Hey, im sorry you have to deal with fibro, its a frustrating and annoying condition. It took over 6 doctors and 3 years for them to finally diagnose me. It started out just like how you described like i had the flu all the time or i would have weird headaches and weird joint pains. As time went on i developed more symptoms, my hands and my feet started to turn purple-ish and cold. I began to have trouble regulating my body temerature and i get really freezigg cold and then really hot. My stomach pains have been horrible especially because I have Crohnās disease and the inflammation aggravates it. But Iāve learned that as time goes on, it becomes your new normal. And itās hard for me to even think about because I donāt like the thought that my life wonāt be the same anymore, but there is some comfort found in knowing that itāll be okay. Try and do as much as you can because if you stop doing everything it will be much harder to get back in to it. It wonāt debilitate your life unless you make it. To a certain extent you just have to fight through the pain and your body will get use to it. Youāll find that as time passes, you might see some new symptoms occurring, and it might be unsettling at first but it will just add in to become part of your new normal. I havnt started PT yet, but Iāve heard from a lot of people that it helps. I hope things go well for you and I hope treatment helps.
Mara thank you for this note. You lived my spirits. I hope to have your positive thoughts one day. I wish you the very best for sure. Have a wonderful day.
Candy
I just got diagnosed with Fibromyalgia about 3 months ago. I have been through so many different tests and so much pain. The doctors donāt know anything about what I am going through. I started hurting about 9 months ago and have changed doctors because my doctor would not listen to me. Iāve been put on so many different medications. I can not find any relief at all. I have had to quit my job because I could not preform the duties required of me. Things have been so up and down in the past year. Since my divorce I have been in a world of pain physically and emotionally.
If anyone has any suggestions to help relieve some of this pain I would so greatful.
I need friends anyone want to chat ?
@Hopalopng (Wendy) I am so sorry you are going through all of that. I noticed you sent this message a few months ago and Iām just reading it now. Being diagnosed with Fibro is hard. Iāve noticed by talking to people here that the doctors in the middle states of the USA donāt know what Fibro is or how to treat it. Itās hard to find medications that work for you and you definitely need a doctor that is going to work with you. Iām glad you made the decision to switch doctors. The divorce your going through causes a lot of stress which Fibro eats up that stress and gives you a world of hurt. I am on Lyrica and it isnāt bad. Iāve noticed if I miss a dose I become very unwell. A lot of people on here are on Cymbalta but itās the worst drug in the world. My primary care had put me on it and it put me in a fog and even more depression. I told her about what was going on and she said she had taken all of her patients off the drug because she didnāt like how it interacted with them all including me. Since then I try to warn people of it. In any case try to take things one day at a time. Like I said I am on Lyrica but Iām also on pain medication. I have had other medical stuff so I went to my hospitals pain management clinic. Usually they donāt prescribe narcotics for patients with just fibromyalgia. Tramadol was a medication I was on which at the time it wasnāt considered a narcotic but I think they changed it. That medication helped me in the beginning. I also know when I sit in my home day after day and donāt go for any walk or exercise I will be sore all day. It is important to try and go for a little walk just to move the muscles. I hope things get better for you. Chatting about these things can help too. It helps me feel better when I help other people. Talk to you soon Wendy.
@Lynn7 I can always use another friend. Sure
Perhaps it is a related condition called Myofascial Pain Syndrome. I had a great deal of trouble with this 30 years ago. There is excellent reading material on it. I have had some doctors āblow it offā, but it does involve tight bumps under the skin that are very painful. As I vaguely recall, it seemed to have something to do with the Kreb;s cycle during poor sleep and magnesium deficiency. A well trained massage therapist can ābreak Upā the knots.
I do as well. My painful knots are near my spine on my upper back and neck area. Terribly painful.
Stay strong and try to keep smiling Iām new to this as well if you need to talk message me take care x
Yes I do the pain is unbearable x
A post was split to a new topic: "Cymbalta? Lyrica? Gabapentin? Iām confused
Hey Michaelyl
It looks like youāre steering this thread towards a medication discussion. No problem with that, but why donāt you start a new thread with a subject line that tells what itās about? That way you may attract some membersā attention to it.
On second thought, why donāt I just divert your post and start it for you, using my amazing admin powers ? Hope you donāt mind. I think I will call it "Cymbalta? Lyrica? Gabapentin? Iām confused."
And now Iāll use another one of my superpowers to give everyone a shortcut to it. Itās in the symptoms and treatment section. Shortcut to it: "Cymbalta? Lyrica? Gabapentin? I'm confused.
Hope you get some answers!
@jgideon identical to my painā¦
You are trying to think of the tens unit. I have oneā¦glad you mentioned it because I have v
Been suffering bad with the low back pain you talk about and forgot about my tens unit. I am going to start using it and see if it might help!
Hope you feel better @Starr1
Thank youā¦it is helping. So glad you brought it up because I completely forgot about mine
So easy to forget things. Sometimes I set reminders on my phone to help me out. That and I have Alexa which can do the same. I even have a daily planner lol. And I STILL forget things. I was just talking to another member in another thread about the same thing lol.
HAHAHAHA I can def relate. Savella has helped a little, but I still have trouble. If it wasnāt for my phone calendar, I would be in trouble𤪠also, just to update, my tens unit is helping my back alot. I wear it in the morning for about a half hour and it helps my pain most of the day!
I am so happy to hear you are getting some relief. Itās crazy how relief feels because you almost get a sense of normality. I hope it continues to improve your back pain. Yay!!
Hello there. I had to stop work as well. Just getting by was very hard physically. I was provided with home help which helped a lot. When I got a very bad pain point I have cortisone injections which got rid of it. I also took Dothiepin, codeine and paracetomol. The fatigue and pain was very debilitating. After 12 years and beginning walking very small distances and gradually increasing it began to go. I have been in remission for 10 years but now have osteoarthritis which is not nearly as bad. Donāt give up and try to avoid strong medications as the side effects are terrible. I also got irritable bowel syndrome with the fibro and have still got that. Life has certainly looked up since those terrible years. Good luck and take care.
Hi, Libby!
I agree with the ādonāt give upā part, but it is hard to know which meds a person should avoid, as we all have different side effects for the same medicine. I am blessed to have a great pain med specialist. I learned quickly that my stomach wonāt tolerate NSAIDās, although, I can now take Mobic as long as I take Pepcid along with it. Thankfully, we found a combination of meds that work for my body and help with my chronic pain. On the best day possible, my pain still wonāt go below a 2 or 3 (on a scale of 1 to 10). I also get epidural injections and nerve blocks when needed. It isnāt easy trying to keep things under control, but we all do the best we can!
It is wonderful that your body has improved!