So yesterday I did some planting, not huge trees but small plants…and the aftermath is feeling 300 years old, these are the days I am truly humbled, because I can barely walk, I feel like ive been thrown off a building, and rain has been just hitting the welcome mat at my front door, so to even move is ridiculous, so lying here, really fearing to stand, trying to stretch slowly my ankles legs arms back…and waiting for the moment my body allows me, not wants but allows me to be able to stand then walk (please without a cane) I feel so lucky if and when that moment comes its like opening a present, and it is humbling. So many people dnt understand, only people who are sick get it, no money, no fancy car no cool toy will ever give me the same feeling as being able to walk, to just get up and not have to think is a crazy thought, and I know I wont get that gift, but imagine if, oh my id have a party, lol . So I’ll take just being able to stand today, and ill be humbled because how bad I feel right now and im scared my hips wont last, you realize I said I was scared, ive never said that outloud, crazy, but thats my fms, its takes my body and I fight to get some of it back, some days I think it forgets about me, alittle, and others just it finds it funny to f/*!#with me, then there are like today, where because I did something I enjoyed, and need to do,.its punishing me…but as I sit here I sit humble…waiting…knowing that nothing but just being able to walk is all I really wantr, and the feeling of thanks that will wash over me will be great, because fms or I guess any sickness takes so much that after a while when you are able to do something it makes you grateful. I really thinking the aftermath is just not fair, its too hard of a punishment for doing an activity. Hey but im humble right,?lol…tell that to the dishes and laundry that needs to be done
Humble and grateful. I agree. I hope I can get up my stairs to my bedroom later tonight. Luckily my bf has full-time dish duty.
Thank you for sharing. Its nice to hear someone thinking and going through a similar situation.
Welcome to this amazing support group, I would be lost without the love and understanding they all give! With that being said I just want to tell you how you describe every detail of what this disease takes from us and how we fight so hard to keep going Only those of us who are living with this could relate and totally understand, there are a few who care and love enough to at least try, Although I can't give you 1 name in my circle that I feel beleive it is as bad as it is.So when asked (if) I just have to omit how bad I truly feel. But I am learning to love me and accept life and enjoy as best I can, I can't say that I am not frustrated by a lot of things that I can't do anymore, but I am embracing more and more each day the blessings that I do have and I am Humble and Grateful. Thanks for sharing and Great Job planting you get to enjoy your hard work and a sense of accomlishment!!! Gentle Hugs, Bobbye!
I am so glad I decided to join this group, I wanted to just share that even though the frustration is there, there dnt concentrate ob it it does no good try to find some new thing to keep you occupied, I I know how it goes I was diagnosed at 15 im 41 so it took more than most can imagine frm me , including being able to have any more kids, but through it I found that even at my worst if I can keep the mood within myself light, poke fun laugh at myself a bit, it helps, fms is a taker and selfish, so keep your chin up and I wish you the best. My plants look great, but fms got mad as usual and punished me today, oh well hopefully ill be forgiven tomarrow, lol
Omg you have to be exhausted by the end of the day, remember not to over do yourself, but it is good your active, really it helps a lot. Remember to take some dwn time, im not sure how long or how bad your fms is but all the same, anything done is good, a few things done is an accomplishment and a whole day of taking care of you and family, is wonderwoman!!! Have good tomarrow, i have my fingers crossed that ill be functional, lol
Girl its a revolving door with me and my partner fms, I do something it takes it out on me later, lol so I was lucky that my bf took care of dinner because I was up for like 3 hrs and then back in bed just lying there, because I felt like road kill and I refuse to take meds all day. But its amazing what is really important when you cant move…and how grateful you are when you can again!! Hope those stairs are too hard, I just to crawl up mine, it was a sight I looked like I was 5, hey but you do what you need to do right?! Be well