Rheum appt yesterday revealed the probability that along with osteoarthritis, my x-rays will show Degenerative Joint Disease. I already knew I had DDD. My bone and joint pain is much worse than my fibro pain right now. It hurts and I'm tired.
I see my neurologist Monday to talk about neck, head, face and all back pain. Also to talk about cognitive issues. Rheum says that since I'm taking 3 different meds that effect the central nervous system that could have an effect on memory, foggy head, etc.
Anybody have advice? And yes, I'd love some cheese with my whine, but wine isn't even fun anymore. Trying to keep a sense of humor but it's just a little fresh.
I know LK, no matter how strong we are, no matter how much we see something coming, when it hits, it just knocks the wind out of us for a few moments, or hours, or days... The important thing is that we always get back up!
As of this moment, I have degenerative disc, facet and joint. Not much left! We are just ahead of the curve by 20-30 years, but there are things that will help.
You are so kind SK. You are so nice to everyone and always say the right thing that lifts us up. I so dislike what you are facing right now. You are in such a hard place and yet you have the heart and the patience to contribute to us. Thank you. I guess I don't know how to do this. Being broken just plain sucks. Can't they just inject rubber or something?
They did something like that for my son, but he was bone on bone. He had it done 10 years ago, and just recently had to have it re-done at Pain Management. I feel for him everyday!
Hi L-Kitty,
I think that you can maintain great humor, says so much !!! Your positive outlook & attitude will carry you through all this craziness. I just recently started having joint pain and its not fun.
I love your little birdy doing circles… That’s sometimes how I feel, you nailed it
Lets all get together!! Form an ‘alliance’ to be STRONG!! This is NOT an EASY issue… The doctor appointments, medications, treatments, and what ‘others’ think we should do… The pain can be unbearable… I’ve found myself crying, curled up in a ball… I’ve lost friends, relationships, etc. I feel like I’m going to die a lonely old-lady and I’m only 49… I CAN’T make commitments because I don’t know IF I will FEEL ‘good enough’ to drive,etc… So, lets bond together … We are NOT alone!!
So, yesterday after writing this, I decided to do the splits getting into the shower. Oh OUCH. My husband was a bit dismayed when I told him and showed him my HUGE ugly bruise beside my knee. I need a new tub mat.
Time to leave the acrobatics to the young and well, there L-Kitty! We just don't have the agility anymore!
Hope you are okay, and yes, a new mat sounds like a good idea! I still try to take baths, fill it up with hot water and soak that sore back of mine, and it's getting harder and harder to get myself OUT of the tub, I have nightmares of the fire dept having to come get my naked self out of the tub! I see the 'shower' in my near future!
HA HA HA! Pull your naked self out of the tub! Since you're remodeling you should put in one of those new tubs with the door!!!!!
Since the bathroom on our main floor was stripped of the the old claw foot tub, we are going to make kind of a European style shower. This was the plan we had when Dad was here. No doors, you just roll into it with your walker (when the time comes) and sit on a shower stool. It's all tile in that bathroom so water getting on walls and floor isn't a factor.. This is my big dream, you know how those work out!! I need a plumber so I don't have to use the other bathroom anymore.
Exactly, Diana. What should we call ourselves? We need to create something motivating. We should be creative. Maybe we could start a project together, in our own homes. Or even start a book club! Just so we have something fun to do.
Oh girl, I'm right there with you. My spine and joints are falling apart faster than I can even find a proper doctor! I make an appointment for one thing, and by the time I get there, I have 4 more things to discuss. The best thing to do is keep that sense of humor, no matter how hard it can be at times.
Seeing the neurologist could be a great help, because he may change the meds to help with the cognitive issues. Stay on top of your joints and back with your rheumatologist or orthopedist, and try to keep a smile on your face!
Oh Renie, thank you. I do want help with the cognitive stuff. I am still physically comfortable driving in my car, but if my head isn't clear I'm stuck at home. On the other hand, getting out helps the mind. It helps balance things out and make me/us feel better.
I'm sorry you are having the same issues with the joints and spine. I just don't know what to say. I think, in the past, people suffered in silence and withdrew. So thankful we don't have to.
