You are anything but stupid, Sugar. Look around you...at the kids you've raised, at your sweet husband. You are a good person. Try to remember your chronic awesomeness.
Depression and anxiety hamper me too. I know it's the worst, but tomorrow is another day.
Love and Hugs,
Kitty
I agree Kimberly. I hate when I'm in the middle of trying to do something and it hits like a THUD. Worst yet is to wake with it and not be able to get out of bed.
Love to you my NC friend.
Kitty
the severe pain in my lower back kills me. has to be the worst one.... that or the tender skin that feels like it is bruised which causes me to feel uncomfortable all the time and never feel comfortable in my clothes or skin.....
Dear SK,
I wonder if the spasms are connected to stress. I only get them when things are really badly stressful. I know it's been a hard time with your sweet Mother and you have been so worried about her and helping her so much. It's hard to take the stressful things off your plate, impossible when it's just living life.
Don't worry about your grand kids being scared. Explaining things to them seems to help. I don't think it's a burden for them. I think it's helpful for them to know.
We need a secluded, sunny island with hand maidens to care for our every need. Ahhh.
Lots of Love and Hugs,
Kitty
The worst for me is the thrush I get in my mouth. Your skin peels
your mouth feels slimy. Your tongue is coated. Your mouth is dry. And it lasts a long time. The worst thing about it is it comes back. When my lips peel so I feel like I will have no lips left. Eating is no fun as you can't taste your food so you tend to lost your apatite .Fibro is no fun I can say this for sure.
HUGS
Shirley
Cold and overcast gets me every time.
For me my worst fibro symptom right now is the fatigue followed closely by my fibro pain and my arthritis pain specially if I have been doing too much standing or walking.
Gentle hugs
Rachel
I had no idea Thrush was related. I had Mono and right after got Thrush. They did not call it thrush and just diagnosed the whole thing mono but as I now read about it I now know exactly what I had. I am very sorry to hear you go through that. It was my first time and I wanted to die.
Thank you for your reply. Sorry you had thrush. It is not very nice. Some days are real bad others are ok. Feel sorry for the little babies who contract thrush.
HUGS
Shirley
Aloha Teesa: I hear you...oh the severe pain in my lower back AND both legs is horrible! I feel so bad because sometimes at night my husband puts his leg over mine and I have to take it off because it hurts so much. I used to be able to sleep the whole night because I take Lunesta, but lately I wake up about 3-4 times a night because even trying to move into a new position is so painful I just want to scream! Like you, I am uncomfortable. If I just stay in one position I'm ok for awhile, getting up is painful, I moan and groan all the time even when people are around; it just seems to come out naturally and it is embarrassing but I cannot seem to stop it. Is this anyway to live? I don't think so. I keep praying for some kind of miracle for all of us so we don't have to endure this horrible pain every single day. It's not fair and I hate not being able to do the things I used to. It's so bad that I have to use a scooter to get around, otherwise I would just stay home. I try to go to the pool to exercise; that is the only thing that feels good, for awhile anyway. Everyone tells us to exercise; they don't realize how any movement hurts so bad that you really really have to push yourself. I understand it is good for us to move, but it is so very hard! Thank goodness for this group; it makes me feel like I'm not alone; that there are people out there who understand our illness. If only somebody would find a cure for us!!! I hope it will be soon. I have had fibro for 5 years w/o a break, regardless of what medication, exercise, vitamins etc I take. It seems like the more i take, the more I need. All right, sorry about the ranting, just had to get it off my chest. Take care.
Brain fog and pain, I have spasms too, but constantly feeling dreadful and trying to think through thick soup is the worst.
Yes, the fatigue is miserable. Sometimes I feel like a zombie, just sitting down or laying down and even afraid to move because every movement is so painful. I'm usually ok in the morning, that is when I try to get things done. My mind is clear and I feel the pain but can handle it, then the meds wear off and that is it for the rest of the day.I usually have to lay down mid afternoon and just relax, but still can't do anything. I've gotten to the point where I don't even want to cook anymore since I'm so tired so I just make a sandwich or have some soup.I feel so lazy and I never was like that before it makes me feel guilty. Luckily I have a very understanding husband. I don't know what or how I would manage without him. Take care.
For me it is the pain when it flares followed very closely with exhaustion, not tiredness but exhaustion.
Aloha,
Have you considered going back to your doctor for a tweaking of your meds? They shouldn't wear off that quickly...well, I dunno, maybe they do in the colder weather? At any rate, I feel badly for you. You should be able to get more relief than what you're currently getting, at least that's my take on it.
Gentlest of hugs and loads of sympathy to you (and others here,)
Petunia
Not wanting to be touched by anything or anyone, I can't even sit on a fabric that has a texture, however, I can cope with that, I am still working full time and am exhausted by the time I get home, especially if it has been a very stressful day. the medications my neuro put me on helped me immensely, or I probably wouldn't be able to work
The pain is one of the worse for me. I don't get the wide-spread type, but certain areas hurt, including at the shoulder blades. And sometimes the hip hurts (have noticed that since I lost my job in 2002 I haven't gotten nearly the hip pain I was getting. Could be a connection). I'm not sure if some pain are caused by Fibro or something else. Calves hurt at time,
The other one, perhaps even worse, is allergies, food and drugs. I often suffer in pain because I can't take most painkillers. So frustrating. Heat helps at times - but sometime ice helps the ankles.
And every once and a well, my leg will just 'kick' on its own.
I go to the doc on a regular basis and feel like all I do is complain to him that I am not getting relief. I have tried various meds and i am on oxycodin now 3 x a day along with Gabapentin 4X day. I feel like taking all of them at the same time to see if that would help but I'm kind of scared to do that. anyway the doc said if he gives me more, then that won't work and I'll want more. I guess the more you take our body gets used to it and you need more. What are you taking? Are your meds working for you?
Sleeping days at a time.
Seems to me that thrush shows up on some fibro people. Keep that in mind, it does seem to tie in with fibro and seems to like to stay on forever.
I think mono may have a tie-in too.
Shirley, I wish you well in getting the thrush under control.
Oh, no way! That sounds awful! Every time I think I've heard it all on fibro, a new mysterious body reaction pops up. i'm so sorry that you've been through this! It's so nasty sounding. I hope you don't get it again!