Thanks for letting me know about that disease. I will look into it and see if I can get that test if necessary.
Thanks for your support. I actually have the help line number programed in my phone. I didn’t call them but had thought about it. I will give them a call please try not to worry. I know that you have been keeping up with all my discussions. It means a lot that you care so much.
The thoughts of harming myself are scary. I was just laying there in pain when they came. I can’t seem to figure out how they keep creeping up. Maybe it’s the devil trying to get me to kill myself. I do not want to hurt myself but I keep having thoughts about doing it. They seem to come when I am in a lot of pain and just can’t seem to find any relief.
I seem to be the patient that the drs have a hard time figuring out what’s wrong. A few years ago I had mono and I was in to see my dr every week on top of several different ers. Finally after a month of being sick and constant fevers my speen swelled up and when my dr discovered that she ordered the blood test for mono. I took off time from work and just slept for 5 days and on the morning of the 6th day my fever broke and I finally felt better.
Thank you. I know that I have great friends who really care.
Thanks Dee. I haven’t been on much but I haven’t forgotten that your dog has been very sick. Is he better? I hope so u have been in my prayers along with many others. I agree that I need a good dr who is willing to look at the big picture and hopefully figure out what’s wrong. I don’t think this is all tied to fibro. I feel like having fibro may be making me feel worse.
As to answer your question this adominal pain is different than what I had before Christmas. The intensity and level of pain is the same but it is different. Its not in the same areas. I am waiting till Monday when I can talk to the drs who saw me when I was admitted and see if they can shed some light as to what I have been going through.
Well so far this flu has no plans on leaving. And it may seem crazy but the fever seems to be making me wish that this would just hurry up and leave. The pain is still there and has had me in tears through out the past few days. It seems like the pain will subside for a short time but when it does the chills from the fever take over. This really has to be the worst stomach bug ever to hit humans. It’s just not right to feel this horrible. I am still having to force myself to eat and drink. I know that I am getting some fluids in but not enough. I just think and eating or drinking and want to get sick. I hate this feeling.
I am going to try to sleep. I will update you tomorrow.
Once again thank you for all the support and ideas as to how to get the help I need. Stephanie aka eeyoreluver
My dear friend,
Undiagnosed and untreated debilitating pain can take down the strongest people on earth, there is not a human being who has experienced severe chronic pain that has not had a dark thought, especially those of us who have not yet had satisfactory answers or treatment. I went through that for a very long time, my husband drove me to every single appointment for years.
Talking to a professional is the very smartest thing there is. A turning point is always in the future, and it can come with the understanding of those who have dedicated their lives to teaching us to be more resilient. There is not a single element of our lives that is unaffected by this, and they can teach us coping skills and have resources and contacts that we have never dreamed possible. I went to a female psychologist for about 2 years after the third car accident that I could never get over. I was so bad she and my husband had to nearly carry me in and out. This kicked up the fibro, and after 7 years the autoimmune diseases finally reared their ugly heads, the hereditary predisposition was there, that last accident flipped the switch to 'on'.
I don't often mention her when I speak of my wonderful Doctors, but she was such an important part of me becoming the person that I am today. She taught me to think, cope and respond differently and did help me to find the strength, courage and resilience to get through the crisis stage. She got me behind the wheel to drive again, without freaking out every time someone got what I considered to be a little too close to me.
You are so very important to so many people, please allow someone of that wisdom and empathy to help turn you in the right direction. Please allow the hope and compassion that you so willlingly give to so many others to be returned to you. Please call them, give them a chance, to be a new you.
With much love,
SK
You have truly been through a horrible year. I feel for you. Maybe, maybe, when you get this flu over with things will improve.
As for your suicidal thoughts, please take them seriously and get help. I was in a bad state--not nearly as bad as yours seems to be--around Christmas, and thought, "I don't think I can take this any more." Luckily, I realized where that thought was leading me. I called my acupuncturist and scheduled a session, and then called two of my lifeline friends and told them how low I was. Please talk to someone. If you don't have a sympathetic doctor, call a therapist for at least one session. And then find a better doctor! Most of all, know you're not alone. Let the people who love you take care of you.
I don't mean to pile on facile cheerfulness. Yes, it sounds like too much for one person to take. But you have taken it; take courage from what you have stood up to so far. Be good to yourself, get a little exercise when you can, and find someone to talk to who can help you.
I am sorry you are going through so much. I am praying for at least your peace of mind as you deal with all your issues. It can be so hard, living this way, with all these ups and downs, and they just seem endless. It does make you wonder if you will ever find relief, even if you have to die. But stay encouraged, because so many of us know just what you are feeling and are here for you. You are certainly not alone!
your life sounds so much like mine.well lets see in october i had surgery for endo when i saw my doctor he told me the surgey didnt work.Now i get to take lupron for six months which is making me sicker.i have this nurse come over who gave me the shots who reported me to dds because she didnt like the way i had things stored in my house now i have her coming back tomorrow.cant get rid of these people once they come and im just getting over the flu after getting it from my daughter.I wish i could loose weight i feel so fat.my car died first the heat then the battery the the muffler now the transmission it died in the middle of the road.now i get to walk everywhere i walked five mile the other day my body is killing me shouldnt done it with the fibromyalgia and the rls big bigstake.feel like garbage.im so tired just dont know what to do nextseems like the people who never do drugs always get the bad luck ive been getting it for years.
Hi Stephanie,
Oh no, it's not the devil, it's the pain, for sure. I get very depressed and angry when my pain gets worse. I start to wonder how I can keep on keeping on with this level of pain. Things look bleak at this point, until my anti-depressant is upped, then i feel better.
Please see a doctor, Stephanie. It's an easy fix and you don't want to have to suffer from these feelings.
Hugs,
Petunia
I look at all you have been through, and I think to myself, "What an impressive warrior!" One thing after another, with no chance to rest, yet you have made it through some heavy battles. All warriors get tired after a battle. Add grief, medical costs without insurance, and more, you have been through the perfect storm. Wow!
Loss of any of my animals is a major loss. I still grieve for them. Over time, I have come to celebrate them, but I'd rather have them with me. Grief can affect our immune systems and our appetite. When one of my dogs got lost, I didn't eat or take my meds for two days. All I could think about was him. When he was found, I was better about eating and taking meds again. It showed me how loss affects me.
If you can even get some Boost or Ensure down, it may help to round out nutrition and add to the effects of chicken soup. We get the house brand from a local discount store, as long as the nutrition is the same. The creamy texture is a comfort.
Hang in there, and know that you are a Wow Warrior!
Hugs,
Susan (Scribelle)
thanks that is a great idea. i am still having issues thying to eat anything but toast and crackers and i have to take very small bites of both to be able to eat them. but as soon as i feel a little better i will get some and drink them so i can get my body back to health. i would have never thought to drink them.
thank you SK you have so much great wisdom. i cant thank you enough for sharing some of it with me. i will do what i can to find a dr to talk to.
thanks i have not thought about trying to see a dr like that with all that has been going on. i will look into it as soon as i can manage to get over what ever this is.
with every thing that has been going on i have not thought about what is has taken me to over come everything. i have not realized that it has taken a lot of strength to get through every thing. it has taken you my fibro family to help me see that. i cant thank you enough. this really has to be the best site on earth.
well here is an update. i called and was able to get in with the gi dr i saw while admitted. the bad news it that he has no idea what has me so sick. all he did was up the meds i am on for the ulcer and told me i need to get my primary on board with helping me with pain. he seemed to feel bad i was in pain but didnt give me anything to help. its been 5 days and i am not really any better. the only thing that has changed is that i have not had the constant diarhera all day. but other than that nothing else has improved. i know i need to be thank for small things but right now its hard.
my pain seems worse today and the fever too. usually i can't sleep with socks on and today i was laying down with socks and my hoddie on with 2 blankets and i was frezzing. its been like that all day.
whatever i have has seemed to just have taken over my body. i know i have been strong but i am very weak due to everything i have been through in the past 3 weeks. i just am not sure how much more my body can take. seeing the gi dr who had no clue as to how to help was a huge let down. i figured that if anyone could help me it would be him. it seems like whatever i have is due to my stomach and intestines. now i dont know where to turn for help. how many drs to i have to see to find one that can figure out whats wrong and help me with this pain.
if any one has any idea what may be going on i would love any thoughts. i really am desperate at this point. i know i am strong but this is really taking its toll on me. the pain has been worse today and i have no idea why. if this is a virus it should be getting better not worse. i feel like though i know that i am tough and i have been through a lot i am just not sure how much more of this pain i can take while having no answer as to what is causing it. if no one can find out what is causing the pain then how can they help? i really need so relief from all this pain and quick.
please dont worry about me hurting myself and if i think that i might i will get help right away.
thank you all. stephanie
Please read this My dad had this infection below, you might want to have your doc test your stool for this. do you dtill have diarrhea? the medical people call it c-def. Clostridium difficile (klos-TRID-e-uhm dif-uh-SEEL), often called C. difficile or C. diff, is a bacterium that can cause symptoms ranging from diarrhea to life-threatening inflammation of the colon. Illness from C. difficile most commonly affects older adults in hospitals or in long term care facilities and typically occurs after use of antibiotic medications. But it can happen to anyone. Make the doc test you before it’s to late. Please call the doc today and be pushy to get tested. C-def with out being taken care of will continue to make you sick.
I agree with annette, steph. If you have been on any antibiotic in the last few months, C. diff is a real possibility. BUt you said the diarrhea is better so maybe it is something else..Arghhhh
Maria
I agree with Annette and Fibrokitty about c diff testing. It can be life threatening but in my experience unless you ask for the test they probably won’t test you!!
http://www.medicinenet.com/clostridium_difficile_colitis/article.htm
Since you are feeling so awful, I would ask for candidia testing too. That problem can make a person really really sick!! They use your stool for that test so they should be able to test with one sample. There are several others on this site with systemic candidia. I will reach out to them and ask if they can contact you.
Lastly, your abdominal pain sounds a lot like gastroparesis. I have this problem myself and it’s no fun!! You might want to ask if it is a possibility.
Hope things turn around for you soon!! You have been through so much recently. You are in my prayers…