I went to rhumy yesterday and got 3 more injections (now I have had 24 injections in various places since being diagnosed in May of 2014)...one in each outter hip and one one the right side front thigh at the bend near my groin... all for my chronic bursitis. We talked about my SI joint dysfunction and why I am constantly miss aligned. With fibro our muscles get tight. The tightness pulls the pelvis out of line this then causes inflammation in the si joints from the friction caused by the miss alignment.
I went and got a 6 month membership to a gym that has the warm water pools and a hot tub and a sauna... all of which I am taking advantage of... it sure helps to warm my bones from this cold weather if it does nothing else. I have not been doing the exercises yet in the pool but have been using the hot tub and sauna... For me the feeling is wonderful!!!! I do work my core while in the hot tub.... doing leg raises and crunches...while having those jets massaging my back and neck...lol
While Fibro does not present with things like Bi-lateral Sacroiliitis... the Fibro can be the cause of it. Although in my case I do not think the Fobro is what cause this it certainly does not help it and there fore I am in a bad situation not only from Fibro but from all my other growing list of issues and for the most part all are chronic...
I will continue to push through this and do whatever it takes to keep working... but my Rhumy gave a hint that disability is an option that I have.... he did not just come out and say that . it was his reaction when I told him I took myself out of work (due to having started PT and the pain level went through the roof). He knows... I know that disability is in my future but how soon depends on my ability to over come the obstacles that get in my way. I guess that will happen when I have put up a GOOD fight to keep working and find myself still unable to function.
Hi Belinda, I found physical therapy to be a great benefit. The person I was seeing was knowledgeable in Fibro and we worked on building core muscle strength (very slowly) and also on breathing techniques to push more oxygen to the muscles. I hope you will find it beneficial this time. I only went once a month but had exercises to do at home that helped. I still work on them now. Hugs.
Auburnm, I am going to therapy 3 times a week...Monday I begin my last week of the four weeks. I am learning the exercises and working on getting myself back in working order... I do fear that no matter what I do my job is going to be a constant negative... as it is very stressing on my entire body. If I did not love my job it would be nothing to walk away from it and find something else but this is the only type of work I have ever done and the benefits...well they also keep me at the job...I have to have the insurance! lol
For now I am going to focus on getting better this go round and start crossing my T's and dotting my I's getting prepared for when I have to admit defeat and file for disability...I want to make sure I have strong medical records...I have a few more demons to chase down and explore and document. When I file I want to ensure an approval. From all I have read I am not ready for that just yet... my documentation and some treatments are lacking.
Keeping a pain journal which I only seem to do when I wind up out of work...well I need to document things daily. I found some great apps for tracking pain on my phone or computer but have yet to down load one. I find typing easier than writing and that is why I do not write often anymore... my hands get tired.
I have to keep reminding myself that this is my health and my Dr.s only document what I give them... I have to remember to give them reports of pain levels and how my conditions effect my ability to do my job, clean my house, dress myself, fix my hair, take care of my grand babies, and prevents me from doing the things I used to be able to do... like ride in a car to go to the beach, ride our jet ski at our lake place, ride in our boat...it all matters. I have to learn to stop pushing myself... remind myself that is not just a normal back pain that will go away if you do that... just the mind set that I am not normal and I cannot do as I have always done before and that pain is an indicator to STOP.
I believe Fibromyalgia in my case is the result of having been in pain too long. I have so much going on. and to be honest the fibro is the least of my worries...lol...but I could be wrong... when you have several issues that cause pain it is hard to distinguish what is what. My biggest pain has been the Bi-Lateral Sacroiliitis with SI joint dysfunction.
I will continue to smile through the pain (except for when I break down and have a good cry) and push on!!!
I also have bi-Lateral Sacroiliitis with SI joint dysfunction. It seems like I have tried everything for it and nothing seems to work. Just thought I would send a gentle hug your way to let you know you’re not alone. I feel your pain, Literally! !
Betty... I was beginning to believe that I was the only person ever to have fibro and Bi-lateral SI issues... I am not alone anymore!!! Finally someone who can understand me...Betty I feel your pain too. HUGGS...
Betty said:
I also have bi-Lateral Sacroiliitis with SI joint dysfunction. It seems like I have tried everything for it and nothing seems to work. Just thought I would send a gentle hug your way to let you know you're not alone. I feel your pain, Literally! !