I don’t want to upset or offend anyone or accidently endorse a product with any intention but to help others
Hey Nik,
As far as I am concerned if you are finding a product of benefit to you in treating your condition then I have no issue with you mentioning it on this board. Others may not have tried it and it may lead to another avenue of thought regarding someone else’s treatment. We are a self help community and it’s only by sharing our experiences that others can learn for our trials, successes and failures.
I think issues arise when illegal substances are suggested or an individual plugs a treatment that makes it sound like they are a rep for a pharma company. Some people may cast doubt on a specific treatment, but hey, if it works for you then who cares and it may just be the key that another member is looking for but never considered.
Personally I have a TBI (Traumatic Brain Injury) and I have tried a bit of everything from pharmaceuticals to hydrotherapy to TENS machine to …………ANYTHING. If a dr suggested it, I tried it, if a family member suggested it, I tried it, if a man in the street suggested it, I tried it. AND if someone on these boards suggested I tried it. Someone may have my ‘key’, so I don’t write anything off until I have given it a go.
Now In saying all of this I must also say ‘With medical advice’. I would take the suggestion, speak to my dr, then try it. I do not need to have treatments in conflict with each other.
As part of the Moderator Team here on Ben’s Friends we keep an eye on topics and their content. Some members can take offense easily, so we may try to calm the waters, but so long as things are not overtly offensive or an obvious plug by a seller we often leave them be. Other members are sure to put in their views and believe me the other Mods will be in the background anyways.
So you go for it, let’s see what happens.
Merl from the Moderator Support Team.
This is a private chat, correct? You have to be signed up to see posts?
Yes, that is correct.