I got my second letter fo lo jury duty today. I last time I couldn't get out of bed on the day. So they told me to write a letter along with doctors letter to the judge to see if he will excuse me. The clerk then ask me what's wrong with me. I told her I have panic attacks when in public and also fear leaving my house at times. I said I also diagnosed with fibromyalgia and I am in chronic pain. She says oh, I have fibromyalgia, like it was nothing, she actually sounded like she was going to say so! So I then tell her I also suffer from bipolar disorder, severe nausea, ibs, sleep disorders, and so on. I get really upset when people that share our pain act as if everyone should be able to do what they can do just because they have the same thing. It really make you feel like crap. I use to work 2 years ago and my I sometimes go weeks without combing my hair because my shoulders, neck, chest, and arms hurt so back. Please don't judge me because I can't but I try everyday. I don't know what else to say, I'm just hurt. I am so glad that alot of people can still carry on with their life, it gives me hope. I still thank God for the small things I can do and pray that one day I can do more. Sorry I really needed to vent. I am hurting and I am along in a state where I no friends and only my kids and husband. I go crazy leaving the house, cause I fear the world. I just really dislike people like that cause feel out of all the people they should understand.
Thanks so much for the support
oh gosh.. it sure is hard to be treated that way and compared as if others are better in that they think they have the same condition and are dealing with it better. once a friend was over visiting and my hubby was showing her something on the computer and for some reason she said to him." i have what suzie has". He nearly bit her head off having spent the first ten years of me being bedridden with everything under the sun happening to me and all the hospitalizations. she had driven to visit from a few states away and was doing her photography and part time editor on a local newspaper. He asked her to please not say she has when i have as she was at a very decent functioning level and never homebound nor bedridden. Gosh my husband is usually quite peaceful but that was a bit much for him. After many jury duty letters and my docs writing that i was too ill etc and that i am permanently disabled and unable to attend they finally stopped sending me the letters. But i did get a few till it stopped. Eventually they will save their notices and stop calling you too. sheesh.. i send you lots of HUGGGGGS
suzie
I am so sorry that this has happened. People can be very cruel. All you can do is pray for that women. You know she will have a flare and then she will think gosh I should have been more understanding. Mean people always get their comeuppance. I will keep you in my thoughts.
Well said Jackiem!
Jackie S
Hi, I am new on here but not new to fibromyalgia. As I was reading your statement it could have been me writing it, I do understand how you feel and it so upsets me when people do that. But I must admit before having it myself I did not understand other. so I have tried not to judge but it sure is hard for me to do that. you should have your Dr give you an excuse for perm status so you dont have to go through that again. I have been hurting so bad and heat even has made things worse for me. I can hardly move my arms and legs, and my neck hurts alot. But I am happy to be able to do what I can do I just wish it would be pain free or pain a little less. you sound like a great person hope to get to know you better, and hope you pain ease up for you.
Welcome to the group and thanks for the support
That is the worst feeling when someone who says they have fibro judges you against their own symptoms or lack of. It makes me wonder about them. If you educate yourself about fibro you know we are all different. We can find others who have similar symptoms and have gone through the same things, but if you truly know what fibro is you would never judge others symptoms. You would just love, understand and give support. Sorry you had to go through this and feel so alone. If any of us were there we would have socked it to her :) There are ignorant people out there. I feel for her if she does have fibro and some day suffers what you have suffered. Hang in there.
I am great, thank you for asking. I spent the day with my boys and just enjoyed the day. I am trying my hardest to act like the pain is not as bad so my son doesn’t keep asking me what wrong. Other than that I am blessed and alive.
Please vent away, Ana. You have every right to do so and there ALWAYS seems to be that person who "has fibro" yet still manages to work without complaining and thinks everyone else can too. If this lady REALLY has fibro, she'd better look out because sooner or later the fibro monster will come and get her and SLAM her with symptoms!
You can get a letter from your doctor stating that you are disabled and unable to sit through jury duty and you can then get released from jury duty. I did it because they wanted me to show up in some town an hour or more away in the middle of the snowy winter. I can barely drive a car far anymore. I'm sure that's probably true of you, judging by how much your arms are affected. It's crazy to expect people with fibro to sit through a trial and determine someone's fate, as we can barely stay awake half the time!
I'm sorry about that pesky clerk. I have no idea why ANYONE would dare to compare their fibro to yours. My sis and mom do that with mine and my neighbor across the street whose had it for years but still cooks and stuff - or did until recently. It just burns ya up, doesn't it???
Feel free to come here whenever you want to vent. Venting is good. It's healthy and it helps get the pain and frustration out. Plus you'll meet others who feel just as you do! Case in point, right here with me!
I hope you can get this crazy situation straightened out. If you have no idea where to start, google your state, jury duty and disability - all on one line, like this: New York jury duty disability Hopefully that'll bring up some useful information for you.
hugs,
Petunia
God bless you He knows all and sees all Just take it one day at a time I am learning in this new found FIBROLOUS LIFE that many won’t understand I too have lived the majority of my life seperated from the outside work and church and the grocery store my outlets because the children are grown now but I’m learning to treat people like I treat my shoes if they are not a good fit for me I don’t keep trying to break them in I pass them on with a prayer and wear the pair that fits. God bless you and I love you with the love of Jesus.
Thank you for your wonderful words. It funny I crave church with all my essence but I can’t bring myself to be around other people
I just read my bible. They should have a church for people who have a social disorder.
Is that part of fibro too. I find myself isolated. I get anxious being around people. I would rather stay home or be somewhere by myself or with just one person when I feel up to going out. It feel like my energy is just sucked out of me when there are a lot of people around and I get tense and start hurting.
I think it's part of fibro. I know that there is something in our bodies called Substance P that causes pain in us far more than in other people AND it's also found in the areas of our brains where depression and anxiety are, so we end up with both, along with pain. I feel like just going out period sucks the energy out of me. Can't imagine doing it with a lot of people, unless they want to see me do a Raggedy Anne and flop to the ground.
I think it is…I understand the looks the stares because people don’t understand that you look tired all the time because you are in pain all the time and have so many sleepless nights …they don’t understand the battle just to get there to the house if God but God understands I read and sometimes I hurt so bad I can’t go either and that hurts too but we have to hold on and help each other because we all have good and bad days but I am blessed to have found Bens Friends because as I continue on this journey and being hit diagnosis after diagnosis storm after storm there is always someone here to help me through to help us through and we in turn will grow to help another this is a beautiful place.