I had finally found an amazing doctor whom thought as I did, and now we've had success! Especial thanks to my husband who has also done amazing things to help me! He's a really special guy.
I do take immunosuppressants on a permanent basis, no organ transplants though.
This is very good advice, and I do not know of a Doctor who would disagree!
Hi MIMI,
This is the best foot soak I have ever used!
http://www.drugstore.com/johnsons-foot-soap-foot-soap-packets/qxp14167
I know, but the ITCHING!!!
Dee, the last half of this looks like a diet recommended for high cholesterol. It's my latest thing to pop up!
They are all on my profile page! Thanks, I do believe you checked this for me already!
Hi
I did reply positively here , so hope you don't mind if I vent. Today is a very bad day. I am exhausted and have done nothing to warrant this. Last night I had night sweats , so first thing I did was have a bath. Not that I wanted to but felt drenched. Have had a head ache and ringing in my ears all day, My tummy is upset and have felt like upchucking all day. I'm hungry and am eating. But afraid to take any pills for fear it will only make it worse. My sister called and I didn't want to talk to her. The phone rang about 30 times. She treats my husband and myself badly and I'm fed up being hurt by her. So have decided that is enough. Plus I hurt all over. I would cry but my eyes swell and it takes three days for the swelling to go down. I am so thirsty I could drink an ocean of water. So I have these gator bottles , fill them 1/2 with water and freeze them. Then I fill with water and it is nice and cold to drink. Right now that is the only pleasant thing going for me. My eyes are bothering me bad. Very scratchy and my left eye hurts. Have noticed a lot of red veins in the whites. I have to see my eye doctor as I have peripheral vision problems and pressure of my eyes. No Glaucoma though. And my eyes are red from rubbing them because they itchy . I am up down to the bathroom more times than I care to count. I understand it is a body function , but think about it. What a waste , get it, waste ,of time . There I have vented and feel a little better. Thanks for listening.
HUGS
SLM
Well for the last half hour I have been reading all your posts. Have come to the conclusion what works for one does not necessarily work for another. We are all together supporting each other but basically you have to search for your own answers , whether it be all natural or with the assistants of medications prescribed by Doctors who do not know what the answer is for us themselves. My doctor explained to me that Fibro. is just as frustrating for doctors as well. They want to help us and are willing to try different options , but realize after many efforts of trying to help us to no avail can not and that's why they call it "practicing medicine". I can say at least in the last 10 years it is now acknowledged and recognized as a disability.I gave up on most meds. I take something no one has mentioned yet its called Vyvanse . It truly gave me a new lease on life ! I went from the couch to in 20 days from now opening my own furniture consignment shop . Can not believe it : ) Its dopamine, non epinephrine , and amphetamine . The lowest dose is 20 mg and I take 10 mg. Helps immensely and takes away my brain fog , anxiety, depression, and chronic fatigue . Does nothing for the pain except you are able to accomplish so much you almost forget you have it . Do not get me wrong I still have my couch days but they are only every 9 days or so compared to DAILY !! I feel like I am living again , my self esteem and confidence have risen to a new level. Again as I started my post we all know what works for one does not always help another. Just wanted to share since no one else mentioned this medication . I have been on it for 10 months and have one side affect that is weight loss. I guess because I am "off: the couch and moving !! Hope all of you find your way of feeling better !! Its a rough lonely disease , but hang tough and know you are doing your very best family and friends are just not up to speed on what we go through , really not their fault. In another 10 years I am sure it will be that much easier and acceptable to say you have Fibromyalgia and people will NOT give you the blank stare . Instead God forbid you might get some sympathy . : )
do you know the difference between LDN and methadone? They sound like they do the same thing. I'm on methadone and I like it because I don't feel like I'm taking anything. It helps the pain and my head is clear and I don't feel like I did on Norco and Soma which was drugged and sometimes had slurred speech.
Hi Cynthia,
Good question, I directed it to crynsugar, not only does she take LDN, but is also a nurse. MaryGrace is also a nurse and takes LDN!
I have side effects to all anti-depressants, Lyrica and Savella. My doctor wants me to lose weight but he keeps prescribing medications that put on weight, the latest Gabapentin. I am afraid to take it because I don't want to gain anymore weight! I take Oxycodone or Tramadol for my back pain (Degenerative Discs) but nothing helps the Fibro pain. I have been going to a massage therapist but this costs money that I don't have so I stopped going for now. I try walking every other day, but now that the weather is getting colder I won't be able to do this either. I take hot showers and use heating pad at night, sometimes during the day if pain is really bad. I wish I could afford a hot tub! :) I have not tried acupuncture but this too costs alot of money and my insurance does not cover it. I am thinking of taking mild yoga classes?
I have also tried water therapy but it made me really sore ..and the pool was filled with seniors some of them handicapped and one of them almost drowned that day...so it turned me off and I never went back.
I am going to a Fibro and CFS specialist in two weeks. He is very well known with disability lawyers and judges. Lets see what he can do for me.
There are so many symptoms that come with FBS. So if you can find a way to help eliminate any of them, it helps. One less problem to deal with. Some of these I eliminated before it was even realized that my problems came from FMS.
I used to have horrible restless leg symdrome. I would try all kinds of things. I thought it was low potassium, so I would take it. Didnt help. One night I was looking up causes for it on the web and run across low iron. So I started taking iron, they went away. They usually start back up if my iron gets low.
I had IBS for years, could hardly make it home at times.... some of you know what I mean! ... anyway, went on a low carb diet, then started watching my carbs, IBS is gone.
The latest has been my anxiety, has been horrible, just went to the Dr. a few months ago, he upped my anxiety meds. again. anyway, read up about aspertame enciting the nervous system, decided to quit all diet drinks, chewing gum, or anything else with it. After about 2 weeks, my anxiety levels were more regular, still not completely gone, but tolerable. Before I dont think I would have been any more anxious if someone put a gun to my head it was so bad. But I am doing a lot better and have cut back on my anxiety meds, which were making me sleepy.
I know different things work for different people, but these have helped
me. By listening to your body, keeping track of what you eat, meds... you might figure some things out.
My FMS still torments me, the pain, fatigue are the worst! But so glad the anxiety has lessened, and the RLS and the IBS are history.
Hey Rosebudsmom,
WOW! Low iron related to RLS is not something I have ever read! I'm amazed at how our bodies can react if we are out of balance, missing one vitamin/mineral/amino acid! Now on that train of thought, I have to tell you that I get my vitamins from my DC and the multi vit/min that he puts me on go by my age, and are iron free, he tells me that unless you are low in iron it can be toxic to women after a certain age!
My GP ran every possible deficiency in my blood work, even rare ones, I have all kinds of nerve pain and Sciatica from my spinal issues, and the Lyrica really helps with that, side effect is the swelling that happens from time to time as it causes you to retain fluid, so I just have to stop it for a day or two and that alone allows me to naturally release the fluid, I of course have told my GP and Rheum that I do this, carefully of course!
So glad you have had such a positive response to changing your food and beverage, this is something we could all do better with, it's right up there with drinking enough water!
So glad you dug this up and posted, nice to hear from you! Thank you so much for your shared experience and wisdom, surely this will help others!
Wishing you well,
SK
I was just talking with my sister yesterday, she also has FMS. Her Dr. is giving her something that deals with the dopamine in our brains instead of the serotonin. Sheis doing a lot better than I am.
Oh that;s great news, I'd be interested in what she is taking! I could use a dose of 'happy'!
Hi. Have you had the ear seeds? I hear they can help us with fibro pain and even other things have been helped.
Hi Justa,
I did acupuncture for about a year, but never experienced 'ear seeds', don't think he put needles in my ears either, but after a while, unless he really hit a 'hot spot', I just kind of ignored where he put them.
I'm in the 'whatever works club', as much as we all are alike, we cannot all tolerate or benefit from the same treatments, so anything within reason is game for me!
Let us know if you have any success with this, please?
Wishing you well,
SK
I’ve tried yoga, swimming, exercise light ones of course 
, I go to the malls and just walk and I have to break cause my toes get numb, and finally tried the injections and it works wonders for me! I worked on my garden like 3 days straigh and so happy, then my body said relax now. Everyone’s different, I pray you will fine the best treatment. A big soft Hugggggs my friend!