Tomorrow I’m back from medical leave. I was off work for three weeks. I have been passed the message that I’m to see my boss first thing in the morning.
I have been “warned” previously about my medical leaves and hiw that is unacceptable. I have appologized and promised to improve before. I can’t do that anymore, i refuse to say that I’m sorry for not being able to work. I did nothing wrong. I assume that I will be let go.
I live in a developing country with no workers rights in place. Even if there were any I still think it would save me.
I am angry, angry with my body, myself, people with no understanding or compassion. I am sad but most of all I worry what to do next. I’m 30, with no kids or partner. There must be better things waiting, right?
Ivana I had to look to see where you were. I am sorry I don't know anything about your medical or where you could go for help. I hope there are better things coming your way and I will be thinking of you please let us know what happens.
We are “lucky” that medical care is “free”, meaning every citizen can have medical insurance, the employer is required to provide it by law. The bad thing is the whole medical system is not very good, long waiting lists, inconvenient working hours… etc., so a lot of tests (MRIs, blood testing) is done privatley if one can afford it.
I am currently waiting for my ANA and other test results, that should be due next Wednesday, this is the first test I did through the state medical as I couldn’t afford it privately, it was very costly and where I live I make around 700$ a month ( I am a marketing manager with two MAs). My sallary is not considered a low one.
I already rely heavily on my parents for financial support and it breaks my heart to think that I might become a complete financial burden as all my savings are gone.
This ilness impacts so much of life and I can’t believe I myself have never even heard of it before I got diagnosed. Where I come from, there is 0 awareness. Whatever happens with me I will make it my mission to at least connect the people affected.
Thank you for your kind words.
Of course, the stress is now keeping me awake and the pain has worsened.
Ivana , I’m so sorry you are dealing with employer abuse … It’s so unfair ! Do you have long term disability benefits through the employer ?
I hope things go well, stand up for yourself , we didn’t choose to get sick or to live with this horrible condition!!
Let us know how it goes
Hugs to you , I do understand what your going through
dee B
I am so sorry about the unfair way that your medical leave is being mishandled by your boss. Oh how unfortunate that in your country of Serbia you do not yet have workers rights.
I agree so strongly with your statement, "I refuse to say I'm sorry for not being able to work." We did not ask for fibromyalgia to enter our bodies and cause us so much pain and fatigue and sleep problems. I couldn't begin to count the days I went to work with little or no sleep. This is not our fault, it's the hand we've been dealt.
Question is what do you do now? It sounds like fibro has become so difficult to function with that perhaps you need to think about applying for disability insurance. Do you have this in your country?
Once fibromyalgia takes hold of our lives we cannot promise anything in the future!!
What options do you have for money to support yourself?
We will be here to support you with our words and our feelings, but we do not have money to support you with.
Ivana, I 've been thinking about you all day. How did the meeting with your boss go? How are you doing? I've been fired also because of my absences due to illness.
Oh my goodness, there is 0 awareness of FM in your country?! So, you will not have any support or acceptance of your FM........except for your parents. That is very hard. That must also mean that there will not be much support from the medical field. I am surprised that you got diagnosed by a doctor in your country.
How did your meeting with your boss go? Please let us know.
I'm so glad that your parents support you by accepting it. Also their financial support. I am thankful for their presence in your life. Otherwise you could be in much despair and deep depression.
Ivana I don't think one off us has not stood at the crossroads of unemployment you do your very best, give your all, work as hard as you can and ir's just not enough and it beaks your heart because you know it. You are screaning inside what else can I do to please you I feel like I am dyeing can't you see that cant you see me stuggle everyday day, but they don't And I am so sorry for you What country do you live in send me a friend request and there might be some sort of sickness benefits you may be eligle for but this is usally what happens firbro just leaves you with no way of supporting your self and so few people really care what you are going through I care I've been there. Maybe retrain in a another feild that is not so hard phsically on you but you need money for meds how you can functoin. Write me a little more about your circustances and I will see what I can do to help you Warm Hugs Jeannie Take Care Sweet Girl