I always get so nervous about seeing doctors. I am both excited and nervous about this one. She is a ways away, but she is a fibromyalgia specialist who has actually taught at OHSU which is the big university hospital in Portland. I made the appointment in June and then I did some research on her. She seems to be a big deal in a big town.
I want to talk to her about my pain and fatigue with anticipation and anxiety. I want to ask her about Low Dose Naltrexone and of course my chronic fatigue. I want to explain all of my recent drug problems and let her know I have eliminated so many of them all by myself because my previous doc was not helpful. I'm not happy that I use so much clonazepam still. Oh, and not only does she advocated for LDN, but she also supports Marinol use. I wonder if I'm a good candidate for it??? I don't want to be prescribed more meds than I need.
She can also be my PCP which I am very excited about. How lucky am I?
But, I am so nervous. What else do I need to ask about?
That's great that she can be your primary care md to. With her being a specialist in fibro she may have a program that she will go over with you. I hope it is a great experience. Be sure to let us no. Sounds like you have your list going.
I have it going, but geeze, what am I forgetting? My brain is much clearer than two months ago and I'm still a blob. A big old, gaining weight fast blob. That's one! Why am I gaining weight with 200 less mg of lyrica a day? Thanks PB.
Well, here I am, at the Starbucks across the street from the doc. My hubby is working just up the street so it worked out excellent. I am nervous as all get out. No clonazepam yet. I took so much last night to get to sleep I think it's still in me.
Ok, so I'm going to ask about the new blood test. LDN, Marinol and anxiety. Maybe she will think I should go live on a tropical island somewhere!!! With internet and lots of books.
I got some bad news yesterday. My beautiful wayward daughter, who has always marched to the beat of her own drum. The one with our 4 wonderful grandsons. She and her boyfriend/partner discovered he has very aggressive cancer. Started in a kidney and is spread throughout his abdomen. Praying for a miracle here girlfriends. Ashley has been doing well working at her horse rescue and off of drugs for over a year. We want Dusty to pull through this. Aggressive treatment, including surgery, starts today.
It's hard for my brain to think of anything else. Keep them in your prayers my dear friends.
I love her, I love her, I love her! I want everyone to go to her. Read her book.FIGURING OUT FIBROMYALGIA, by GINEVRA LIPTAN, MD. I have started it and she makes such good sense. She is 38 and has fibromyalgia.
She takes one thing at a time (I like that). Says with me we will start with anxiety and we will talk about LDN at next visit. Because anxiety is my worst thing right now. She believes that clonazepam is not the best thing for sleep, but recommends a marinol cream applied lightly to the temples is a great remedy also recommends an herb which I will have to get back to you with.
She re-checked all my tender points for me and confirmed fm diagnosis. I needed that because I'm always so inside of my own head I was worried that this is all side effects of anxiety and depression. It is not, but it does contribute.