I've tried Guifenesin several years ago - It did not help me.
Oh how I wish it was all in my head, I find as I get older I have more pain and less relief, the expression that bothers me the most is ..You look so good you must be feeling better and with a smile I reply a simple yes". Just makes me mad when they tell you before you start how you feel.
I sometimes feel sorry for my family they so try to understand but I know they wonder about me. I am now 68 years old and have had Fibro for 20 years and I know it can only go downhill now,but I try to enjoy life when I can then on days like today I just have to vent.
I am so happy I found this sight and so glad I have people who can share my pain , just really helps.
Lots of gentle hugs to everyone and hopefully tomorrow will be a good day.
Vicky
Hi nnurse35, it struck a chord with me when you said when you were asleep you were not hurting. That's what I always say, God has given me a gift and lets me sleep through the pain. I have the type of fibro that hurts all the time in a tolerable way but when it flares up to where I can barely move in bed without it hurting horrible,then I sleep for an incredible amount of time.
Hi pinkisses were all correct people who don't gave what we have don't understand even if we explain this group is so wonderful we accept each other my friends at work are very good we gave such a good time laughing and joking with each other and the residents and their guests I work at The Mending tron in the dining room its an assisted living se ior citizen ho.e we may be having a bad day but we have a good tine they understand when I cant do something one day I had to worm was si tired and could hardly walk one phonecall a d someone worked for me my staff treats me line everyone else I'm very lucky I don't lime it when other people complain of mi or aches and pains they can take so.egging and feel better if its their back there's icepacks and other things so easy for them not fir us its do nice to belong to a wonderful group I love you all very much suzyq
Yes, sometimes it is easier to lie than to explain what is going on with your body. This hurts..that hurts....my meds are making me dizzy. Etc, etc, and etc. Most times I don't care anymore. I have had this for about 12 years now and my friends and family know. They know that if I bail out at the last minute, I must not be feeling well. Or if I don't show up, I am not functional to be around people.
Don't worry. Your "true" friends will understand. If those who don't leave, screw 'em!
We love you too, Suzyq, hope you're having a good night.
Pink Kisses,
Hi there, you are not crazy and not a complainer, or if you are. Then we are here are all one too, because we write on here daily about our aches and pains too. Everyone needs to vent, and you are right most people that don't have our disease don't have a clue of what we endure on a day-to-day basis. Before I found the great physician that I now have, my other doctor told me I had to go and see a shrink. I have no problems with seeing one, but I didn't think he/she could fix my fibro. Such a suggestion, but when you are hurting, if you can get up and get mobile, and do some stretches and exercise a little, it makes it easier to deal with it. I have 2 pcs of exercise equipment in my home, and I can only handle 2 minutes on the trampolene and about 5 minutes on my stationary bike. It's a start, and I will build from it. Any type of exercise does help with the pain. Resting a lot helps, too. Feel better soon, and be well.
Geranium,
Hi there, people can be so cruel. Only -S-P-E-C-I-A-L- people like us get Fibro, normal people couldn't handle it.
I think when people ask "how you are?" They really do not want to know, so like everyone else, because we want to be pain-free and be "normal" we lie and said we are great. My husband for the longest time told me if I said it enough, that I'm ok, maybe I will believe it. He never quite understood my illness, until this past winter, he had a torn ligament in his food, and the pain was really bad. Now, he seems to have a better understanding for me.
Some days are better than others. The illness just consumes us. I take supplements that really help me with my energy and endurance. Visit my website and do some reading. www.myaimstore.com/teresaferenz and visit my wellness blog http://teresashealthnwellness.wordpress.com
On a ending note, take it one day at a time. Keep the faith and be blessed.
Agreed, 'on the move it or loose it philosophy. Some days you just can't but, have to really get moving the next, have to work out that stiffness!
I wish I could sleep through pain...I get NO relief during sleep. I actually feel pain in my sleep, so I tend to have a lot of nightmares about being stabbed, shot, squeezed to death, etc. The pain gets so intense that it wakes me up during the night. I thought people cannot feel pain duing sleep - why am I feeling it?
My husband used to tell me that I screamed in pain in my sleep after the car accident, which seemed to really kick all of this up into high gear, the meds have soothed the screaming, but I still don't usually sleep well until I am exhausted, even though the Enbrel is starting to help me with pain and improve mobility. Hope this can change for us, Chou!
Have you told the Doc? Could be a side effect of a med, might be something better for you! Really!
Dear Pink: Just to let you know my experience, I found out that it is not a good idea to start out hiding from family and friends the fact that you are in so much pain. I am the center of my family - the strong one that everyone looks to. And since I am someone who hates to show weakness and illness, I always hid it from my family - and my spouse in particular. That was a big mistake! Now I am paying the price for years of not letting anyone know how bad I was feeling, no one pays attention to my complaining. I could say Ow! all day long when I move around and no one pays attention to it. No sympathy or empathy. Also, by feeling you have to lie about it, you are subconsciously telling yourself that the pain you are feeling is your fault. I have gone through the stage of feeling that I should be apologizing for being in pain and being scared to mention that something hurts because I don't want to be thought of as whining. Unfortunately for us, this is an illness that no one can see. And also, I have even given up trying to explain Fibro as it just stresses me out. I hope you are getting proper medicine for this and stay with this website and you will see that you are not alone.
A hearty Amen! on that post!!!
I just want you to know im going through that right now. Trying to get myself to sign up for s.s.d. im going to be 40 this yr. I can totally relate to your story. Your post really made me feel im not alone hugs & thank you! I cried when i read your post but only because i know im not alone;)
Your definitely not alone! I lie alot about how i feel. Not proud of it but i just dont always care to go down the long list of all i have going on. Im here if you need someone. Im new here but totally relate to how you feel. This is such a great place to be! AWESOME SUPPORT HERE! Hey if it helps i have started laughing at myself! Really i do! I have put my keys in the fridge.. onoins i cut for my husband in the cupboard! i put things in crazy places here & there so i try to laugh when i can sometimes its the best of all:) Gentle hugs
I know exactly what you mean, I have always told people including my doctors that I am doing fine. How ever every day is a struggle to get out of bed, to get ready for the day....every day there is a wish that the pain would just go away even for just a little bit but it does not, every day you put a smile on your face and try and pretend that everything is fine, you put that brave face on and move on with your day, sometimes more of a struggle then others. It is not in your head, you are not alone!
Know what you mean. I lost my best friend because of fibro. His mother-in-law has it and she is just fine. Told him she eIither really did not have it or just had a very mild case. I am 40 years old with a BS in business and I am on SSDI. It took 2 years and a different attorney, but I got it. I am very lucky that my wife is very supportive and has pick up my slack. What really sucks is that when I do have a good day I cant do anything outside for fear of loosing my SSDI. We only have 1 car now due to the lose of my job and waiting for SSDI I sold my truck, fishing boat, 4 wheeler. I love to hunt and fish. I may only go a few days a year, but I try to go on my good days. It just always seems that when I have a good day I have no car to drive and on the bad days I have the car to drive or have plans with a buddy to go and have to cancel.
Hello Brian,
So sorry you have been treated badly and that your life has taken this turn, unfortunately most, if not all, of us have experienced this. Your back issues are enough to make us all weep. I hope that you will be able to fish and hunt more this year, it is important that we do not have to always give up the things we value most.
Yes, we are both very fortunate to have spouses that are supportive, we must hang on to them! Welcome to the group!
Wishing you the best,
SK
HI B,
YOU SOUND SO MUCH LIKE ME I LOVE TO DANCE AND COOK AND JUS TAKE CARE OF MY FAMILY. BUT THESE DAYS ITS LIMITED TO TWO STEPPING SWAYING COOKING EVERY NOW AND THN AND NOW BEING THE ONE WHO NEEDS TAKIN CARE OF. I ALSO HAVE A WORK RELATED INJURY SO IM LIMITED BECAUSE MY GOOD DAYS I JUS WANNA RUN DANCE BUT I CANT FOR FEAR THERE WATCHING AND WOUDLNT UNDERSTAND THAT ITS ONLY FOR A MOMENT AND I WILL SURELY PAY FOR IT LATER. BUT I STILL DO THE THINGS THAT I LOVE JUST SLOWLY EVEN SITTING IN MY FAVORITE SEAT AT CHURCH HURTS ((THEY SAVE THE FRT ROW FOR ME N MY KIDS CAUSE I SHOUT N PRAISE THE LORD VERY OUT LOUDLY)) BUT THE LOUD MUSIC HURTS BUT I WONT LET THAT BE TAKEN AWAY FRM ME SO I BEAR IT CAUSE I LOVE IT!!!!!!!!! IM PRAYIN FOR U B IM ONLY 36 AND I WANT MY LIFE BACK AS WELL BE IMA LIVE THIS ONE HURT N ALL
Thanks. I am so glad I found this sight. Now I don't feel like I am not the only one in the world, and that it was not me or something I did. It doesn't bother me any more. Its his loss.