Dear Moonstonebright, I am so, so sorry you are having such a tough time finding good care. I have been lucky to live in a large city with it's suburbs and lots of hospitals and medical care, but my road has been very long and hard getting here. My symptoms started in early teens and I will be 72 later this month. I go back when everybody in the med.profession was telling me it was in my head. Then it was not a constant thing, but I was having flares which didn't last very long, mostly 8-10 days, and then I would function normally again. The tender points were always there. Life and it's stresses have taken their toll so now it is constant pain, stiffness and fatigue. My very fine primary believes me and we have a relationship based on mutual respect and consideration (even though he is a couple years younger than my son).
Keep trying to find better help, but watch out for all those painkillers. They might cause you other, bad problems. After 35 years of taking them I developed hyatal hernia and GERD and I would hate to see you get that also. I know something about UK health care, it is like Canadian care where my family lives and my younger brother has Fibro. He makes a lot of demands and noise and has been successful in getting attention paid to him, was able to go on disability a few years ago. You know "squiky wheel gets the grease" saying, so keep nagging and I wish you lots and lots of luck. Take care. Hugs, Vi
Hi Glori, I am rooting for you too, especially your artistic abilities. I too painted (oils) at one time until I became allergic to cleaning fluid. Mostly I sew, crochet, cross stitch and some other crafts. I don't know where you live or how old you are but I hope you will keep working on your insurance problem. I am lucky to live in USA and am retired so I have Medicare which pays for my health care. Now, if I could just get back to how I was feeling 15-20 years ago I could continue with all the activities I love so much. Here's hopping for both of us. Good luck, and soft hugs to you, Vi
Hi NIR, thanks for your "warnings" and advice. Never tried a "detox" but I almost hope that it is. I know better than to expect overnight results, just hope that slow and steady will get me there. Thank you, Hugs, Vi
The cold laser is GREAT! My chiropractor used it on a shoulder injury that got complicated with the FM and it really worked, as any form of deep touch was unbearable there. I'm going to start an IV vitamin/acupuncture regimen soon. I've seen good success with the protocol and am totally fed up with the amount of restrictions the FM is causing in my life! Plus, I've gained too much weight because I can't move around or exercise enough and I'm stretching at my clothing and don't want to go up another size. I've tried garcinia cambogia, but actually gained weight on it for the past week because it stimulates metabolism supposedly and now I think I'm eating more?( the only time I didn't have a weight problem was when I was exercising heavily and regularly) Sending healing to you all for a good positive progress!
Glad to hear this! Starting with a DO who only deals with CFS & FM treatment, insurance doesn't cover it :(, but desperate times call for desperate measures, feeling more optimistic, thanks for the heads up!