I have had the same thing with breathing I thought I was having a heart attack. Rheumatologist said maybe reflux? Who knows ?
Bedside- were you a medical professional at one point, Meow?
It is very kind of you to take the time to help people in this forum 
Iām really sorry youāve had such bad experiences. I know how heartbreaking it can be to just want help and have no one willing to listen.
I really donāt understand the 10 minute appointment thing. In every job Iāve ever worked I always wanted to do the best I could to help people. Surely, most doctors must feel the same way? Then why dismiss people and rush them out the door?
So far, Iāve been misdiagnosed with the flu, back injury and had one doctor theorize I must have experienced some sort of trauma that started my pain but refused to believe it had an actual real, anatomical basis. Itās just crazy to me.
My new doctor refuses to prescribe any pain relief until sheās certain of what is causing my pain. Iām not sure how to feel about that. Iāve upped my CBD oil intake and it seems to have taken some of the edge off.
Sadly, the referral to the pain clinic from the previous doctor appears to have never reached the pain clinic, so I have to try to get a referral from the new doctorā¦
Do you get a lot of stiffness in your neck? Mine is primarily in the front of my neck and it can feel very uncomfortable to chew and turn my neck or even nod at times. Iāve also started to get a hoarse voice if Iāve been talking to people consistently throughout the day.
Sometimes I buy frozen veggies or cans of soup with a lot of vegetables in them if I know thereās a good chance Iāll feel too ill to make regular meals. Iām not sure if youāve tried that? Then I just throw the different frozen veggies into whatever Iām making. I used to make quite elaborate, planned meals but since Iāve become ill Iāve not had the energy.
Do you find any sort of exercise that helps your symptoms but doesnāt cause a lot of pain? I used to walk an hour and a half a day in addition to a 30 minute run. Itās been really hard to reconcile with myself that I canāt do those sorts of things anymore. I still walk 30 mins to an hour a day, but itās very leisurely.
I think a lot of my sadness and anxiety comes from still not being officially diagnosed. I feel as though there is this question mark hanging over me and at times I get quite frightened that I may be terminally ill or something, even though my GP has reassured me this is unlikely. At this point I would really welcome a confident, solid diagnosis of fibromyalgia so I can just ease my worries and get on with pain management and physiotherapyā¦have something to focus my energy on in a way that can lead to a better quality of life.
Additionally, I miss the everyday things I was previously doing (finishing my degree, writing, working, playing sports with my son)
Thank you for the music recommendations!
Yes! It can be so scary. Thatās interesting. Iām seeing an ENT and maybe Iāll ask if reflux could be part of it. Thanks!
Hi, Someone mentioned they had floaters in their eyes. I have had them for several years. They are proteins that form in the gel part of your eye. Several opthamalogists have told me this happens to some people and not to worry. I hope this information helps.
1 Like
Hi,
I was a certified Ophthalmology technician and yes a lot of people do have floaters. Eye floaters can be clumpy or stringy, light or dark. They are caused by clumps or specks of undissolved vitreous gel material floating in the dissolved gel-like fluid (vitreous) in the back of the eye, which cast shadows on the retina when light enters the eye. This is also called PVD Post Vitreous detachment, this happens especially when you are getting older and or are nearsighted. However you should always have this checked especially if you have any signs of flashing lights as PVDās are not serious but you always want to make sure itās not a torn or detached retina.
1 Like
Thanks for your support I was just diagnosed with Fibromyalgia at Mayo Clinic. It all makes sense to me now! After years of going from all the MDās I feel I have hope to move forward and understand that this has to do with my brain and Central Sensitization. I have some other auto immune stuff going on so I am waiting to hear back from the Mayo docs to see if I can try Cymbalta. Iām so glad it worked for you because I donāt know anyone else who took Cymbalta for fibro. Thanks!
Thank you so much! This is super reassuring 
1 Like
Iāve started to get really awful mid back pain. I had some before, but it was pretty mild.
I wasnāt able to take my CBD oil a couple of days ago and thatās when I realized how bad it is!
It feels like stabbing and deep aching. It brought me to tears.
Anyone else experiencing this?
Hi there, itās been a while since I have been on here. Itās been a crazy few mths. I think the tramadol I take increases the severity & frequency of my spasms in my hands. So I only take it now when my pain level is an 8 or above. And just use creams, heat, showers, whatever I can do besides tramadol. Idk if thatās the right thing to do or not but I have 4 new meds added to my medication regimen so if I can give up taking one here and there I will do it.
Hope all is well with youš
My heart goes out to you. I know the constant, chronic, ever-changing/relocating pain youāre referring to and itās absolutely terrible! You might consider researching the symptoms list for ME/CFS (chronic fatigue Syndrome) to see if some of your symptoms fit that list.