Hi Linda! I have been using it since Sept. 9th and it has helped me tremendously! I can’t take any of the fibro meds and of course doctors are reluctant to prescribe pain pills. My main complaint with fibro is the melancholy mood that seems to hang over us. I would cry everyday over nothing. I have no initiative to do anything and hated just sitting here so down.
My pain doctor hasn’t been very cooperative so I asked my daughter to go with me. I took her because I wanted her to hear and see how I have been treated. I knew she would tell me that she can’t do anything and I should go to Mayo Clinic. Sure enough - she did and was really rude about it. It was then I asked the doctor to check out the info online about LDN and how patients are seeing good results with use. She was reluctant but after spending about 15 minutes on the Internet she agreed to let me try it - going out in a limb she said!
She prescribed a 50 mg tablet so my insurance would cover it. Cost me $10. I knew that I could split it and dissolve it in distilled water mg to ml and refrigerate. If I was prescribed a compounded prescription I would have had to drive too far and it would cost a lot more. The 30 day supply should last me close to a year!
I noticed right off the bat how it affected my mood! I woke up with less brain fog and really enjoyed my morning coffee. My head was the clearest it had been in ages and the burning sensation in my hands and feet were gone! I believe that it takes the edge off that all over pain, similar to taking a Vicodin or similar. My husband has really noticed the difference, as have my two adult kids.
I was hesitant at first to try it but it has little to no side affects! That was my reason to not take a prescription antidepressant. So many side affects! I started taking the recommended dose of 4.5 ml and have lowered it to 3.8 ml, as in the beginning it did cause me to wake up more during the night. Not good, as I need my sleep! I know others have started at 1.5 ml and then increase it each week. That may be a better way to adjust to it. I started dreaming again and it has been great. I still have went through a few flares - and during them I wasn’t so depressed like I’ve been in the past.
If you google LDN there is information on the trials done on the drug and how it has helped the progression of MS in some patients, as well. I believe the site is www.LDN.org and there are YouTube videos on how to change it from a tablet to liquid solution. I would definitely read as much as you can on it before trying it and then consult with your doctor again with unanswered questions. What I found and think its a plus is if you have to stop taking it for some reason - no withdrawal symptoms.
If it wasn’t for this site and members talking about it, I would never have known to even check it out. I’m so thankful!!!