Oh no Wendy-Anne, Try cotton in your ears maybe it won't hurt hurt as bad. I have to tell you I have a hubby and I can't snuggle it hurts...Oh I'm not saying we don't give a big hug here and there, but when I am in bed for sleep, stay away don't touch... Lol. Hope you get some sleep soon, I'll let you know if I find something that works. Hang in there, Hugs Robin
Happy When Quiltin, I think you may be my missing twin. We are alike in many ways, even down to the to the laugh part. Know matter how tired I am or how bad I am hurting, other then my hubby everyone else see's me with a smile and laughing. Glad your here this is a terrific place for support....Gentle hugs coming your way, Robin
FWvidChick, I'm right there with you, Doesn't it stink most of us have that shadow named Pain? I am learning to live with so many things and in the mean time if I find something to help me that will be great. Hope you have a nice weekend, Hugs, Robin
Hi Pet, Having the dogs on the couch with me just warms my heart. If I could take care of more I would have a dozen. Hmm maybe thats a few to many lol. I'm hanging in there and yesterday afternoon I felt better and went for a ride on our Harley with the hubby. I must say it was so nice getting out in the fresh air. I am paying for it a little bit with the pain but I won't tell the hubby because he won't let me ride then :( Hope you have a nice weekend... Hugs, Robin
Hey Jesse, I think we do need to laugh about not sleeping other wise we will cry lol. I guess I really never try the eat thing because I have gained a tad bit of to Much weight these past 2 yrs I feel if I eat that late more lbs will come on. The lbs added are keeping me from walking far and such I think but maybe I will try that soon. Gentle hugs, Robin
Robin, haven't tried the acupuncture yet for fibro issues. I had it done years ago for other pains, but now can't remember, maybe my back pain (but not fibro diagnosed at that time). I was also getting acupuncture as it was supposedly going to help my diabetes. That would have gone on forever 3 times a week like for a million weeks? I opted out of that after a few weeks. I remember it didn't hurt like you would think. Those needles are so so fine, you don't feel them.
Karen (Hate Pain)
Thats good to know. Thanks Karen :)
I know how you feel! I’ve been on Lunesta for about eight months now because of insomnia. If I didn’t take Lunesta, I promise you I wouldn’t sleep. I tried every single thing listed here to no avail. Finally I went to my doctor and told him I was going to lose my natural mind if I didn’t get some sleep. I hope you find something that works for you. Smiles and gentle hugs!
Have you had a sleep study? Most fibro patients do experience pain and insomnia at some point. But when your sleep is really disrupting it just makes the cycle worse. Just because we have fibro does not mean. shouldn't be seen in the sleep clinic. Lack of quality sleep on a long term basis can have other serious ramifications ...I am a CFS patient and retired nurse. Many of us have restless leg syndrome, sleep apnea or other sleep disorders such as sleep paralysis and night terrors. Some of these issues can be dealt
with giving us a better quality of life all around. Resotrative sleep is very important.....blessings light and hugs.
Lindakay
Hi Brandy, You got lucky with the lunesta. It didn't work for me so I think it's time for me to try the next thing. :)
Robin
So sorry you are having such a hard time with insomnia "gentle hugs". I am a long time sufferrer of fibro. and insomnia..the first thing you should do is talk to your doctor...there are many prescription meds. out there that will help you sleep. Also, make sure your bedroom is used for sleep, lights all out, same time to bed everynight and use what your doctor prescribes you. Good luck to you,
It's amazing how many people have connected & truly seem like family here. There are so many of my body parts that seem to belong to everyone here. The "syndrome" as it is called is a physical & mental drain on my entire family. I don't get to travel much, but when I do I enjoy visiting w/my husband's family. They are wonderful to me & treat me like a queen. They even let us bring our dogs when we visit them. They have several dogs of their own & ours fit right in.
Today was a great day. I got to shop w/Charles (he waited in the car). lol For most people this would of been an OK day. To me it was marvelous. Every time the pain is terrible I thank God that it isn't worse. That may seen silly to many folks. That's alright, I don't care. It's my body, mind, and soul.
I am trying to work on a new quilt. Every time I get the blocks arranged one of the dogs gets in the floor w/me & rearranges them. It's usually the puppy that really helps out.
I hope everyone here has a nice Sunday. Sunshine always helps. When the weather changes I always tell Charles. I'm the family "weather girl". Ain't that something! I'm 67 & a "weather GIRL". lol
God bless all of us.
I don't like the idea of having needles stuck in me. Does it hurt? Sounds awful & the pictures I see on the net look like the people are porcupines w/all the needles sticking out like long spaghetti noodles. I don't have a local acupuncture office where I live. I would have to travel 80 miles for the treatment. I'll have to think about this. Do you know if insurance usually cover this?
I have some really sensitive tender trigger points that feel like my muscles are tearing into.
We live in a small town that's getting smaller & specialized care is not available.
God bless us all.
Have you tried a snuggie - those blankets with arms? My husband bought one for me as a Christmas gift, and I just laughed because of all the silly commercials I had seen on TV. But I swear by it now. I use it when I'm watching TV, but it might work for bedtime too. Good luck!
I also take 200 mg of Trazadone and if I didn't have that I would never sleep.
Thanks so much Paco's Mom, That sounds like a good idea and I will def try that. :)
IVE BEEN TAKING QMITRIPTYLINE 50 MGS BUT IT STILL DOESNT WORK I DRANK SOME WARM MILK ON THURSDAY NIGHT AT 10PM IT TOOK 45 MINUTES ILL HAVE TO TAKE THE MEDS AND MILK AT 8PM DIDNT LAST NIGHT BECAUSE IOWA MENS BB TEAM WAS PLAYING IN THE NIT FROM 8:30-10:30PM WENT TO SLEEP AT 10:45PM ILL TRY IT TONIGHT IM GOING TO SEE A NEW RHEUMI DR SWENSONS A GOOD DR BUT HES IN URBANDALE IOWA THE EDGE OF NORTH END OF DES MOINES ITS A 31/2 HOUR DRIVE I HAVE TO TAKE 5 DAYS OFF FROM WORK THEN TO WALGREENS TO HAVE NEW MED FILLED UT TAKES 1/2 HOUR THEN THE 31/2 HOUR RIDE HOME THE ISSUE FOR ME WAS DAD DRIVING TO OTTUMWA IOWA ITS 1HR 25MINUTES FROM HERE WHERE WE WOULD MEET MY SISTER CARA THEN ONTO DES MOINES REVERSE THE PROCESS ONLY ITS THE BUS FROM DES MOINES AND ENDING AT BURLINGTON 1/2 HOUR DRIVE THATS NOT THE PROBLEM ITS DAD TALKING ON THE CELLPHONE TO HIS GIRLFRIEND HELEN WHOS 5 HOURS FROM HERE THE LAST TIME WHICH WAS DECEMBER 4 2012 WE DROVE TO OTTUMWA WE JYST ARRIVED AT ELDON ITS THE HOME OF THE AMERICAN GOTHIC PICTURE AND THE PHONE RANG OF COURSE HE ANSWERED HE COUKD HAVE WAITED15-20 MINUTES TO OTTUMWA WE WAITED 1 HOUR HE COULD HAVE GONE OUT BY THE TREE AND TALKED TO HER WE WERE WAITING IN THE HY-VEE PARKING LOT ITS A GROCERY STORE CHAIN IN THE MIDWEST PROBLEM SOLVED I HAVE A NEW DR IN PEORIA ILLINOIS ITS A 2 HOUR DRIVE ONE WAY BUT I ASKED MY FRIEND JOAN IF I COULD FIND A RHEUMI THERE YOU CANT BELIEVE EVERYTHING ON THE INTERNET THE ONE WHO WAS A RESEARCHER/PRACTICING AND SEEING PSTIENTS BUT HE STOPPED SEEING PATIENTS SEVERAL YEARS AGO SO THERE WERE OTHERS MY FRIEND JOANS BEEN THERE AND SHE SAIS SHED TAKE ME IM IN THE PROCESS OF GETTING AN APPOINTMENT I I STARTED TGE PROCESS LAST TUESDAY MARCY 19 I CALLED AND WAS TOLD I NEEDED A DR REFERRAL CALLLED MY PRIMARY THEY CALLED AND TALKED TO THE DR MY DR CALLED THEY SAID I HAD TO. THRMAKE AN APPOINTMENT TO SEE THE PRINARY HADNT SEEN A DR SINCE DECEMBER.4TH IT WAS THE NEXT DAY THE 20 TH THEN PEORIA DR HAD TO HAVE MY PRIMARY DR FILL OUT A FORM AND MY RECORDS TO THE NEW RBEUMI I CALLED PRINARY YESTERDAY FRIDAY MARCH 22 THE NURSE AT PRIMARY SAID ALK PAPERS WERE FAXED THE DAY BEFOFE AND THEY EOULD CALL TO MAKE DR APPOINTMENT DIDNT CALL YESTERDAY SO ITKK BE MONDAY MARCH 25 THE SOONEST APPOINTMENT WILL BE MONDAY OR WEDNESDAY APRIL 8 OR 10 THE EARLIEST ONE WILL BE 9AM WELL HAVE TO LEAVE 21/2 HOURS BEFORE IM ANXIOUS FOR THE DR DAY TO ARRIVE MAYBE HE DR GETZ WILL HAVE A FRESH PROSPECTIVE ILL SEE WHAT HIS SUGGESTIONS ARE IM INTO THE NATURAL AND SLTERNATIVE METHODS BUT IM DEALING WITH HYPOTHYROID OR HASHIMOTOS FIBRO SCOLIOSIS AND MARFAN HABITUS ALL MAKE ME TIRED/PAIN IM THANKFUL FOR HER AND HUSBAND TOM WITHOUT THEM THE NEW DR SPPOINTMENT WOULDNT BE A REALITY IM PAYING BRIDGE TOLL/GAS MONEY ITS A 4 HOUR ROUNDTRIP DRIVE I CAN TAKE 1 DAY OFF I CAN SIT IN THE CAR FOR 2 HOURS THERE AND HOME AND THE NEW MEDS IF THERE ARE ANY CAN BE FILLED AT HOME ILL LET YOU KNOW WHAT HAPPENSL MY DAD OR SISTERS DONT KNOW ABOUT HIM AND WONT BECAUSE DADS TOLD HELEN ABOUT THE DISABILITY ATTORNEY AND PSYCHOLOGIST. HER OPINION IS VERY HELPFUL AND CAN HELP MY CASE BUT SHE SHOULDNT BE TOLD SHES NIT IMMEDIATE FAMILY AND SHE MIGHT HAVE TOLD HER FRIEND SHAR HER. SON ABD DAUGHTER-INLAW HER GRAND DAUFHTER SND HER LIVE IN BOYFRIEND THATS 6 PEOPLE WHO SHOULDNT KNOW NONE OF THEM ARE FAMILY AND THE OTHER 5 HAVNT MET ME OR SEEN ME IM NOT LETTING HIM DRIVE ME ANYWHERE SO HE WONT KNOW WHERE IM GOIBG MOST IF THE TIME I TSLK ONLY WHEN HE SPEAJS FIRST PRIVACY THE WAY. IT SHOULD BE HAVE A GOID AFTERNOON EVERYONE SORRY ABOUT THE RANT AND VERY LONG POSTING IM GLAD TO BE A PART OF THIS GREAT GROUP THANKS EVERYONE