Right on, Kimberly! That's the spirit!!!
Thanks :)
Petunia Girl said:
Right on, Kimberly! That's the spirit!!!
I think I personally would fall into that category. I have had the disease 40 years and worked, raised kids, traveled etc. I had NO idea the pain would get this intense. the past 8 or so years has been a definite painful nightmare with no one comforting me or understanding. I've tried several meds with no luck and sometimes I cry myself to sleep the pain is so bad - oh yes, I sleep with a HUGE teddy bear. it comforts me to squeeze Bearzie - I don't feel so alone. right now, I have get out of bed to turn over. I cannot lift the sheet and quilt while I am laying down. NO ONE believes me. ! all I can do is hang in there and try to face the next day.
I was diagnosed by an auto immune specialist that was working with me for my RSD. She had done a massive blood work up and then tested my trigger points. She informed me that, not only did I have RSD, but I also had mild fibromyalgia. She told me that while I probably didn't really notice it I needed to be very careful about infections. I did meet a lot of others with severe cases and realized how fortunate I was. It has now gotten a lot worse after my fight with a severe infection that had me hospitalized from the end of February to the beginning of November back in 2012. I am glad I never looked down on those that were suffering with it earlier. I'm thankful that the specialist took the time to explain how it effected everybody differently, and how it can change over time or even suddenly.
doggie, you are very fortunate to have gotten such a good doctor. I wish and pray that everyone who suffers could have someone so helpful and insightful!
Gentle Hugs, Kimberly :)
doggie said:
I was diagnosed by an auto immune specialist that was working with me for my RSD. She had done a massive blood work up and then tested my trigger points. She informed me that, not only did I have RSD, but I also had mild fibromyalgia. She told me that while I probably didn't really notice it I needed to be very careful about infections. I did meet a lot of others with severe cases and realized how fortunate I was. It has now gotten a lot worse after my fight with a severe infection that had me hospitalized from the end of February to the beginning of November back in 2012. I am glad I never looked down on those that were suffering with it earlier. I'm thankful that the specialist took the time to explain how it effected everybody differently, and how it can change over time or even suddenly.
I have had a co-worker with much milder symptoms all around. She couldn’t understand why my bodily functions weren’t normal, why I was so tired, why I zoned out, forgot things, etc. When another co-worker told her about a relative that was on disability and could barely function, she had an eye opener. It’s hard for them to get it. It almost seems like a competition of pain tolerance. I found this thing online titled "A Letter From Fibromyalgia " that I posted by my office door. That seemed to promote a little more understanding from ALL my co-workers.