I have started a group for all of my friends who suffer hypermobility or EDS, and Fibro, please click on groups at the top of the page and you can select from there. It is open to all, please post discussions.
I do not suffer these, but wanted to open this group for my friends, so please use it, and help each other!
Please know that I was only allowed to invite 245 of my friends, whick stopped me in the 'k's, so please do not feel slighted, I have not had the opportunity to friend everyone yet either. Please know all are very welcome to join, even if you only think you have these, you are welcome!
This is a great idea and I sincerely hope that those of you with problems with hypermobility and EDS go to this group and share your experiences. It's amazing to see how many problems can pop up due to hypermobility.
Well, at least now there's a place I can direct people to when they talk about hypermobility and the excruciating pain they are in. It seems to me that those with hypermobility do tend to have much worse fibro pain, but that's just my own non-scientific observation.
I was diagnosed with Hypermobility when I got my FMS diagnoses as a kid. I'm glad to see this here. I find it interesting as Petunia Girl has said that those with it , like myself, have worse pain. I really can't say that for everyone I know, but out of those I know with fms like me , pain seems to be my biggest symptom. For my mom, who doesn't have hyper-mobility she does have pain (obviously) but fatigue is her biggest issue and for others I know its usually something else. So maybe it is true, i dunno. All I do know is there is never ever a break from pain. I feel all the time that i 've either ran a marathon or been hit by a car or something. I'm 31 and my joints ache and my jaw joint is so badly misshapen that ppl can see it sometimes when I talk. (Ive even accidently hung up the phone by the jaw joint going so far out it hits the button).
Lately i've had problems with my thumb joints locking in weird positions (which really hurts).