Its not often I let myself get played .. Last Monday I had an appt . and I voiced my concern with the mobility issue, then was prescribed cymbalta which wasnt covered tuesday i called them to tell them the what the insurance told me "off the record" yet they persisted .. then on the Saturday I had caught peeping tom and he sent me on a spiral.I dont know why I expected more of a Skeptic but I did.So today I got the denial, and i called to ask them to change it so I could get off this whirlwind that has me dependent and their answer... " we think you should see a rheumatologist to see if its not fibromyalgia or perhaps even an inflammatory issue" my response well I basically only come in for the IBS and the fibro and you sent me out for the IBS and now the FIBRO and I already have a diagnoses of fibromyalgia .. their response uhhh right yeah you do um just make and appointment maybe he can help you walk .. here i began to get "-ated" (irrit-, frustr-, agravat-, ect.) my response i see what about the meds im on and changing it to effexor? hers " we arent able to give you anything new and you can refill anything with a refill" I took the new doctors name and hung up when all i wanted to do is throw the phone in pure helpless fury, called and no appointments from no specialist til mid june meaning no refills for anything til JUNE ... How can telling my doctor that I am not able to walk effectively during flares and demanding that they stop lying to me about not hearing from my insurance when ive gotten a letter in the mail dated 5/1/14 and TREAT me be a bad thing???? So I called my insurance company pissed off and in tears, and explained my situation every embarrassing detail from having to have 2 grown men carry me into the restroom to use it to being bed bound to being able to barely transfer my weight and using pogo sticks which have springs to list myself onto a make shift contraption to shower.. when she suggested a walker .. i told her my doctor says to push past the pain and wont hear of it .. I appealed the cymbalta I admitted to having to use narcotic vicodin pills ive had held on to for months without touching before this latest flare although i dont want to because of the stigma, and bias in my area.. and their advice file a grievance, appeal and fine a new general practice to get over the hump... im amazed that customer service gets it but a doctor doesnt so I am in search of a new doctor STILL apparently the are terrified of curing pain in this part of the world..
Thank you !
Yes, Vishq, they are extremely slow to treat pain in this part of the world. Maybe because fibro is mostly a woman's disease so they think it's mostly in our heads? I have to say that I can REALLY relate to your letter, having mobility issues myself. It is so humiliating to go through what we do just to get from point A to point B. But please know, you are not alone.
You know, you don't need a prescription or doctor's order to get a walker. You can find them on eBay. I have a pretty pink one but I found that it didn't help me because of the awful pain in my back. Maybe you could try one out at a local medical supply store or a pharmacy? Or what about a cane? That's what I use. I can't walk very far with it but it helps to get me up and down stairs, and for short distances.
As for the meds, is there another doctor in your doctor's practice who you could see? That would be the easiest approach. Or else you might find someone else by asking people on here if they can recommend someone in your area.
Please know that your situation WILL get sorted out. It will. It might take a little while but you're on your way. We all go through the search process, discarding doctors who don't get it about fibro. But there ARE good doctors out there. Seek and you shall find. I know that sounds corny but it's true. And the best thing to do is to leave a doctor's practice if he's hemming and hawing about treating you.
And how far does your doctor expect you to push past the pain? Enough to get upright and out of bed? Because that's pushing past it and takes a lot of effort. Pulling yourself to a standing position? Same goes for that. Walking also. Don't these doctors get it? The pain never goes away! It builds and gets worse and worse, the longer you push past it! He needs to stop using that stupid cliche and find a REAL and MEANINGFUL phrase to help you out. Like: pace yourself. Pacing is everything. Yeah, those two phrases are meaningful to us.
I'm sorry for your doctor's dippy advice and treatment. Please insert another quarter into the "doctors" claw machine and you might snag a good one the next time around.
Hugs,
Petunia
THERE'S A DOCTORS TAB AT THE TOP OF YOUR PAGE. SEE IF THERE IS ONE RECOMMENDED FROM YOU AREA OR CLOSE ENOUGH. SOMETIMES ALL IT TAKES IF A FEW PHONE CALLS POSING THE RIGHT QUESTIONS.
LOL thank you i got a full belly laugh out of your reply .. I called and got a "introduction" Appointment with a different doctor and a "follow up" appointment with my current nurse practicioners supervising doctor I plan on letting him know that although he has already diagnosed me Fibromyalgia, she thinks i might have an inflammatory issue or fibromyalgia so she refuses to help even dilute the pain even a little bit and therefore says i need to see a specialist who will not see me for 2 months, Im going to tell him that although HIPAA guarantees me a copy of my medical records they intend to charge me $15 +$1 per page and to let him know that when i leave his practice I intend to file a complaint, against the practice. Im going to tell him the complaint isnt against him but that as he was the only provider who treated me like i mattered in there i should let him know.. Then Im going to transfer to a different doctor .. Ive already filed complaints with my insurance, and appeals.. Ive seeeked psychological professionls who say to do the very same thing
unfortunately theres not any vouched for near me