist, Internists, Physical Therapists, etc... could give me. I have been told that I am one of the most chronic cases they have seen. I have been to Germany, Africa, England, France, Italy, Austria, and in Virginia. Now I am in Alaska. I have out weighed my options and don't know what else can be done other than continue to cope.

Let me give you a brief run down of my day to day life. I have to use a wheelchair for mobilization because I cannot walk or stand for long periods of time because of the chronic pain in my hips, back, legs and feet. I can not even hold my own head up for a long time because of the chronic pain in my neck, it gets so tiring and heavy. I have Dementia as well. No one seems to know where this came from. I am 43 years old. My memory loss is declining. I have urinary incontinence at times. I have to have someone help me bathe, dress, comb my hair, cook, help take care of my home, etc. How did this happen? Why am I in this state. The only therapy that I can tolerate is water aerobics. when I am in the water I feel like me again. I can move freely with little pain and no assistance. My Nurse is with me now helping me to express myself through these words to you.

I am not writing for sympathy but for support. My day to day challenges are not easy. Sometimes I forget who my own husband is when he is lying next to me in bed or sitting by me while watching TV. He is very supportive and loves me very much. I am just saying it's not easy when you forget who your loved ones are and become scared or afraid thinking they are strangers. I even look in the mirror and don't know who I am at times. But I do want everyone to know that I will not give up and I won't let this get the best of me as long as I have fight in me. My moto will always be "I might have Fibromyalgia but Fibromyalgia will not have me."

Be Blessed

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That is a wonderful moto. I am glad you have people to help you.

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I do thank you for your support... Much Love G

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hi. i send you much love and HUGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGS

suzie

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I am so sorry for your suffering. I was diagnosed in 2009 as well. After seeing several different Doctors I was fortunate enough to find a wonderful Doctor. It has been trial and error, at times meds work, others times they don't. I have the Butran patches, which have helped me the most. Still time when nothing helps, and the fibro fog is thick! I applaude you for you wonderful outlook. Everyone should be so positive with a condition that is hard to put up with at time!

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suzie said:

hi. i send you much love and HUGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGS

suzie

Thanks So Much Suzie for All the Hugs.... U made my day it is always much needed.....

G

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Debbie said:

I am so sorry for your suffering. I was diagnosed in 2009 as well. After seeing several different Doctors I was fortunate enough to find a wonderful Doctor. It has been trial and error, at times meds work, others times they don't. I have the Butran patches, which have helped me the most. Still time when nothing helps, and the fibro fog is thick! I applaude you for you wonderful outlook. Everyone should be so positive with a condition that is hard to put up with at time!

Your thoughts are so much appreciated... Thank you! I always try my best to see the bright side of things no matter what I may be going through. I think about it like watching the same movie over and over again because my life is a repetition every day I wake up. I forget what happened the day before so like the movie it doesn't bother me if I keep asking the same questions over and over again or doing the same thing twice the movies I like are, most of the time good anyway.... LOL One of my other motos is to never say I am having a "Bad Day," always say I am having a "Good Day or Better Day." My heart goes out to you as well. Stay strong and do not give in.... Be a Fighter.... I know some times it may be hard and the days seem unbearable but you can make it through....

Stay Strong,

G

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purplebutterfly said:

That is a wonderful moto. I am glad you have people to help you.

Thank you so much.... and I like the screen name "purplebutterfly" it is beautiful...

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Inspiration, indeed Fibromyalgia does not have you! You may have many challenges with your Fibro, but you are a fighter and seem to me someone who faces her adversities. Thank you for sharing your story with us. We are here for your support always.
Laurie

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We live for the good moments and regardless of how bad it is there are always those good moments to look forward to. I am wishing you some good moments to look forward to. :slight_smile: