A New Challenge

I get you. Such a pity that many people don’t see what we feel. Part of it of course is that we don’t see it ourselves and try not to feel it, in the hope that that’ll help, but that only goes so far, regularly makes crashes even worse.

Maybe they pics or a more exact description of how you are feeling can help your people more than articles?
Have you tried printing out or sending some of the pics & memes Pics & Memes that visualize fibromyalgia and other invisible chronic pain illnesses or this “letter” An AMAZING letter to Loved Ones from a Fibromyalgia Patient by the fibro-author Claudia Marek?

I think I realize now that that’s a typo for “tried”.
Otherwise I’d have suggested the word “tired” might be belittling your severe fatigue and exhaustion?

Maybe this is the time to admit to yourself and shout at them, that now it is the “worse” that you may have once been able to be grateful for…
Is there anyone you know that can help you self-advocate or if necessary advocate for you?
Or what about one of them going to the docs with you, if you have a doc that can explain how serious your illness now is?

Insinuating you’re lazy or bitching that you’re “allergic to work” is more than thoughtless, it is contemptuous. Really those are people, whether they are family or pretend to be your friends, that need avoiding. They also need a kick where it hurts, so they know what pain is, but that’s for someone else to do.

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